This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
We only have our 4 yo who is gluten-free. My other child is 6 and she usually eats gluten-free but not always. However, we also feed the kids separate from the grown-ups most of the time, so it is easier to keep gluten-free and non-gluten-free things separate. If we all eat together, we usually make everything gluten free (tacos, roasts, chicken and veggies, salads, rice dishes). But we will make pasta and make extra for leftovers so we have stuff on hand for him, and then we will make regular pasta for the rest of us sometimes because its cheaper. Or if we are doing sandwiches we will make his first in his dedicated area of the kitchen, and then when his is made we will then make the rest of the sandwiches in the gluten area of the kitchen.
Our 4 yo has his own cabinet full of snacks, cereal, granola bars, chocolate, etc. and he knows its all for him. So my two kids know that they get granola bars from different stashes. They are good with it, and we stress washing hands before and after meals so there is less contamination.
My kids are both somewhat picky - here are some random ideas. We make homemade chicken nuggets and fish sticks using gluten-free breadcrumbs that they like, especially with a little ketchup. Have you tried the Quinoa pasta - its my favorite kind. Does he like french fries, hash browns, latkes, sweet potato fries? My kids like plain thin-sliced chicken saute'd in butter. Corn on the cob. Plain white rice with a little butter. Frozen peas. My little one likes black olives and plain black beans with salt, but my older one doesn't. Also they like the tiny Hormel pepperoni. I would just keep trying to get him to eat stuff. Good luck.
My 4 yo has Celiac and my 6 yo does not. The kids eat mostly gluten-free at home, since we cook them the same dinner. My 6 yo eats other stuff at school and sometimes they will have different things. We have a book called Gluten Free for Emily that is helpful in that it shows that sometimes you just can't eat what the other kids have. It is hard, although my 4 yo has a pretty good attitude about it so far. Maybe its because he still probably has a wider palatte than his older sister, who is pretty picky. We naturally cook a lot of things that are gluten-free, such as chicken, vegetables and salad, and he likes Udi's bread. We don't eat fast food anymore, although we go to McDonald's and get ice cream a few times a year. I take our 6 yo occassionally for a treat, but I take him out for eggs and sausage occasionally too. We've slowly started putting less emphasis on food and I always bring stuff with me even if we are just going out for a couple hours, just in case. Sometimes we go out to eat and he will just have what I've brought him plus fruit or ice cream. Anyway, its hard but we're trying to adapt.
My 4 yo has been gluten-free for a year and is also very small (3%) for weight. He's gotten a bit taller since going gluten-free, but he's still very short. It really bothers him and he gets frustrated about it. Our doctor encouraged us to give him Ensure or Pediasure to make sure he is getting enough calories. He's 4 1/2 now, and does seem to have gained a bit more weight, but I think its still on the same curve. He is doing well on the diet and hasn't had any cross-contamination based on blood tests. The doctors think its just his normal size for now. I have no advice but I thought I'd let you know you aren't alone with a small child.
If you're close to Montgomery County, we see Benjamin Enav who is with Lynn Duffy's pediatric GI group. We go their VA office. He sees quite a number of Celiac kids. He did our son's scope and was very nice. We've also met with their nutritionist.
We provide my child's preschool with homemade playdough now. We also are willing to substitute as much as possible for any pasta and cereal they use in art projects. We made up a sheet for all the teachers similar to the above list to let them know what is expected like washing everyone's hands after meals, not sharing food, no playdough, etc. I think it was helpful for them to have a list to go through.
You could also do brownies. I haven't tried these yet, but here is a Whole Foods recipe for brownies that has no flour in them - they use black beans instead. http://www.wholefoodsmarket.com/recipes/recipe.php?recipeId=2594
If you wanted, you could add dairy free orange sherbert for brownie sundaes. Would look especially good for an October birthday.
My non-Celiac DD used to not like cake so I did doughnuts once for her birthday instead (I think she was 3). The kids don't care what they eat as long as its sweet.
I did cupcakes for my son's gluten-free birthday this year, along with popcorn and cotton candy from a machine we rented. The kids thought it was great.
My son had just turned 3 when he was diagnosed. He had been very tired all the time prior to that, and dropped his nap altogether within 6 weeks after going gluten-free. He seemed to have lots more energy in general - less reliance on the stroller and more interest in walking/scooting. Also he started growing a bit within a couple months - went from 18 mo clothes to 2T.
I would give it a bit more time. We didn't have any bathroom-related symptoms, so there wasn't much change in that for us.
I hear about moms with Celiac who feed their families non-gluten-free food. Right now, I don't allow my son to touch regular pasta, bread, play-doh, etc. I admonish my older child to not touch her brother while eating, to wash her hands, etc. I'm just wondering what that magic age is where you feel like a Celiac child/teenager is responsible enough to wash their hands and be safe around it. Right now I don't think my little one will ever be allowed to touch a piece of non-gluten-free food. Not that he is good about washing his hands now - which might explain my fear of him getting glutened all the time of course.
My son was also asymptomatic, except that he didn't grow or eat much, and slept a lot prior to diagnosis at age 3. We don't know if he gets gluten now or not - he's never gotten sick as far as I can tell.
He occassionally asks when he can stop being on a gluten free diet.
My child attends a private school and they bought the playdoh for the class, or made it themselves, or sent out gluten-free playdough recipes and asked parents to make it per that recipe. Ours doesn't supply meals. We have an annual meeting with the teachers right before school to go over how to work with our child and his lunch/snacks. Basically, they always wash their hands before touching his food or helping him open food containers, and they keep his placemat in a separate place from the other kids' placemats. They also check all the school supplies for gluten prior to school starting, and they don't use food in the classroom for art projects. I send in his own snacks for birthdays. So far they have been happy to accomodate us. It's not perfect, but they do pretty well.