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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About lpowmacback

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  • Birthday 11/21/1958

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  • Interests Being with my family (my wonderful husband and teenaged son). Traveling (especially St. John, USVI), reading legal and medical thrillers, crossword puzzles, watching the Yankees
  1. Do I Or Don't I?

    Thank you so much for the info! I just found out my IgG came back within a normal range - I just put myself on a gluten free diet- because in 2004 I got a 22 (weak positive) in the Gliandin AB IGG test. The tests after that from Elizabeth Shane were taken when I'd been completely gluten free for at least 3 months.  
  2. Do I Or Don't I?

    Why the heck did my doctor tell me that I did not have celiac then? Not that I definitely do - but to flat out say I didn't is kind of weird.She also said if the IgG test would just reveal that I would need to get some kind of monthly shot for my immune system... nothing about celiac.
  3. Do I Or Don't I?

    I was only not eating gluten when I had the tests in December - both came back negative. My only positives were weak - Gliandin AB IGG test:  22  (weak positive) 7/29/04 and very recently 7/24/14 and the most recent one which was only Immunoglobulin A, Qn, Serum - 83 (low).
  4. Hi guys - it's been a very long time since I've been here. While in the past I have been told I do not have celiac or a gluten sensitivity, I am back because I am now questioning what the doctors have told me- I've found some of you on here to be more knowledgeable about celiac & gluten issues  than some doctors - so I thought I'd throw you some information and you can tell me what you think.   Although I never seemed to have evident gluten sensitivity or celiac symptoms, in 2004 I was diagnosed with pretty bad  osteoporosis (I was 46, pre menopausal). Since I had no reason (other than I am 4'10.5") to have it, I went to an endocrinologist  who gave me a battery of tests. The only thing that came back questionable at the time was a   *  Gliandin AB IGG test:  22 (weak positive) 7/29/04   She suggested I might have a sensitivity to gluten and told me to go to NYC to see another endocrinologist for further testing. After that "weak positive," I put myself on a   *  started gluten free diet 8/25/04   I went to see Dr. Elizabeth Shane, an endocrinologist who gave me further testing and my initial tests came back negative    *  Tissue Transglutam AB IGA- normal    Gliadin AB (IGA) - normal    Gliadin AB (IGG) - normal    12/7/04 - on gluten free diet since 8/25/04   She then sent me for further testing:   *  Anti-Gliandin IgG ELISA (AGA IgG - normal    Anti-Gliandin IgA ELISA (AGA IgA) - normal    Anti-Human Tissue Transglutaminase IgA ELISA (TTG IgA) - normal    Anti-Endomysial IgA IFA (EMA IgA): Negative    Total Serum IgA by Nephelometry (TOTAL IgA) 114 mg - normal    12/22/04 - on a gluten free diet since 8/25/04   From what I remember, I gave up a gluten free diet a month or so after those tests, since I was told I had no problem with it.   Recently, I had blood work done - revisiting the possibility of celiac or gluten sensitivity - and all was normal except for a:   * Immunoglobulin A, Qn, Serum - 83 (low) * >1999 (High) B12 (I had been taking 1050 mcg a day) 7/24/14   My doctor has taken more blood since then to check for IGG - which I have not received results of yet.   Over the years, my osteoporosis has gotten worse - except the test (a year or so after) 4-5 months off of gluten (hmmmm... could that mean something?)   Thanks for any light you can shed!!   Lisa    
  5. Happy birthday and may God bless you today!

  6. Chili's - Latest Gf Menu

    Here is Chili's response to my inquiry regarding their most updated gluten-free menu: Thank you very much for your email and for your interest in Chili
  7. Gluten Reaction

    Could it possibly be that due to having celiac disease your intestines are more delicate and you have more reactions to different kinds of foods? Many people w/ celiac disease have problems with diary (lactose intolerance) as well as other foods. I'm not sure if I have celiac disease yet, but over the last few years, I cannot have any broccoli or cabbage or I will get severe stomach cramps that evening or the following day... where years ago those foods would not cause me to have any pain at all! Lisa
  8. I am a 46 premenopausal woman who has rather severe osteoporosis (-3.1 on hips). I went to a metobolic bone specialist (endocrinologist) from NY Presbyterian University who highly suspected I had celiac disease and ran tests, including the Prometheus Serology test and all came back negative for celiac disease. (Although I had high levels of Vitamin D and Parathyroid levels... making her think I had a malabsorption issue) My question is, over the past 4 years or so, I've been eating very small amounts of gluten type foods, as I was into eating in an Atkins type way to keep the pounds off... I have always felt "weighed down" by pasta, etc and just felt better eating salads, fish, etc. Although I have eaten small amounts of gluten foods such as a sandwhich here and there, breaded, fried foods from time to time, as well as probably many items that I wouldn't have thought (but now know, thanks to this website) to have gluten in them. Would eating small amounts here and there make my test accurate? Or would a person need to be eating at least 2 slices of bread, etc. on a daily basis to test accurately? Would the stool test be more accurate when eating no or low levels of gluten? My dr. wants me to eat gluten for a week or two and retake the test... I really don't want to play guinnea pig with my body and consume lots of gluten if it turns out it is unhealthy for me... just to take another test. Thanks for any advice! Lisa
  9. Has anyone ever become itchy after using a shampoo with wheat or barley in it? I have not been officially diagnosed as having celiac disease, but my endocrinologist suspects I do have it based on my history. In the past I'd used my husbands shampoo and I remember getting itchy in my arm pits later in the day after shaving with it (yes, I use shampoo to shave with) in the morning. I'd stopped using it a year or more ago because I figured something in it gave me an allergic reaction. Now since I face the possibility of having celiac disease, I read the ingredients and it contains barley! I tried it again... this morning I shaved with it and now, this evening my legs and tops of my feet are itchy. There is no rash (even when it bothered my arm pits, there was no rash). Has anyone had this reaction? Thanks! Lisa
  10. Rob, why not try to educate them just a bit? Why not tell them, in simple terms, what happens to the intestines upon injesting gluten. Explain how your own body attacks your intestines, damaging them enough to cause malabsorption problems and much more... even the possibility of cancer. I am not an officially diagnosed celiac, although my doctor highly suspects it, and I went gluten free a week or so ago. I went to a New Year's Eve party at a close friend's house and while we (and others) brought lots of food that I could/would not eat, I also brought food I could (just for me). I had explained the situation to my friends, and they were fine with it! I explained it simply like I'd mentioned above and they did not push or prod me... I also explained that I enjoyed what I was eating! Perhaps if they have some understandable scientific explanation, it won't be such a mystery to them. Good luck! Lisa
  11. I keep hearing about it.. but what exactly is it? Thanks, Lisa
  12. Osteoporosis

    Hi Sara... yes I too am taking a great calcium supplement - but as for Fosomax, it is definitely NOT RECOMMENDED for premenopausal women! My new endocrinologist (a metobolic bone disease specialist at Columbian University Med Ctr in NYC) expressed her anger and frustration of doctors prescribing Fosomax to women not yet in menopause. Thanks, Lisa
  13. I haven't yet been officially diagnosed w/ celiac disease, but my doctor highly suspects it... and I am certainly a "newbie," but I imagine that prior to anyone being diagosed and prior to going gluten free, the damage caused by years and years of eating gluten would probably take a long long time to heal!
  14. New To Cd

    Darlindeb, that's very interesting that you lost weight once on the gluten-free diet...some background info on me: I am 46 and not too long ago found out I had severe osteoporosis (-3.1 in my hips) and I have not gone through menopause yet and don't have any of the typical reasons (anorexia, steroid use, etc.) to have such bad osteoporosis. In any event, celiac disease is highly suspected by my metabolic bone disorder endocrinologist. due to the fact that I've got high vitamin D and high parathyroid levels in my blood... She doesn't think it's due to my parathyroid being faulty... but all due to celiac disease. I took the Prometheus Lab Celiac Serology test last week and am waiting for the results. She actually advised me to continue eating gluten until I've had a biopsy, but after all of the reading, I've decided it was vital to stop ingesting toxic substances (gluten) just in case!!! So, I've been gluten free and have also lost weight EASILY!!!! I haven't been too overweight in my adulthood (althoug quite pudgy as a youth/teen). As an adult I ate very little and had a had time losing the 5 pounds I really should have lost! I think something is up with gluten being removed from a diet and then being able to eat more normally and maintain a better, more healthy appropriate weight. I wonder how many others have lost weight (in a good way) after going gluten-free.
  15. I am a 46 year old woman who has scoliosis (not too bad - 40 degreee top/36 degree bottom). About a year ago my spine doctor told me to go get a bone density test done because they've found that people w/ scoliosis have a higher prevalence of osteoporosis. So I did. My gynocologist told me I had the worst levels he's seen in someone my age. I have severe osteoporosis in my hips (-3.1) and osteopenia in my spine. I have NOT GONE through MENOPAUSE yet... Anyway, I was told to go to an endocrinologist because the osteo was so extreme. She ran a battery of tests and was baffled because she suspected Celiac or a problem w/ my parathyroid but her tests, other than a weak positive for the IGG came back negative. She told me to go to see another endocrinologist in NYC at Columbia Presbyterian Hospital. I had more tests done for this new endo. & just went this past Tuesday. Although I didn't test positive for the basic IGG & IGA tests, my vitamin D (hydroxy test) was very high and my parathyroid level high too... making her suspect Celiac. She then had more blood taken for the Prometheus Celiac Serology. Other than osteoporosis, I don't have concrete stomach issues... I'd often been constipated... but I thought that was due to my diet (too much cheese here and there, not enough roughage, etc.). I have often gotten bloated... but thought that was not too unusual. Anyway, anyone else out there have osteoporosis for not the "typical reason" such as menopause, being anorexic, taking certain drugs, not having normal periods, etc? ANYONE HAVE OSTEOPOROSIS DUE TO celiac disease? I actually hope I have Celiac... then I will know WHY I have osteoporosis so bad at only 46! Thanks!