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msharnoubi added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsConflicting Blood Test Results.Hi everybody,
I have the following conflicting results from 2 different labs:
IgA Quantitative 149 Ref. range: 70-400
Anti Gliadin IgG Negative Ref. range: Negative at serum dilution 1/40
Anti ttG IgA Negative 3 Ref. range: Negative<20 ### Weak Positive 20-30 ### Positive>30
Anti-Gliadin IgA Positive 1/20 Ref. range: Negative
Anti Endomysial IgA Negative Ref. range: Negative
Anti ttG IgA <10 U Ref. range: Negative<20 U ### Weak positive 20-30 U ### Positive>30 U
1- I'm not very confident in all the test results because as I've said in an earlier posts, celiac tests are rarely made in Egypt.
2- I think the most accurate test is ttG IgA of lab 2 because they told me they do it in Europe
As you can see, they appear to be all negative except the AG IgA.
Is it possible to have such conflicting results or did some lab do an error?
If it's possible to have such conflicting results, which test should I believe?
Please keep in mind that a previous trial in the past of the gluten free diet for about 7 weeks didn't make feel much better. In addition, the problems I have are not directly related time wise to eating gluten. That is I don't have this direct connection between eating gluten and then having the symptoms a couple of hours later.
Any help would be appreciated.
- 5 replies
- 1,451 views
msharnoubi added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsTest Results In -- Celiac Or Something Else?Hi everybody.
Please excuse the terribly long post. Normally, I don't talk that much but just wanted to make sure to provide all the relevant information.
I need help with these test results please:
* IgA Quantitative:**********149 mg/dl*****Ref range: 70-400
* Anti Gliadin IgG:***********Negative******Ref range: Negative at serum dilution 1/40
* Anti-Endomysial (EMA) IgA:**Negative******Ref range: Negative
* Anti TTG(Endomysium) IgA:**Negative 3****Ref range: Negative-< 20 --- Weak Positive 20-30---Positive-> 30
The lab didn't return the Anti Gliadin IgA.
I had been consuming gluten normally my whole life. I just tried a gluten-free diet for 6 weeks then decided I should do the tests. Consequently, I returned consuming gluten (I didn't know I loved it that much) for 2 months before performing the above tests.
I don't think I can do any more tests like genetic screening or biopsy because I don't think they're available here in Egypt and if they are I don't think I can afford them right now. In fact, I'm not quite sure I can rely very much on the blood tests given that the lab's staff had to search for a while in their manuals before finding the tests not to mention the contradictory answers I received on the availability of the tests when I contacted different branches of the same lab!
In any case, based on these results, should I make the Anti Gliadin IgA or are the above tests enough?
Now the important question, should I believe my physician in his diagnosis of IBS or is it celiac or should I consider something else?
To help answer the above question, please allow me to briefly sketch my condition:
* Male, age 39
My major symptoms are:
***Mental & psychological symptoms:
* Fatigue and lack of energy that leads to increased sleep. (Frequent.)
* Somewhat weakened mental abilities (i.e. memory, alertness, concentration, creativity,...). (Frequent.) All the people around tell me they don't notice them but I do.
* Low grade depression. Personally I'm convinced it's due to the above mentioned points.
* Gazes, bloating, abdominal fullness. (Frequent but not very bothersome.)
* Low back and joint pain. (Infrequent.) Only when I eat some foods coupled with stressed
* Lactose intolerance
* Heartburn, dyspepsia. (Not very frequent and also not very bothersome.)
* Chest pain. (Infrequent)
* Rhinitis, blocked nose. (Nearly always)
* Abdominal pain if I'm constipated for more than 4 days which doesn't happen a lot because I take laxatives the 3rd day.
I've been diagnosed by physicians as having IBS by some and Dysthymia by others. In addition, I've personally considered other conditions on my own; most notably CFS but decided it wasn't very probable especially because I don't have low blood pressure and I feel better after exercising.
I'm not very troubled by the GI symptoms and don't mind living with them. However, I would be very happy to find relief from the mental symptoms. Although, in point of fairness, I have to state that I'm currently very happy and very grateful, thank God. But we can always make room for more happiness.
After knowing about celiac and considering I could have it, I started paying attention to how I react to gluten. I found that eating gluten doesn't change my symptoms unless I eat too much. However in this case, I'm not sure if my symptoms are due to gluten or to eating too much especially that eating too much of a lot of foods can give me similar or worse symptoms (milk and soy products for example).
So any advice is appreciated.
- 5 replies
- 781 views
msharnoubi added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHow Long Eating Gluten Before Testing?Hello everyone,
Great site with a wealth of information.
I had some symptoms that persisted for serveral years and were never cleared even after seeing several physicians.
The main ones are chronic fatigue, poor memory, conentration and the brain fog. I also have some GI problems with chronic constipation but they are rather mild and have no problem living with them. In fact, I must admit that thank GOD my overall condition is pretty mild and much better than a lot of conditions celiac or other that one sees and/or hears about. Thank GOD.
Doing some research for myself, I found about celiac and gluten intolerance (or maybe some other intolerance) and thought that may be that's what I have.
However, where I live, these conditions are not very well know (with the exception of the standard celiac for infants). I even think that if I told my physician I think I may have gluten intolerance or some other food allergy, he'll probably think that I should see a psychiatrist .
After some more research, I found about the tests and found that the blood tests are available here but they are quite expensive. Since, I don't have insurance (I don't think inusrance would pay for these tests anyway), I decided to try the diet and see if it works.
Six weeks now, and I've noticed some minor improvements. However, they are very minor that they could be caused by placeboo, the B12 and other vitamins that I've self prescribed or I could even be fooling myself. In fact that's what my wife tells me.
So, I decided to do the tests to be certain.
My question is how long should I eat gluten before doing the blood tests?
- 4 replies
- 2,420 views