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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About passionfruit877

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  1. Very interesting. I wanted to say I have much more anxiety when I get glutened as well.
  2. Well thank you all for responding. I felt a little stressed and confused this morning, but now I think I feel confident about my decision.
  3. I don't have Celiac, just gluten intolerance, but I have the same "pregnant belly". I have been off gluten for 6 months and I get it when I eat gluten, or sometimes dairy. Like, so big I can't button my pants (and I am normally skinny). I guess it is a reaction. I have not been tested for Celiac but I see many people on here are gluten intolerant even though they test negative for Celiac. It sounds like you weren't eating much gluten anyway, so maybe that is why you tested negative? People on here will probably tell you to try the diet. You will notice a difference if you cut out gluten for a month then reintroduce it. I also have a lot of anxiety and OCD tendencies that get worse when I eat gluten. Don't panic. If this is what's wrong with you it is an easy fix.
  4. Also, I can't speak for everyone else, but I developed a sort of aversion to gluten, because I could tell it was making me sick. It was hard at first, but it got easier.
  5. If you've already been tested you may just try the diet yourself. I would not recommend it if you haven't been tested because now I have been off it too long to be tested (and it makes me sick to eat it again). My husband has been supportive since he saw my positive changes, and now eats mostly gluten free himself. I make honey mustard chicken, stew, pasta, you name it, all gluten free. I had terrible constipation for almost 3 years, and it wasn't normal constipation, but more like I lost the urge to go. It took about 3 months on the diet to correct it. Honestly, it didn't take long to see a difference. I tried it for 2 weeks and saw my bloating go away. When I tried to eat it again after those two weeks I definitely noticed that I didn't feel good. I have been struggling with not being diagnosed either, however, I feel so much better off of it and found a doctor that supports me in that.
  6. Hmm, I'm not liking the word "months" there. Ok, I think I'm not gonna do it. It's not a good sign if I'm ready to give up after one day. He did say the only difference was that if I did have Celiac disease I would just have to check up with a doctor every so often, maybe get screened for osteoporosis later. I could do that on my own. He told me constipation is rare with Celiac disease (and that Celiac itself is rare) and so I probaby don't have it. I can accept just gluten intolerant.
  7. Ah, ok now I'm feeling it. I ate some soup and my stomach feels very bloated. I also have heartburn and that tightness in my chest. How long would I have to wait to take the blood test? They said whenever, so I could do it next week. I have gluten intolerance in my family, as well as lactose intolerance. I don't know that any of them were able to test positive, and one has taken the blood test 3 times. I will definitely stay off gluten either way. I don't mean to come off as whiny. I just really don't know what to do.
  8. I'm worried that I'm wrong. Sometimes I get sick after I eat, like immediately. But today when I ate that bread I just got really bloated and now I have heartburn. I don't have stomach cramps. And I have to go in between Monday and Thursday to get the blood test, they told me just go whenever. I though maybe I could just wait a week and go get the blood test done, and if its negative cancel the endoscopy. Honestly, I don't want to do an endoscopy.
  9. Debbie, how long were you gluten free beforehand?
  10. But is it even worth it? And I was confused that he scheduled the blood test and the biopsy at the same time. Shouldn't I just try the blood test and if it comes back positive then do the biopsy? I ate like 3/4 of a piece of bread when I got back and now I'm bloated. He said I had two options, just keep eating gluten free or do the testing. I'm thinking maybe I should just call him and pick option 1.
  11. I saw a GI today who said he doesn't think I have Celiac but said I might as well be tested since I'm only 22. I have been gluten free for 6 months so he asked me to eat gluten for 2 weeks then get a biopsy. The biopsy is actually scheduled for 3 weeks though. I'm not sure what to do. I really want to call and cancel the endoscopy and just say I'm gluten sensitive. I don't really want to eat it. And they scheduled me for a Celiac panel that I can go get done whenever I have time. Is this worth it?
  12. I have been referred out to a GI specialist. I will have a new doctor so I'm excited to see how this will go.
  13. Wheatgrass

    I wondered about that. I saw this fruit juice that had wheat grass labeled, but was marked gluten free.
  14. I have sort of a similar story. I was diagnosed with IBS for about 2 1/2 years. It started in college. I accepted this diagnosis at first but then it got worse and worse with new symptoms. I felt like I wasn't being taken seriously, and doctors insisted I still just wasn't getting enough fiber. I was eating fiber one bars, whole wheat everything, Activia with fiber, and I couldn't figure out how I could eat that much and still not go when people who eat fast food all the time were having no bathroom troubles. It wasn't so much constipation as I just lost the urge to go. I would have to use things like Milk of Magnesia to "stimulate" my colon every 3 or 4 days, hahaha sorry. About 2 months gluten free, it just started working again. And now I go to the bathroom regularly. That itsself was huge proof to me that the diet was working for me, since it resolved my main symptom. I don't know if I can handle a gluten challenge. I react to gluten in about 10 minutes. Today we went to get Mexican food and I ate a bunch of tortilla chips. After about 10 minutes the pain hit, going from just an aching stomach to cramps. I took some GlutenEase pills and the pain stopped but I am still bloated.
  15. What Is Your Daily Diet?

    Yoplait yogurt is delicious for breakfast. The ones that are gluten free are labeled on the back. Coffee is gluten free (woooo) but watch out for flavored coffees and creamers. I make a lot of soup, meat and potatoes, mexican food (like tacos with corn shells), nachos, I made honey mustard chicken the other day that wasn't bad.