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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About gf_soph

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    • Birthday 01/11/1985

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    • Gender Female
    • Location Sydney, Australia

    gf_soph's Activity

    1. gf_soph added a topic in Gluten-Free Ingredients & Food Labeling Issues   

      Cadbury Australia Undeclared Cross Contamination
      Warning to Aussies
      Cadbury have just started releasing new packaging, which has a 'may contain traces of wheat' statement, even on plain milk chocolate. 
      When contacted via facebook, the response was that there hadn't been any changes to ingredients or production methods, but they had reviewed their allergen labelling to better reflect the allergens that may be present due to cross contamination.
      They didn't seem to understand that it is unacceptable that there has always been the potential for cross-contamination, and they have only just decided to start declaring this. How can a company this big not understand the mandatory reporting of allergenic cross contamination?
      As a highly sensitive celiac I am furious that a previously trusted brand hasn't been properly declaring this issue, especially as in the past their website even had a list of gluten content categories, dividing between 'gluten free', 'traces of gluten (<20ppm)' and 'contains gluten'. To blithely state now that they 'never claimed their products were gluten free' is an insult to consumers as well as a misunderstanding of the issue. 
      There goes one of my only emergency convenience food options!
      • 2 replies
    2. gf_soph added a post in a topic Christchurch Gluten Free   

      Just wanted to say a well-overdue thanks for your tips - thing went really well! My sister and I loved the gluten-free bakery, I was very naughty and had donuts and cheese scones - I hadn't had either of those since going gluten-free! Their chia bread was pretty good, it had a nice taste and lasted well for a few days. All in all it was worth the 2 trips we took there!

      By coincidence my Aunt had planned a trip to Jo's cafe in Oxford, and there was one gluten-free vegetarian option which was nice. The supermarkets had a good range of staples and treats, and sis was very happy to find safe boysenberry ice cream - it's not a trip to NZ without it! I also found a couple of brands of potato chips. The gluten-free fish and chips was a great novelty (we had chips, potato scallops and pineapple fritters), though I'm slightly glad I don't have one near me as it wouldn't help the waistline one bit. All in all it was a much easier trip than last time and the only thing I had to bring over was my preferred tofu.

      I loved my time in Christchurch and there weren't any major shakes while we were there. Hope you're doing ok after the recent big shake.

      Many thanks
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    3. gf_soph added a post in a topic Christchurch Gluten Free   

      Thank you so much for your reply - we are going this Sunday, November 27th. I have hit google and got some ideas, but the main issue is whether the places listed are open or closed!

      Those suggestions will be really helpful, I'm hoping to stop my sister feeling too overwhelmed on the first trip away since going gluten-free.

      Again, much appreciated.
      • 0
    4. gf_soph added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Christchurch Gluten Free
      Hi to the Kiwis!

      I am about to visit Christchurch and I have some questions about the current availability of gluten-free food, particularly given all the disruption you have had recently. We will stay in Merivale and St Albans but I'm sure we're willing to travel around for something good.

      My sister has just gone gluten-free so I am looking for nice places to take her to eat - any suggestions? Any good stores with a decent range of gluten-free product? Any feedback on the 'totally gluten free bakery'? Any experience would be very welcome.

      Also, I am still on an elimination diet, so am pretty restricted. Can you tell me about any gluten-free plain potato chips? Have you seen the Red Rock brand chips stocked? They are from Aus and are definitely safe, but they can't tell me here where I can find them. When I was in Auckland last year I couldn't find a single brand of potato chip in the supermarket that didn't have a cross-contamination warning, so I would love to find some safe ones.

      • 5 replies
    5. gf_soph added a post in a topic Australians And New Zealanders Hellooooooo :)   


      Gluten sensitive + FODMAP + more from Sydney right here! There's a bunch of people on fructose/FODMAP diets at the yahoo group called 'fructose malabsorption australia' and there are plenty of people there who are gluten free too.

      It's a massive pain having more than just gluten to deal with, but you may find that on the right diet you can feel way better and gradually expand your tolerance. Have you seen a dietician to explain the diet and help you plan? If not, it can be a great help. There are heaps of recommendations for people within the yahoo group I mentioned.

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    6. gf_soph added a post in a topic Persistant Folliculitis   

      I'm not sure if you want to try again, but I was taking Doxycycline 50mg a day. It may be that you just dont do well with tetracycline antibiotics, or it may be the higher dose. I googled Lymecyclinum and wikipedia says that it is more effective than traditional tetracyclines as it is absorbed easier by the gut, so your 100mg dose may be have the effect of 150 mg of Doxycycline.

      Just my thoughts, but my GP specifically prescribed that type and dose as it should have a lesser effect on the gut than other types. Of course you should discuss it with your doctor in case they think you may have a general problem with that class of antibiotic, but that specific type and dose has worked great for my sister and myself in managing the folliculitis. I didn't have any side effects and I have a very messed up gut, so it might work for you.

      I know what it's like to try and stay safe in a house of gluten eaters, it's hard and there were times I got so frustrated that I just didn't eat. The stricter you can be the better chance you give yourself to heal. There are some good posts and articles here about common sources of cross contamination, and there are posts about safe gluten free body products.

      I hope you get some rewards for your hard work soon
      • 0
    7. gf_soph added a post in a topic Persistant Folliculitis   

      I know it can be really disheartening not to see results yet. However, your biopsy showed damage so I would expect it would take months for your digestive system to get closer to normal. Please don't give up on the gluten free diet yet, something is causing your damage and there's a very good bet it's gluten. Have a search around here and you will find lots of people who took several months to start feeling better, but if they gave it up sooner they never would have known how good they could feel. Are you sure that you have eliminated all sorts of cross contamination in your diet?

      I also found that it took more than a month on the antibiotics for the skin problem to go stay gone. What type and dose were you taking? Did you see any change at all?

      Believe me I know how hard these changes and restrictions can be, but it's way too early to give up on what you're doing.

      Hang in there

      • 0
    8. gf_soph added a post in a topic Suspect Fructose Intolerance   

      Sorry I don't have time for a full explanation, but here's been a few posts about fructose problems recently, so if you search for fructose or FODMAP you will find some previous posts. FODMAPs are a larger category of poorly absorbed sugars that include fructose.

      There are a range of fruits and vegetables that are low in fructose, and people have varying amounts of fructose they can tolerate. If you want to find out more the best place to start is a yahoo group called 'fructose malabsorption Australia', and and work by Sue Shepard, Jacqui Barrett and Peter Gibson. They are researchers in Australia that test foods for their fructose and FODMAP levels, so their research is the most reliable out there.
      • 0
    9. gf_soph added a post in a topic Brown Rice Intolerance - Wild Rice Ok? Other Foods To Avoid?   

      A lot of people with fodmap problems can't tolerate brown rice, myself included. It's been tested safe for fodmaps but some people think they react to the small amount of fructans.

      Are you a member of the yahoo group 'fructose malabsorption australia'? If not, they are a great resource.
      • 0
    10. gf_soph added a post in a topic Some Recently Confirmed Gluten Free Body Products (Australia)   

      A couple of other emails came through

      Simple products - all range gluten free EXCEPT simple nourishing body wash and simple soothing shower cream which contain hydrolysed wheat gluten.

      Kleenex aloe vera tissues are confirmed safe (I was concerned they might have some sort of unsafe moisturising ingredient, happily not)

      • 0
    11. gf_soph added a post in a topic Gluten Contamination Problem In School Meals?   

      Their attitude makes me so mad for your daughter. There's a very high chance they are poisoning her, and when you try to provide her with safe nutrition they give you a dressing down? The head of the kitchen is willfully ignorant and unhelpful, and the teacher is surprised that your child isn't working at full capacity!

      If they continue with that attitude I would pose a question to them. Is the head of the school willing to make a legally binding oath that everything they feed to your child is gluten free? Knowing that if they are exposing her to gluten, they could be charged with assault? Knowing that you are going to buy a gluten test kit and actually test samples of the food they feed her?

      My guess is that they would run a mile from making a promise of that nature. Until they can guarantee her safety, they can shut up about it not being fair that your child gets her own lunchbox. Especially when I'm sure she'd rather have the flexibility to eat what everyone else does without getting sick.

      Rant over! Sorry about the attitude, I know you have to go about things the right way, but it's hard enough to deal with this sometimes without ignorant authority figures making it worse! Good on you for sticking up for her and trying to get a workable solution
      • 1
    12. gf_soph added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Some Recently Confirmed Gluten Free Body Products (Australia)
      Hi all

      My gluten antibodies have unfortunately risen, so I've started from scratch and gone through everything I use and contacted the manufacturers. Here's an updated list for those that are interested.

      Confirmed as gluten free by company
      * All colgate toothpastes distributed in Australia
      * Reach floss
      • 1 reply
    13. gf_soph added a post in a topic Red Rock Deli Potato Chips Possible Gluten Contamination?   

      I spoke to someone at red rock today, and I was pretty impressed. She was aware of celiac and gluten issues, and was happy to give me a lot of detail about their processes. She said that they fry the chips, then add the salt and add a very fine spray of palm oil to help it stick. They don't have any corn or other additives in their salt, which is a bonus!

      She was very clear that they only make one flavour at a time, and they run a wet wash of the lines between each flavour. They also test the lines for gluten before making the plain chips, and they are bagged away before any other flavours are made. She said that the only thing that could account for flavour differences was changes in potato varieties.

      I was really impressed that they not only wash the lines, but test for gluten every time. I suggested to them that they make that information available on their website, as it's great to know that they are so thorough.

      I think I have pinned down my cc to my morning coffee, so sadly that is now gone. Good to know I have red rock as my emergency backup when out and about!
      • 0
    14. gf_soph added a post in a topic Help With Getting Info On Fructose Malabsoption/intolerance   

      The single best thing is to join the 'fructose malabsoprtion australia' yahoo group. There you can get access to some recent research papers, including ones that involve scientific explanations of the process and research studies.

      The best lists of fructose and fodmap content come from Monash University in Australia, as they are the ones actually testing food. Authors to look out for include Shepderd and Gibson. If there's conflicting info, always go with Monash and Shepherd first, as they are testing and publishing right now. Some of the other information on the net is old and incorrect.

      Also, if you search fructose malabsorption here at you will find posts from others looking in to the topic.
      • 0
    15. gf_soph added a post in a topic Red Rock Deli Potato Chips Possible Gluten Contamination?   

      Yep, just the sea salt ones. I'll ask about corn in the salt if you like, why not kill two birds with one stone. I eat potatoes regularly and I'm sure I don't have a problem with them, so it's really only a possible contamination issue I'm considering here. I also suspect shared machinery, I'll see if they'll give me that much info.

      I do also eat piranha brand plain potato grills which are labelled gluten free and I haven't noticed any taste difference, but they aren't stocked as widely as red rock.

      I will definitely post an update on the chips.
      • 0

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