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kaki_clam added a topic in Celiac Disease - Coping WithGluten Free DepressionI haven't posted on here in a while...I sort of fell off the gluten free wagon. I went to the doctor for severe constipation, got diagnoised with Celiac, spent two years strictly gluten free, still severly constipated, threw in the towel and started eating gluten again....
It has been about a year of gluten binging...and along with it came an episode of severe anexity (still constipated...) went to the doctor, she put me on some meds...anexity handled. My boyfriend said that he notices I am "better" when I am gluten free...he doesn't mean that negitively, he just isn't sure how to discribe it....and I am not entirely sure what he means..but i think he is refering to my attitude, ambition, drive, etc...
anyway, with his love and support, i am now back to a strict gluten free eater. I have been doing this for about 2 weeks now....i am almost through my second week and I am severly depressed. (seems all my emotions are severe...) i haven't left the house in a week. I have no desire to leave the house. I have called out sick from work the last 4 days. I can't say i feel sad..i just don't really feel anything. i have no interest in doing anything. Normally I like to knit, crochet, cook, go to the gym, but this last week, getting up off the couch is a chore. I don't know if this is diet related or not.... I know i need to see my doctor, but then..that would mean leaving the house so i don't know.... I am hoping i will just snap out of this...anyone got any thoughts or ideas?
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kaki_clam added a topic in Other Food Intolerance and Leaky Gut IssuesHelp With Possible Dairy IntoleranceAfter many months of narrowing it down, i think i have dairy issues. Seems like i'm fine if i eat say gluten free bread that has milk in it, but if i were to have ice cream, or lots of cheese i am not.
I have read that you can't test for dairy issues.....does anyone else experience this?
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kaki_clam added a topic in Gluten-Free Diet & Weight IssuesWeight WatchersSo, i am one of those celiac's that gain weight...like it's my job!
I am considering doing weight watchers online, and am wondering if anyone has tried it and if it's been adaptable to the gluten free lifestyle.
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kaki_clam added a topic in Celiac Disease - Coping WithA Bunch Of New Stuff I Need Help With...So, 2.5 yeas after diagnosis, still not feeling better, still presenting to my doctor with the same symptoms, have done the food journal, and had other tests run and no other food allergies, so we'll rule that out. My doctor suggested retesting my Celiac, and had me eat gluten for 2 weeks.... blood test showed positive, so we didn't bother with another endoscopy that my insurance wouldn't have covered. Blood work showed underactive thyroid and high blood sugar; not diabetes high, but 112 was my fasting blood sugar which doc seems to think we should watch. Diabetes does run in my family.
Now, here's the problems
1. I can't stop eating gluten, i keep telling myself i'll stop, but i swear it's like crack to me, it tastes sooo good! I keep saying next week, i'll start next week, i've even gone so far as to say i'll start right now, but i always fail the next day getting chinese take out or a cheeseburger with a delicious real bun! My house is gluten free, the meals i cook are gluten free, but i seek it out and i seek out people who will get it for me...like the girl i go to lunch with, she knows i'm not suppose to have it but she doesn't say anything. And the minute she does, i'll just go back to having lunch alone.
2. Eating gluten makes me feel a little better! Too much gluten and my stomach swells out and i feel terrible sick. (i suffer from severe constipation, so no diarreaha, but gluten vs non gluten free diet has done nothing to change this). But, if i eat a little, like a piece of pizza or a burger with a bun or some fried rice with soy sauce on it, my head clears up, i feel less tired over all (as in it doesn't give me a spike like sugar) and i seem to be missing less work. My doctors says if this is the case it's ok to eat a little....but i gotta wonder..what do you all make out of all of this?
3. Since eating gluten again, my sugar/sweet cravings have all but gone away
4. I am super irritable all the time. This is normal for me BUT, I am usually able to control it. Lately, since the gluten has returned...I am having problems with it.
They thyroid meds just started. I am on a low dose to see what works and i haven't been taking it long enough for it to work.
Any comments, thoughts, suggestions??
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kaki_clam added a topic in Celiac Disease - Coping WithCeliac....or Ulcers....After two years of following a gluten free diet ( to my knowledge, i have not consumed gluten in two years) I am still feeling the same. I sought out a new doctor, he seems to think i don't have Celiac, but that I have ulcers in my small instestine that are being aggrivated by gluten, due to SEVER constipation. He gave me some stuff called SBC to help regulate the bacteria in my intestinal tract and it is working!! the constipation is all but gone. (not to be too graphic, but my constipation was soo bad, i was lucky if i went once every two weeks)
Anywho....he asked me how i was diagnoised with Celiac and I told him my blood test was negitive, but i did have the biopsy and that was positive. I know there are soo many different opinions out there about how to know for sure....
he suggested i eat gluten and be retested. I am a little leary of this, as in the past if i even thought the word gluten, my stomach would cramp up and i would feel ill for two days. I have tried a little here and there over the past month, i had a slice of pizza, and a brownie on two seperate occassions, i didnt' feel sick after either one, but i wondered if it was enough.
Last night, i bit the bullet, i got the 20 piece nugget from McDonald's and shared with my boyfriend...(10 each), i woke up this am feeling the best i have felt in a long time.
I want to try to eat gluten and get retested, but i don't want to over eat gluten and be sick, i don't want to get my hopes up that it's not Celiac.......i am afraid...
so...can you please post thoughts, comments, etc on this new theory of intestinal ulcers and blood test vs. biopsy... any other thoughts or comments on this post...i am looking for some serious help here
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kaki_clam added a topic in Celiac Disease - Coping WithCan A Biopsy Lie?I have been gluten free for two years tomorrow....i still feel like crap...there could be a number of reasons...like for example, i hate my job!!!!!!!! and I like being sick from it.....but, I am not here to complain about work.. I was diagnoised with Celiac via an intestinal biopsy.....the blood test was negitive for the IGA stuff they look for.....it was all normal, but the biopsy was positive...can it be wrong? Is it possible i have another problem instead???
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