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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About mswift

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  1. I see that it has been a few weeks since the last posting to this thread, but this is the first time I've been in the forum for several months. I figured I'd toss in my 2 cents worth... I was 38 when I was diagnosed with Celiac and osteopenia. I corrected my diet for celiac and began taking calcium/magnesium suppliments and Fosamax for the osteopenia. Also, I started a weight training program where I lifted weights 3 days a week. At the end of the first year I had another DEXAscan and it showed minor improvement. The next year I did the same, but changed the type of Calcium I was taking from a calcium carbonate (cheap stuff) to calcium citrate (more expensive). My next DEXAscan showed no better improvement using the "higher quality" calcium. While taking Fosamax for the fist two years I became increasingly unsure of its benefits, and I don't like taking something that changes/effects natural body processes. Also, I have read a lot of documentation that showed the best way to increase bone density was excersise - specifically weight bearing excersises like weight lifting, hiking(walking with a pack of extra weight) and running (your body weight hitting the ground with more force than walking alone). So, this past year I stopped taking Fosamax and added running 3 days a week while continuing my weight training. I take 1000mg of calcium and 600mg of magnesium a day. I take extra Vitamin D during the winter, but not summer as the body will produce its own with enough sunshine. My most recent DEXAscan showed the best improvement yet. Based upon my own experience, I feel the weight bearing excersises are the most important things I have done to help my osteopenia condtion. Good Luck
  2. Well, I found out yesterday that I've been excluded. But the person I spoke with said there was a chance that this weekend's study will be postponed anyway. A reason was not given, but if I had to guess it would be due to a lack of "qualified" candidates.
  3. Hi Laurel, I went to the screening anyway and I'm waiting to hear back whether or not I still qualify. Sounds like they did not do a very good job explaining this to you. The study contract I came back with states the reimbursement is per study visit: $300 travel and $100 hotel with a max of $1200 for the complete study. They could have done a better job giving details about the required dates/times for the study too. A couple of people in my screening group(about 8 people) didn't even end up doing the screening after we were told that the 3rd visit was going to be on Thursday the 15th. Their expenses for the trip are still being paid, but they could have been saved the time(and Parexel's money) if Parexel had told us this on the phone screen before ariving on site. Mike
  4. Hi Laurel, I'm scheduled to participate in the study and was given the impression that all travel related expenses were going to be reimbursed. Based on what you've sayed I'm a little worried myself now. May I ask what they told you that would not be refunded? Thanks, Mike
  5. **As a point of clarification for what I am trying to say in the following paragraphs, when I say "flu" I'm refering to a stomach flu or more specifically a gastrointestinal virus. It was correctly pointed out in some replies below that the flu(influenza) is technically a respiratory illness. I'm just getting over a 30hr bout bad diarrhea. I had only minor cramping mostly right before the need to sit. I did not have any nausea except for once in the middle of the night, but I was able to fight it off without getting sick. I did have the chills at night, but I don't think I had a fever(I did not take my temperature). Thought the chills were likely due to dehydration and lack of energy(not eating much). I had a similar bout 6 months ago, but it lasted less than 24 hrs. I have never had the runs like this in my adult life(I'm 40 now) even before I was diagnosed with Celiac 1.5 yrs ago. I've read that gluten reactions get more severe the longer you have been gluten-free. So, initially one could assume I was "glutened". I traced my diet back 48hrs before the symptoms, and it is possible that I may have consumed a trace amount of gluten. However, I know of instances in the last year where I have accidently consumed more than a trace of gluten and I had no known reaction. So, given this I could think that I had some sort of flu. Pre-diagnosis(with celiac) I had not had any sort of flu in over 25yrs. Might I be more susceptible to the flu due to age an nutrion issues related to celiac? Or, might my gluten reactions be different depending upon certain food combination? I have not been tested for other food allergies, but I'm considering it as it seems most celiacs have at least one other food problem. I've read through most of the topics under the "Coping With..." area looking for clues on how to tell the difference between accidental(or intentional) gluten ingestion or the flu. Judging from the wide range of experiences it seems that it would be difficult to tell the difference. I due consider myself lucky in that if it is a gluten reaction mine it is relatively minor compared to most of the other reactions I've read about. Same goes if it's the flu - most people have it a lot worse than this. I'm not looking for anyone to diagnose me, but rather I'm interested if you can tell for yourself (and how) whether you have the flu or if you're suffering from gluten ingestion? Maybe I should ask can you tell the difference when you're not sure if you've consumed gluten? Thanks in advance for sharing your experiences.
  6. Dry/flakey Skin?

    Hi Steve, I have the same problem. I've always had dry skin, but curiously enough it got considerable worse six months into my gluten-free diet. It's been a year now since the "worsening" point. I've recently started taking flaxseed oil supplements(flaxseed contains lynolenic acid which is supposed to help with dry skin problems), but so far they do not seem to be helping. A year ago I read that dry skin can be a side affect of thyroid trouble. I had myself tested, but my thyroid was working fine. It's been several months since your original post...have you found anything that has helped?
  7. Foot Cramps

    Hi, Potassium is the most common thought when someone mentions muscle cramps. However, I was eating a banana(lots of postasium) every day, but I was having a lot of cramps, mostly at night, before I was diagnosed with celiac disease. After I started taking magnesium (as part of my mineral supplementation for osteopenia), my muscle cramps went away. Check out this web site for more info on magnesium... Mike
  8. This is a timely topic for me. I was diagnosed with Celiac in July 2003. I told my Mom, Dad, and Sister to think about getting checked since it's genetic. We thought it came from my mom's side as she and her mom have some digestive issues (diagnosed with collagnous colitis and IBS), but my Mom ended up negative on blood and endoscopy tests. My Dad wasn't having any of the symptoms I had(which were many), so he wasn't concerned. However, he finally went in to get his soar knees checked this month. They had been bothering him for 2 years, but was avoiding the doc as the last time he had knee issues he had to have cartilage surgery. His doc didn't find anything specific to his knees, so he sent him to a neurologist, who discovered that my Dad had no feeling in his toes. A later blood test showed vitamin B12 deficiency, which can cause nerve problems. My Dad then told the doc that I had been diagnosed with Celiac. A second blood test resulted in a positive for Celiac. He's now scheduling an endoscopy with a GI doc. Also, I had never made this connection, but the last few years I have had problems with my arms and legs getting numb a lot more frequently than they had in the past. It has not gotten worse since going gluten-free, but the problem is still there. Interesting. Thanks, Mike
  9. I had only two dizzy spells(among many other symptoms as well) about two months apart. 6 months later I had an endoscopy that confirmed I had celiac. I have not had a problem since changing my diet over a year ago. Also, I met another confirmed celiac at a gluten free pizza feed and her only symptoms were dizzyness and vertigo. Once she changed her diet her dizzyness went away - I believe she told me she had been gluten-free for over 20 years when I met her. Hope this helps, Mike
  10. Gf Alcohol

    Based on what I've read Richard is correct. Here are some of the source documents I've found... Documents on Which Alcoholic Beverages are Safe? Gluten-Free Alcoholic Beverages Document on disease-treatment.html The gist of these articles is that the Gluten peptide is to large to make it through the distillation process. HOWEVER, some celiacs have still reported problems drinking distilled alcohol from grain based beverages. So, try at you own risk. I have had no problems with Whiskey or Scotch Mike
  11. Hydrolyzed means to undergo the addition of hydrogen (or water), yeast is a fungi, and whey comes from milk. These items by their definition wouldn't contain any wheat; however, cross contamination could still be a potential issue. Protien powders are made in factories that also make protien bars and many of these bars contain wheat. This doesn't necessarily mean that the powder will have wheat in it, but could be a concern. You definately need to be suspect if the ingredient says, "hydrolyzed vegitable protien" as vegitable is too general of a term. This said, I use a whey protien powder myself on a daily basis, although not TJ's, and I have had Anderson's pea soup once with no problems. Hope this helps, Mike
  12. Alcohol

    Here are a couple of sources I've found regarding distilled alcohol.... Documents on Which Alcoholic Beverages are Safe? Gluten-Free Alcoholic Beverages Document on disease-treatment.html the time of this posting the site was down, so you may have to try it at another time. The gist of these articles is that the Gluten peptide is to large to make it through the distillation process. HOWEVER, some celiacs have still reported problems drinking distilled alcohol from grain based beverages. So, try at you own risk. I have had no problems with Whiskey or Scotch.
  13. I have had 5 blood tests in the last year and a half as part of my iron deficient anemia condition diagnosis & follow-up. On each test my white blood cell count has been low - even on my most recent test in September, which was over a year after switching to a Gluten free diet. Does anyone have this problem, or know if it's related to celiac or an associated disease? As far as I know I'm pretty healthy now, however, I thought I was doing ok when I was diagnosed with Celiac. Thanks, Mike