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dmchr4 added a topic in Gluten-Free Recipes - Baking & Cooking TipsTasty Gf WafflesThis is a recipe for wholegrain brown rice waffles at Sue Gregg's site. They are really good, and inexpensive. Everybody likes them here except my husband who doesn't like waffles anyway.
Be sure to blend for about 5 minutes before adding the baking powder, though. Otherwise they'll crumble and stick to the waffle iron. I made them first with the buttermilk and then with the rice milk. They didn't turn out that much different from each other and they both tasted great! I plan on trying out some of the other gluten-free grains. I didn't let it sit overnight, but I plan on trying that later too. They freeze well too.
You can also make pancakes this way too, if you like.
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dmchr4 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsAnti-endomysial TestMy 8 yo daughter had a blood test for celiacs two months ago (but no biopsy), then we went gluten free and she felt better, though she has ups and downs. Well, she was positive on the anti-gliadin, but not the antiendomysial blood test, and the doctor said she probably had celiacs. As I've done more research, I've found that the anti-endomysial blood test is over 99% specific to celiac disease. I thought that meant that if you are negative on that test then you don't have celiacs. Is that true? We actually had the ttG blood test done instead of the antiendomysial, which I guess is about the same thing, just a different viewpoint. When the dr. was first explaining the results, he said that a negative ttG only meant that she didn't have damage to her intestines. But then, when I was talking him to him at the followup appointment last week, I asked him about testing the other family members who didn't have any symptoms. He said not to bother because you can't have celiacs with out symptoms. He said that if you have damage to your intestines then you will have symptoms. So this is very confusing because first he basically says she has no damage to her insides and but she has celiacs, and then he says you can't have celiacs w/o damage and symptoms!
As I posted on the other thread, I think I read somewhere that you can have gluten intolerance w/o being celiacs. I asked the doctor about that, and he said yes, you can there are a myriad of reasons you could be gluten intolerant. And then he left it that.
Kind of frustrating to be getting all these different answers! I just have this sneaking suspicion that she doesn't actually have celiacs and that she has some other problem. I wish it were celiacs, because that would be an answer! I guess now I just need a definitive answer, because what this other doctor told me isn't making me feel too settled!
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dmchr4 added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseFeels Like Ice Going Up BodyWell, 8yo dd has been eating a little bit better the last few days. I've been trying to give her more bland foods and I wonder if she may have been getting some contamination.
But the last three days or so she's told me that she gets a weird feeling that starts in her feet and moves quickly up through her whole body. She says it feels like ice going up her body. Is this a celiac thing too? She's told me this has happened about 3 or 4 times. Could she have a few more weird things happen to her??
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dmchr4 added a topic in Gluten-Free Foods, Products, Shopping & MedicationsAplets & CotletsI bought some Aplets and Cotlets at Costco and was wondering if my gluten-free daughter could eat them. They are SO good. I emaield the company and this is their response:
Gluten is a protein found in some cereal grains. Most often wheat gluten is the source of certain people's digestive problems. Barley, oats, spelt, kamut, triticale and other lesser-known grains can cause problems also. Our candies do not have wheat, wheat by-products or any other of the before-mentioned grains.
Our candies are made with corn starch and corn syrup. Corn also has gluten, but corn gluten has a different molecular structure. Many people that suffer from Celiac disease, or gluten intolerance, can eat our candy, but we suggest a consultation with their physician.
If you are allergic to nuts or soy, please keep in mind that although we follow very strict cleaning procedures to reduce the likelyhood of cross contamination of allergens, this is always a possibility. Not knowing how sensitive you or your recipient are to gluten, soy or nuts, you must weigh the risks.
If you have further questions concerning a specific item, please call our Customer Service department at 1-800-888-5696.
Customer Service Dept.
Liberty Orchards Co., Inc.
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dmchr4 added a topic in Celiac Disease - Related Disorders & ResearchWhat's Your Blood Type?I was reading about eating right for your blood type kind of just for fun (I don't know that I believe it, but my mother does), and I was curious to know if certain blood types had more celiacs or if it's just spread out evenly over the different blood types. Of course this is a very unscientific poll, but an interesting thought. I don't know what my daughter's blood type is, I couldn't find it on her blood results (but I surely will call the dr. and ask!) Mine is AB, but I don't know if I have celiacs!
Blood Type Diet Food Values
The above link is to a database of foods. You click on the food and then it tells you if it's harmful, neutral, or beneficial for your blood type. But, to really match it to you, you have to know if you're a secretor or non-secretor based on the dr.'s mail in test. I thought it was interesting that when I selected Wheat/Gluten flour, he says Type B and Type O should avoid it, and Type A and Type AB non-secretors should avoid it. Sure doesn't leave too many people left to eat wheat/gluten flour!
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dmchr4 added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease8 Yo Refuses To EatI did search for this topic on the boards, and I know it's been discussed, but usually about a toddler/preschooler. I think this may be different in that it's not a will struggle.
My 8 yo daughter has been gluten-free for about 3 weeks now. The first two weeks, she still had her regular stomachaches, diarrhea, headaches. Her hives went away, and her stomachaches and headaches weren't as bad as before. Her energy level shot up, I'd never seen her with so much energy. Well, at the start of the third week, she got a slight cough/cold. She was complaining that her chest and throat hurt too, so I took her into the doctor. Her lungs were fine and she had no strep, just a cold. Well, she got over the cold within a few days, but for the last five days, she has been sleeping in until 10 a.m. (if I let her, because I know she's not feeling good), refuses to eat breakfast or anything else until around 2 in the afternoon. She says it's because her stomach hurts so bad and it doesn't want anything in it. She describes her stomach as feeling like someone punched her really hard, and yet she also says it feels like a balloon (bloated.) If I let her, she'd lay around all day reading or moping or saying she's bored. (I homeschool her, if you're wondering why she's not in school.)
The thing is that as soon as she decides to eat, she usually feels better. I let her eat whatever she feels like within reason on her list of foods (I wrote a long list of easy to make breakfast/lunch/dinner ideas) In fact, I used this method before she was diagnosed as well because she's such a picky eater, so this is not something new - just the foods on the list have changed slightly. As an example, today I woke her up at 10 a.m. and told her to eat breakfast and get ready for church at 11. She was mad as a hornet and refused to eat anything. She refused to even go to church. I told her that even though her tummy hurt, she still had to go - in her pjs or not. I told her she could decide to be happy and get dressed and go, or she could be mad (as long as she didn't yell or hurt people) and stay in her PJS but she was going either way. The last two weeks I've stayed home with her because she didn't feel good, but I know that when I make her get busy, she seems much better.
She decided to get dressed and come with us and she was trying to be happy. She didn't eat breakfast, but I brought some gluten-free toast and an apple. She ate it as soon as we got there. Since our church doesn't get out until 2, I knew she'd be really dragging if she didn't have anything to eat. She hasn't complained about her tummy hurting since before church, and now she's cutting out snowflakes with her little brother.
So, is she just messing with me? Is this a psychological problem? Is this common after going on a gluten-free diet? Maybe her tummy really does hurt in the morning. Before being diagnosed, she often was nauseated in the morning and didn't want to eat either.
What do I do? Make her eat? Wait it out for a few weeks because she won't let herself starve (even though I have my doubts about that?) Let her rest? Make her work on school?
Of course she also gets very angry that she can't eat things like the christmas cookies at grandma's house or her favorite pizza. And I try to be empathetic and yet not allow her to to indulge in too much self-pity. I feel like a big meanie already!
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