Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

ValentinoMom

Members
  • Content count

    3
  • Joined

  • Last visited

Community Reputation

0 Neutral

About ValentinoMom

  • Rank
    New Community Member
  1. Thank you so much. I know I probably sound crazy right now, and if I was talking to one of my own patients, I would be the voice of reason. Right now, though, it's just all so daunting as a mom. My kids actually like a lot of the gluten free foods out there, and my 4 year old is pretty mellow about the whole thing--she just wants to feel better. I think my 6 year old has felt unwell for so long--basically for 6 years--that a part of him is afraid there is something really WRONG with him. And...he's sad he can't have his favorite Raisin Bran Crunch! Wait until I break it to him that McDonald's is not an option!
  2. Thanks for the advice. In my exhausted stupor this morning, I failed to mention that celiac is on my radar for all 3 of us for some other glaring reasons. My husband's Italian family has generations of various "sensitive stomachs," "irritable bowels" and ulcerative colitis on both maternal and paternal sides. My family has autoimmune problems. My brother has psoriatic arthritis (and has suffered from digestive distress his entire life), my 13 year old niece has suffered from bloating and belly pain since infancy, and my mother suffered for decades with GI problems before being diagnosed 5 years ago with Crohn's. I've had an ongoing array of illnesses and symptoms for many years, which at first blush could appear unrelated, but I knew there was something bigger going on. My family doc agreed last year and referred me to a dermatologist and a rheumatologist. By the time I got to the derm, most of my rashes had cleared up thanks to some hydrocortisone, so I was brushed off as a hypochondriac nurse. By the time I got into the rheumatologist, my most severe symptoms had eased up tremendously, which makes diagnosis that much more difficult. That's how it happens for me: in flares. She suspected Lupus, and I had a fairly comprehensive autoimmune panel run. It showed that there is indeed something autoimmune going on, but the results weren't conclusive. She wants me to keep monitoring all of these crazy symptoms and get to her when I feel really sick, so she can get a clear picture 1st hand of what's happening. So, as you can see, this whole gluten intolerance question hasn't really come out of the blue. I guess I just need to hear from some real life gluten experts and a good kick in the butt to get to the doctor. Rheumatologist? Gastroenterologist?
  3. Where to begin? I just took myself and my 4 and 6 y.o.s off gluten. My 6 y.o. has had various issues since infancy that raised red flags, but our doctors have never been overly concerned. One pediatrician brought up gluten intolerance as a possible cause last year, and I took him off gluten. That didn't last too long, though, since Grandma took my kids out for pancakes, someone else gave them Dunkin Donuts, yadda yadda yadda. Long story short, I got lazy and went back to gluten--which may have been a blessing in disguise, since a few months ago I started feeling quite sick every day, and I noticed sudden changes in my 4 y.o. daughter's behavior as well as drastic changes in her digestion/appetite. For a while I just thought we'd picked up a bug, but then I realized that her always-healthy-clean B.M.s had turned into my son's sticky, smelly mess. Gross, I know. First, do you recommend that I get tested first? I'm trying to think of anything I can do that will avoid needle sticks for my kids. Does Enterolab take insurance? I'll spend the $200 if it's accurate and worth it, but if insurance covers it--even better. Second, I need advice about how to explain to my kids about possibly not having gluten for the rest of their lives. My sweet son burst into tears last night at dinner time. He asked me when he can have gluten again, and I told him that IF gluten winds up being the problem--which we haven't confirmed--that we won't have gluten again...at all. I feel terrible. I couldn't sleep last night, and I'm on the verge of tears. I'm a nurse, and I felt that talking openly and honestly about the possibilities is a good thing. My husband thinks I gave too much info too soon and in an insensitive way. Any advice? I'm just so sad for my kids right now.