Teeny replied to Finlay's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsFinlay - I definately agree with mommida! Enterolabs is the way to go. That is how I finally got results after 15 years. I am severe anemic, but that, in my case, actually hindered my diagnosis becuase the first doctor (out of four) that I saw was too hung up on that to look at anything else. He kept wanting to label it "female problems" ... dumped him and moved on. Next guy thought I had IBS and put me on a high-fiber, gluten laden diet that really reaked havoc on my body... dumped him and moved on. The third doc (my current doc who is awesome) sent me to enterolabs were I finally got results. My son is also celiac (and has autism) and my duaghters results are not in yet. Keep pushing until you get results and feel better.
Teeny replied to onamission's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsOnamission - It took me 15 years and 4 doctors to finally find out what was making me so ill, and yet, I still struggle everyday with NOT eating gluten (to me it was the only food group!). However, knowing the the long term affects that the disease can have (and even the symptoms experienced now) is enough to help me say no. Like everyone else on the boards, I had different symptoms. For me, there are a lot of the bowel issues present, weight GAIN (of course ) and multiple absorption issues. The worst being severe anemia and having had multiple blood transfusions and iron infusions to keep me going and help sustain my pregnancies. The other thing that I wanted to mention is that my son is also a celiac and has been gluten free for 4 years. When we first put him on the diet, however, he had at that point self-limited his diet to gluten containing foods. This caused a very serious onset of withdrawl symptoms when they were removed. I spoke with our doc (who is awesome) and he said that there are Celiacs that do actually form an addiction to the very thing that makes them ill. He said that they act like an opiate would. Luckily the reaction only lasted for the first couple of months and now that his diet has been straightened out he is infinately better. The important thing is to keep looking for your answer, don't give up, and if you have to, switch doc's until you find one that will listen.