This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Well, they deglutenize it down to 6 ppm (way lower than the EU standards for gluten free) but I imagine other fragments of barley other than the gluten might affect someone allergic to barley.
I tried it last week and was so excited. No problem whatsoever (and I get a little bloated from sorghum beer- I think I have a bit of a sorghum intolerance because it happens from every brand). If I accidentally have wheat I'm in excruciating pain in the fetal position and 6 parts per million didn't affect me that way at all, FWIW. YMMV and all that.
Just wanted to add that my mom dropped by this article last weekend. She found it in a magazine at the hair salon. It *really* irks me. There was a whole "myths about allergies" in there too that trivialized food intolerances just because they weren't anaphalactic or something.
It particularly irks me that my mom gave me the annoying article too! Yay for mainstream media. Not!
FYI, my son wet the bed each time he has gluten, although he tested negative via blood tests and my daughter and I were positive though Enterolab. I think it's time to be even stricter with my son's diet. I thought it might be related to the gluten somehow. thanks. My daughter's constipation is GONE now with a gluten and cow dairy free diet.
Oh BeeFree, I just saw this. I had to go gluten free 100% a year ago after positive results, and my daughter a month ago after *her* positive results. At first my husband didn't take me seriously but he's getting better educated and keeping junk out of the kitchen now that it's my daughter too. However, for the past year, especially before my daughter's tests, he bought a multipack of whole wheat pasta! from Costco, giant boxes of Triscuits and most recently a giant box of wheat thins. Are there no gluten free snacks? The most annoying was Costco sized Shredded Wheat. Talk about crumbs. I got really pissed I must say and forbid him from making bread in the breadmaker with flour or cooking pasta in my pots. He has a dedicated wheat pan, but has decided it's mostly too much work and eats gluten free at home. He *has* to have his bags of supermarket bagels in the car for the ride to work though. I think he's kinda addicted to wheat because it's either wheat snacks or beer. Grr...
I think you need to take charge of your kitchen! Give them a pan or two and cook gluten free for them. Let them have a gluten snack in their backpack or work bag if they must. Forbid flour or crumbs at the table. They can eat it when they're at work/school if it's so darn important! Try showing them studies about antibodies not going down from cross contamination and how continued exposure increases risk of lymphomas and other cancers. Hang in there!
The people who do the Gluten Doctors blog have a medical center in Sunnyvale. If I still lived there I'd definitely go there... http://www.healthnowmedical.com Good luck! Gluten isn't something to mess around with if you were diagnosed. You almost certainly have mineral deficiencies from malabsorption and maybe intestinal or neurological damage...
I believe mine expressed itself (noticeably, anyways) after my last pregnancy and the birth, being a c-section surgery, and moving out of state when he was just turning one year old, while the whole family had the flu. My thyroid and adrenals crashed pretty hard too. yikes. That was 3 years ago.
I got the IgG food and environmental allergy testing blood panel a few months ago from my M.D. It all came back negative! I was sure either wheat or barley would show up since they make me bloat so much. I guess I'll need to pursue other testing for celiac/gluten intolerance.