Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About Harley9999

  • Rank
    New Community Member
  1. has not set their status

  2. I am currently waiting for my blood results to be diagnosed with celiac disease (or not). A little history about me have suffered with "ibs" since I was 18 I'm now 25, I have recently been diagnosed with an underactive thyroid but my main problem is severe knee/fingerpain. I hurt my knee 6 weeks ago and doctor said it was a frayed tendonm and shouls be better in 3 weeks, it wasn't and now my other knee is really painful, they hurt that bad on a morning that I can bearly walk. My question is could this severe knee pain be linked with celiac disease?? Thanks
  3. Emotional Symptoms

    [Does anyone else find that they have more mental/emotional/behavioral symptoms than physical ones when they get into gluten?? Oh hell yes!! I didnt figure this out for a while.. but everytime I got gluten my whole mood would totally change and I would feel like crapola. I was beginning to think I was crazy too until it kept happening and I put two and two together. I get very anxious and depressed. It makes the whole getting glutened experience even more devastating. Mine usually lasts a day or two and my only saving grace is knowing it will pass soon. You are so not alone!!! I bet there are alot of others that go through the same stuff. Hang in there ~H
  4. I Am Soooooo Frustrated

    Thanks for the advice. You could possibly be right about the soy and or dairy. When you had reactions to these things, was it the same as when you had been glutened? It feels very similiar to me. ~H
  5. I Am Soooooo Frustrated

    I am now strongly considering that it is another food allergy as well. I will research more and hopefully get some answers. Thanks ~H
  6. I Am Soooooo Frustrated

    Thanks for the advice. Congrats on 6 month gluten-free. Its hard. Yes I do cook but I work full time and have a household and two kids so sometimes time is the issue. I realize everyone has a busy life and its time management. I am the only Celiac in the house and everyone else eats everything. My husband is really supportive but he will not go gluten free and I cant say as I blame him. When I do make meals from scratch... I always feel better. Guess I'm just frustrated because we all used to go out to eat ALL the time and enjoyed it... but times have changed. Thanks again for the support ~H
  7. Hi Everyone Sorry ahead of time for this but I cant take this anymore. I was diagnosed with Celiacs in October 2009. It was overwhelming at first and seemed like the worse thing in the world. Food used to be my life. I loved to eat anything and everything. I slowly became used to being so different from everyone else.. or at least tried. I dove into my new way of living and really tried hard. Now here I am 9 -10 months later and I STILL seem to get glutened...alot. What is so frustrating is that I try so hard. I NEVER intentionally cheat and eat things I know I cant. I eat alot more fruits and veges (more than I ever had). Yet I STILL keep getting glutened and I am about at the end of my rope. I wanna cry. I wanna scream that its not fair. I want my old life back! I am soo sick of reading labels, not being able to eat out and am just tired of being the "freak" in the family. I feel like there isnt anything safe. I tried to stay away from maltodexterin...but then I hear it is safe. Must be not for me because I get glutened from it. I had some gluten free pizza the other night and was so happy until the next day when I almost didnt survive the drive into work. I had to RUN to the bathroom. (sorry for TMI). I really want to say forget this and eat what I want but I know that i would pay so dearly and would not be able to function once the joint pain, headaches, muscle cramps and fatique kicked in! This is just a CURSE!!!!! I dont want this life anymore!!! I'm so sorry to rant on. I am usually a person that handles obstacles and looks on the positive side but I just cant seem to deal with this anymore!!! Thanks for listening. I know there are people who can relate to this and sorry again to sound like a big baby
  8. Gluten Reactions

    I have many of the same reactions named here and trouble breathing is one of them... but usually after I have been CC'd or glutened a few times within a short period of time.
  9. Rant On What Gluten Free Really Means...

    So what you are saying is Carmel Color IS safe to eat from a Celiac perspective? I thought it was a taboo and I ate something twice and got sick and the only culprit was carmel..
  10. Rant On What Gluten Free Really Means...

    [ So what is gluten free ????? Is this trending ?!? Places seem to throw that on the menu or have a gluten-free menu but it doesn't mean much. I saw crackers the other day that had gluten free on the label...and made in a factory that processes wheat products written in the fine print. Ugh. I have found that some places label things gluten free meaning they contain no wheat but there are lots of other things that they can and do use. Carmel color bothers me terrible and if you read labels that is in alot of things.... I think before someone slaps a gluten-free label on something.... they should know all the facts!! Hope you are feeling better soon ~H
  11. Thanks for making me feel better. I thought maybe I was imagining it when my joints starting aching and I started having difficulty breathing... It just feels like an anchor is sitting on my lungs. Great job with 4 months gluten-free!! I am almost a week straight without being glutened and I am proud of that..LOL.... I also started keeping a food journal this past week.. That seems to help ~H
  12. Thanks for the advice. I am actually 10 months into this madness. I was diagnosed in October of 09. I can stick to the basics and thats not the bad part... The bad part is even attempting to eat out in a restaurant. Thats where I always end up eating something I shouldnt (unintentionally). I am much more knowledgable than when I first started. It's been almost a week without getting glutened. I guess thats a start at least. ~H
  13. Thanks for the info. Deep down I know you are right. I am mourning the whole celiac thing big time. I am slowly.. and I mean slowly coming to the realization that I will never have a relationship with food as I once did. I now simply try to make it through the day without eating something taboo. My husband is super supportive although he wouldnt be caught dead eating any of "my special foods"...LOL... I dont blame him. It has gotten somewhat easier but I still struggle everyday. What does help is this place and knowing others are struggling just like me. May everyone have a peaceful gluten-free evening... ~H
  14. I can really relate to the "just giving in"... I keep saying to myself.. once you have been gluten-free for one month straight (not accidently getting glutened)... then I will indulge in a sub or pizza... but I will be darned if I can even go a full month before I end up eating something hidden deep inside a piece of innocent looking food! It is soooo frustrating and I get so fed up..... but there really isnt an escape from it. It's the cards we were dealt. H~
  15. I have found that since going gluten free that now when I do eat something (even a very small something) the side effects are horrible!! The worse thing is once you have been glutened... just knowing that the next few days will be pure torture. It is a very sucky thing indeed! H~