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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Newbyliz

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  1. I had my second endoscopy on the first day of dec. and decided I would go gluten free regardless of what was seen. I have been through a year and a half of tests and found out that I am in the high risk genetic group 2 strands of the HLA-DQ2 plus lots of inflammation throughout digestive tract and vitamin b12 and d deficiencies. I can not express how much better I feel. It's so strange to notice the little things that you had forgotten were normal, like loud stomach gurgling and cramps, bloating, 8-12 loose stools a day which have gone down to 1-2 firm stools a day and the bloating and stomach rumbling are so much better since I went gluten free. I still have had a few issues since I started gluten free but nothing compared to before. I have made it through the holidays and learned in such a short time how to cook/bake things that are actually really good and even better to me since I feel so much better. But tonight, Christmas, I have had a little bit of stomach upset, gas and gurgling and the only thing I can contribute this to is the green bean casserole that was made with campbell's cream of mushroom soup. Does anyone know if this contains gluten? I have purchased the progresso brand which says it gluten free and thought maybe the campbell's was the same but am not sure. MERRY CHRISTMAS AND THANK YOU FOR ANY RESPONSES!!!
  2. Thank you for your replies. You're right the diet change is relatively easy as long as you are committed to it and if it helps it will be wonderful. I have to let go of that feeling that I have to have more than just a positive gene test to be validated. I have stocked my pantry with things so that baking this season won't be hard and am really hoping and PRAYING that this helps me regardless of the results I get from the biopsies. I am so glad this site is here for all the support you get.
  3. I just had my second endoscopy yesterday, Tues. Dec. 1st. The doctor said everything looked okay but that I could certainly try a gluten free diet to see if that helps since all of my testing is over. Part of me wonders if I should wait to see what the biopsies say but the other part of me is really ready to give the gluten free diet a whirl. My genetic testing stated I was positive for HLA-DQ2 and a subset of that gene(sorry I don't have the exact wording of the results-this was given to me by my gastro's nurse) which is the only evidence so far that celiac may be playing a part in how I feel. I have tried just about everything else and really am ready to feel better. Has anyone felt that having the genes alone is enough to make them want to at least try a gluten free lifestyle? I have a follow-up with my gastro in 8 weeks which I feel is a good amount of time to give this diet a try. It is sort of strange to know that I posses 2 copies of the HLA-DQ2 gene and that it is lurking in the background. I have to find some peace that even if the biopsies come back normal it may be the best thing for my body to elimate gluten. Any feedback would be greatly appreciated.
  4. Hla-dq2

    I don't have any links for you but I also am positive for HLA-DQ2 plus a subset of that gene and am scheduled for a second upper endoscopy on Tues. Dec. 1st. I would love to know exactly what that means too. My gastroenterologist said that the combination that I have puts me in the second highest risk group and I am not really sure what that means. My first endo. only showed inflammation but that gastroenterologist didn't take any biopsies from the duodenal bulb where he saw lots of inflammation so my current gastro. really feels he needs to see what is going on in there. If I find any links I will be more than happy to share them with you. I am sorry you also have the genetic markers that I do but I am glad that there is someone else out there searching for answers to the best health possible.
  5. I can't wait to get the second endoscopy over so that I can see if I feel better on the gluten free diet. Did you say or not if you had a positive biopsy or bloodwork? Thanks!
  6. I see that you went gluten free the beginning of October. Do you feel any better? Thank you so much for your reply.
  7. I am currently scheduled for my second upper endoscopy in a week bcause my gastro. said that I tested positive for HLA-DQ2 plus a subset of that gene and he feels that, that alone puts me in a moderate risk group for developing celiac since my symptoms are pretty bad. I get confused about the genetic testing because I know it doesn't mean you will get celiac it just means you have the genetic predisposition needed to develop it. Does having the HLA-DQ2 plus a subset of it really put me at a higher risk? I do have to say that I have been trying to eat gluten containing foods at each meal for the past week and I am not feeling too well. My stools are really loose and I am really foggy, it seems so strange to be conciously eating something that potentially is harmful to you but I know its necessary for the testing. I am a little skeptical going through another upper endoscopy since the first didn't show anything but I guess I just have to trust my new doc and pray that he sees something that will explain how rotten I feel. I am so tired I want to know why I am deficient in vitamin b12 and d and I want to get to a point where this isn't something that haunts me each day. Even if the endoscopy comes back like the first and just shows inflammation throughout my whole digestive tract I am definitely going to try a gluten free diet. Sorry to be rambling and fussing I just am so thankful that this forum is here and that there are people who understand completely what you are going through in trying to, for once an for all, figure out what is wrong.
  8. Thank you so much for your reply. I have to say that I have been making sure to eat gluten containing foods at each meal and surprise, surprise I am not feeling to great. My stools have definitely increased and the gas and stomach pain also, heartburn seems to be getting worse when I was never one to suffer with it except when I was pregnant with my children. Is heartburn sometimes an indirect symptom of celiac? I just want the second upper endoscopy to be over and to HOPEFULLY
  9. I'm new to the forum and am not sure if I posted my original question correctly. I have had negative blood tests but came back with positive for DQ2 and a subset of that gene putting me in a moderate risk category since I have many symptoms associated with celiac such as: 3-8 loose stools per day, vitamin b12 and d deficiencies, bloating, gas, stomach pain, severe osteopenia in my back(I just turned 40), inflammation in my entire digestive tract from my esophagus all the way down. I had an upper endoscopy which only showed inflammation(esophagitis, gastritis and duodenitis) and a colonoscopy that also just showed inflammation. I have peripheral neuropathy in my right hand and am constantly fatigued and have joint pain. I am scheduled for a 2nd upper endoscopy in 2 weeks because my new gastroenterologist said that there were no biopsises taken from the first part of the duodenum only the 2nd. The testing has been going on for 18 months and my symptoms have been around for about 7 years. Can you have early stage celiac with just inflammation and negative bloodwork?
  10. I have been trying for the past 18 months to figure out what has caused all of my gastrointestinal issues(diarrhea, stomach pain and gurlging, and bloating, not to mention others) as well as my joint pains and fatigue for the past 7 years. The testing I have done so far has shown vitamin b12 and d deficiencies, delayed small bowel transit time, esophagitis, gastritis, duodenintis, severe osteopenia in my spine(I just turned 40) and low stool pH. The blood tests and biopsies have been negative for celiac but the genetic testing came back positive for HLA-DQ2 and a subset of that gene. I have finally found a gastroenterologist(he's my 3rd) who has informed me that I need to have a 2nd upper endoscopy done by him so that he can see for himself what is going on. He also stated that I may be suffering from an early mild "under the radar" case of celiac. He stated that duodenitis to one doctor may very well be celiac to another and that my first gastroenterologist neglected to take biospies from the duodenal bulb where inflammation was noted. Has anyone out there been through circumstances like these? I am finally happy with the doctor I have now and would just like some input from other people who have gone through similar situations. Thank you for your time in reading this post.
  11. Confusing Diagnosis Process

    I have been aggresively trying to figure out what has been wrong with me for the past 18 months. I am 40 years old and have dealt with loose stools, fatigue and all over joint pain for 7 years. The results I have received so far are: vitamin d deficiency, vitamin b12 deficiency, esophagitis, chronic gastritis, duodenitis, delayed small bowel transit time, negative blood tests for celiac, postive gene tests for celiac, and the biopsies that were performed were negative BUT they were only taken from the 2nd portion of the duodenum and not the duodenal bulb where the inflammtion was noted. I have now been told by my 3rd gastroenterologist that he would like to do another upper endoscopy so that he can carefully inspect every inch and make sure he takes sufficient biopsies in ALL locations. My question is can you have negative blood tests, negative original biopsies with positive gene tests along with active symptoms and celiac be the problem? Going gluten free is a huge endeavor and I feel that I need to be completely sure before I go this route. I would really appreciate any input to this post. This whole process has been quite exhausting and frustrating.