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Jeepster added a topic in Other Food Intolerance and Leaky Gut IssuesWhy Does My Tongue Sizzle From Dairy?I've noticed over the last few years as my celiac disease progressed to the point of being diagnosed from the increasing symptoms, I've had more and more problems with dairy. The most obvious symptom is a stomach ache, and often loose BM's, but now my tongue actually feels like it is sizzling, or mildly burning, when I eat it. Milk and ice cream are more noticeable, but hard cheeses can cause this too. What is happening in physiological terms?
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Jeepster added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Morning Sickness All My LifeI've been subject to morning sickness all my life. As a child I would frequently throw up before going to school, which my parents thought was just me being a little "nervous" about going. It was never considered that I was reacting to the bowl of cereal and milk I ate because I was celiac! Anyway, fast forward twenty-some years and I finally get the diagnosis last year. Since going gluten-free (and enduring a terrible DH rash for several months as a result) I now have healthy BM's and my energy level is much improved. I'm still working on what foods bother me along with the gluten items, but one thing that is still puzzling is why I wake up nauseous each and every morning. I would have thought that after discovering I was celiac and I got on the gluten-free diet this would have resolved itself, but it hasn't. It makes for some very difficult breakfasts as I prepare for work - most days I leave the house on the edge of throwing up and to sit through early meetings is absolutely unbearable.
I have tried all different types of meals, from simple fruit which only lasts about twenty minutes before I'm starving, to eggs which usually make me dizzy, to leftover chicken and vegetables, different types of gluten-free breakfast cereals with and without milk. It doesn't seem to be as much about the type of food I'm eating as the time I'm eating it. On the weekends I usually will just drink water until lunchtime if possible. By lunch I'm usually fine and in fact I can eat all sorts of foods later in the day without any reaction that would otherwise nail me at breakfast. Any idea what this might be about? Or what to do about it?
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Jeepster added a topic in Gluten-Free Recipes - Baking & Cooking TipsLooking For A Real Good gluten-free Pound Cake RecipeI crave just about all the gluten foods I can't have (naturally) but I'm especially haunted by my favorite desert - a buttery smooth slice of pound cake. Can anyone supply a real good pound cake recipe using a gluten-free flour mix I can try? It just has to be gluten-free - I can have dairy, yeast, etc.
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Jeepster added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Bowel Movements Worsening After 2 Weeks gluten-freeThe last year has been frustrating and confusing to say the least. Three different doctors gave me three different dx's and advice based on those dx's (two of them said I can eat gluten, just "not too much"). So after getting my gene test back right before the Holidays showing I have HLA-DQ2 to go along with my high level of anti-gliadin antibodies, I've decided to try a gluten-free diet again. After two weeks my usual symptoms are the same - sometimes dizzy, brain fog episodes, forgetfulness, hot then cold hands, hungry all the time, headaches after I eat, terrible dry eyes, tired all the time... but my bowel movements have worsened. My diet is very clean. No coffee, sodas, candy, sugar. Lots of fresh fruits, salad and veggie with my main dinner including plain chicken or meat. So what is going on? Why would my diarrhea be getting worse if the gluten was removed?
Oh yeah, and I'm casein-free too. Dairy gives me wicked stomach aches.
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Jeepster added a topic in Celiac Disease - Coping WithMember Poll - Who Abstains From Other Foods Besides Gluten?Just curious, but knowing that many with celiac disease have problems with other types of foods such as dairy, corn, soy, (etc) - what other foods are you "free" of in your diet, and how did this choice come about? Are you as cautious about the accidental intake of these other foods as much as gluten?
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Jeepster added a topic in Gluten-Free RestaurantsFamous Dave's BarbequeFamous Dave's BBQ in central NJ is a favorite of my in-laws (and therefore my wife). They do not offer any allergen info on their website and since being diagnosed last year I've managed to steer them to safer alternatives, but I think my time is running out. Anyone have positive or negative experiences to share regarding this restaurant before a social obligation puts me back there?
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Jeepster added a topic in Celiac Disease - Coping WithAnyone Allergic To Tea?So much of what we celiac disease patients deal with is related to grass/grain species, I was wondering if anyone here on the forum was allergic to drinking tea? Does the tea that we drink have any protein in it?
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Jeepster added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHow Do Igg And Iga Antibodies Work?What is the actual process that takes place to cause the antibodies to attack the intestine, and how do they accomplish this? Are there other antibodies in the body that work similarly on other foods (and cause damage to other body parts)? Are there other blood tests like the IgG and IgA antibody tests that can find other autoimmune system reactions to food?
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Jeepster added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsDoes Gluten Intolerant Mean Cd Will Kick In?Here's the simple question and I'm sure the answer won't be as easy:
My anti-gliadin blood tests came back highly positive but my intestinal biopsy was negative. My GI doctor said they were false positives and not to worry about going gluten-free, just take Immodium as needed. (Unfortunately that would have been everyday!) He blamed it on stress. I researched the issue for myself through this board and other websites and believe I am gluten-intolerant.
What I need to know is for a gluten-intolerant person, if they cheat now and again will celiac disease kick in at some point? How much cheating is too much cheating?
On a positive note I have been able to stop my diarrhea altogether just by limiting my intake of gluten and other foods I am mildly allergic to. But is this enough?
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Jeepster added a topic in Celiac Disease - Related Disorders & ResearchWhy Allergies To Eggs But Not Chicken Meat?I've tested positive to egg allergy (both whites and yolks) and I really feel dizzy if I eat anything with egg in it, but I'm fine with chicken meat. Why is this? What is going on chemically between the two that makes my body react differently to them?
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Jeepster added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Ocular Surface DisintegrationAfter years of being poked, prodded, and generally told by my doctors that my physical ailments were just stress-related, I was finally diagnosed with celiac disease nine months ago. It has been difficult emotionally and I have been struggling with my diet during this time so that my symptoms have not improved much except that I have gotten control over my diarrhea. A somewhat annoying secondary symptom has been constant burning pain in my eyes since I was a child. After seeing a highly recommended opthamologist, he found that I have "Ocular Surface Disintegration" of my eyes, to the point where I now have cornea involvement. He put me on Restasis. He thought there could be a correlation between my autoimmune disease and the problem with my eyes but wouldn't go as far as saying that if I got my celiac disease in order my eyes would heal. I would really appreciate any info on similar experiences or advice that can be shed on this particular symptom. Obviously my biggest fear is in going blind.
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