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kgeiger

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About kgeiger

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  1. Anyone with unresolved sores in their scalp should be very concerned. I have noticed through posts on various sites that it tends to be women who have this problem more often than men. I have decided this is because we generally keep our hair longer. I have longish, baby fine hair and lots of it, by the way. Read on. . . Here is my story: Rash started in early 2000; wasn't diagnosed with DH until late 2002. Went gluten-free immediately. Started on Dapsone in May of 2004. Once the Dapsone started to relieve my rash, I found out something I suppose interesting but ultimately quite horrific had been going on under my 'scalp'. My scalp was heavily involved with the sores. As others report, they never seemed to go away. My hair still looked fairly normal but did seem a bit thinner to me. Now I know the reason for this! The sores, even when they do subside, don't actually heal or at least not like normal skin. Hair (new hair) doesn't seem to be able to push through them and ended up in my case misdirected and hideously ingrown, to the point where I had noticeable lumps behind my ears. Several doctors told me this was my lymph nodes reacting to inflammation. Hah! It was HAIR which had eventually pushed underneath the skin and down. It has been a nightmare getting the hair out, and as I found in the past several months I had a 'second' layer of hair growing underneath, it was a twisted tangled calcified mess. So anyone with scalp problems that don't seem to go away - go get checked out. But don't expect the doctors to take you seriously. If you would like to e-mail me or get more information I would be happy to talk to you, I hope this is permitted but you can e-mail me directly at geiger@lawyer.com
  2. Anyone with unresolved sores in their scalp should be very concerned. I have noticed through posts on various sites that it tends to be women who have this problem more often than men. I have decided this is because we generally keep our hair longer. I have longish, baby fine hair and lots of it, by the way. Read on. . . Here is my story: Rash started in early 2000; wasn't diagnosed with DH until late 2002. Went gluten-free immediately. Started on Dapsone in May of 2004. Once the Dapsone started to relieve my rash, I found out something I suppose interesting but ultimately quite horrific had been going on under my 'scalp'. My scalp was heavily involved with the sores. As others report, they never seemed to go away. My hair still looked fairly normal but did seem a bit thinner to me. Now I know the reason for this! The sores, even when they do subside, don't actually heal or at least not like normal skin. Hair (new hair) doesn't seem to be able to push through them and ended up in my case misdirected and hideously ingrown, to the point where I had noticeable lumps behind my ears. Several doctors told me this was my lymph nodes reacting to inflammation. Hah! It was HAIR which had eventually pushed underneath the skin and down. It has been a nightmare getting the hair out, and as I found in the past several months I had a 'second' layer of hair growing underneath, it was a twisted tangled calcified mess. So anyone with scalp problems that don't seem to go away - go get checked out. But don't expect the doctors to take you seriously. If you would like to e-mail me or get more information I would be happy to talk to you, I hope this is permitted but you can e-mail me directly at geiger@lawyer.com