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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Hillary

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  • Location North Bay, Canada
  1. I had severe pain in my right leg and muscle twitches all over my body. I also had numbness and tingling in my face, hands and feet. I had balance problems and weakness where I could barely walk or stand in the shower. I was tested for MS and ALS, but all came back negative. I still don't have a diagnosis but have been gluten free for 4 months and all of the above symptoms have improved or gone away. It did get worse before it got better and I thought I was going crazy, but compared to a year ago things are great. Hang in there and read a lot here. This forum has helped me so much. Thank you everyone, Hillary
  2. I Am Really Struggling

    Thank you. I have had the SED and RA and Lupus test and everything is normal. I have had an MRI of brain and spine and all normal. Not even an elevated white blood cell count. Six months ago I had numbness, musclle weakness, vertigo, hair falling out, white tongue with sores, sore eyes, headache, night shin pain. A month ago I started with D and cramps. Since going gluten free the swelling in my fingers and abdomen has gone down as well as my tongue and neck. My skin and hair felt immediatly softer and the D. and brain fog stopped. Through all of this I didn't have fatigue until last week. I started an iron supplement and that has improved. I only started Vit. D 4 days ago and it was only 1000 mg. I have upped it to 3000. Yes I really have to make myself eat. I am doing small meals and trying not to do a lot of processed stuff. Thank you for all of your support. I mostly had neuro symptoms and I guess they will take a while to go away, not to mention to get my thyroid working optimally again. Hearing your stories really helps. It is like a battle going on inside your body. I thought going through hyperthyroidism was tough, but I think this is worse.
  3. I Am Really Struggling

    Thank you. This forum has been a godsend and I have learned so much. I had RAI in 2002 and over the past year my tsh has been going up. It makes sense not to increase the dose because then you will go the other way. It is so tough to regulate thyroid meds when there is no underlying problem, never mind an absorption problem. Being hyper is not any better than hypo, but I swear sometimes you can swing back and forth. Hillary
  4. I Am Really Struggling

    We are not getting much sun here in Northern Ontario and I have to push myself to walk to the end of my street. My doc says he cannot diagnose celiac based on the bloodwork and says my calcium was fine a month ago. I am seeing my naturopath next week and if I have to pay for blood work then so be it. It is difficult to get another doc in our city, as there is already a shortage and noone will take on new patients. Thanks for the reply.
  5. I Am Really Struggling

    Thank you Janie. I really needed to hear that. I can't sleep and my doc doesn't want to test for vit/min def. Is it possible this is osteomalacia? I can feel that the bones in my shins are very thin and tender to the touch. I have been taking 1400 mg of Vit. D for the past 3 days, but maybe I will up it. I was starting to think I had some other disease. I see an endo next week about my thyroid because I probably haven't been absorbing my thyroid meds so that is a double whammy. Thank you for the support at close to midnight.
  6. I have not been officially diagnosed. My blood work was IgA Gliadin 26 <20 is negative and the rest of the bloodwork was negative. I had been off gluten for 5 days before that. I had decided not to have the biopsy and just try the diet. The first 2 days I lost a lot of water weight and the swelling in my tongue and neck went down considerably. I have been following the diet for 1 month and I actually feel worse. My muscles feel so weak and shin bones hurt. The knuckles on my hands are swollen and they hurt. I am having muscle twitches all over my body. I feel like my body is shaking inside. I can't stop crying. I wake up with bloating and I don't have much of an appetite. I feel like my skin is burning. Any opinions would be welcome. I have started taking iron and vitamin d, cal/mag. I also have to empty my bladder a lot, but that is nothing new. Thanks Hillary
  7. Thank you. It has only been 3 weeks and I am feeling impatient. I will continue on and look forward to a pain free future. I needed some hope today.
  8. Thank you. My doc doesn't want to test me for vit/min def. I am seeing an endo next week and I think a lot of the symptoms are due to the thyroid as well. I don't think I have been absorbing my thyroid meds.
  9. Hi everyone, Thank you for this wonderful forum. I have been reading many of your posts and they are very informative. I had my blood work done and the resuts are: GLIADIN ANTIBODY IgA 26 <20 is normal GLIADIN ANTIBODY IgG 6 <20 is normal TRANSGLUTAMINASE IGa 2 <20 is normal The doc says that this is borderline. I was off gluten for 5 days before the test was taken. Any opinions on this result would be welcome. I have been off gluten for 3 weeks now and almost feel worse. Although my bm's are becoming more normal, I never really had diarhea. I am also on thyroid meds and my TSH is 3.86 I feel nauseous and have bad tingling and numbness especially at night. Also, the muscle twitches are driving my crazy. I also have a feeling like I am shaking on the inside. The doc says if I want a diagnosis that I have to go back to gluten and do the biopsey. I don't think that I want to. Thank you for any input..