Get email alerts Get E-mail Alerts  

  • Articles  ||  Forum Home  ||  Gluten-Free Mall  ||  Store  ||  Journal of Gluten Sensitivity

  • Ads by Google:

    • Announcements

      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


    Advanced Members
    • Content count

    • Joined

    • Last visited

    Community Reputation

    4 Neutral

    1 Follower

    About KikiUSA

    • Rank
      Community Member
    • Birthday 12/10/1967

    Profile Information

    • Gender Female
    • Location Phoenix, AZ

    KikiUSA's Activity

    1. KikiUSA added a post in a topic Still Doing Something Wrong, Levels Came Back To High   

      Oh WOW....I will be calling my doctor on this right away!!!!! Thank you so much for this information!!!!!!
      • 0
    2. KikiUSA added a post in a topic Still Doing Something Wrong, Levels Came Back To High   

      This is my first blood test in 3 years. I had no idea I needed to get any blood testing done as the doctors never told me anything! My home is a dual kitchen and I keep all my food and dishes separate, I even hand wash my stuff. But I am definitely going to be stricter and recheck everything I have in my pantry!
      Here is the paper they gave me with my results: tTG antibody, IgA   77.55 out of range    20.00 reference range
      tTG IgA Reference Range
      <20.00    Negative
      20.00-30.00 Weak Positive
      >30.00     Positive
      tTG Antibody IgA Result   POSITIVE
      The following results were obtained with the INOVA QUANTALite h-tTG IgA ELISA. h-tTG Iga values obtained with different manufacturers' assay methods may not be used interchangeably. The magnitude of the reported IgA levels cannot be correlated to an endpoint titer.
      So this is what I got along with me being confused hahahahaha.  I really wish he would have sent me to a dietician when he first told me I had celiac.  I am going to keep a food symptom journal I think that will really help me. I know that even if I wipe my mouth after touching gluten I throw up, this is why I am confused.
      I thank you all for your advice as it has really helped me out a lot and I don't feel so alone.  I will keep reading and researching so I can get this down right, I want to be healthy! He gave me 3 months to turn this around and I know I can thanks to all of you!!!!
      • 0
    3. KikiUSA added a post in a topic Is Wine gluten-free?   

      Thank you all for your help and I do a lot of research on this site but it is helpful when you really get to talk to people who are going through what you are so thanks!
      And Gemini I will check out the testing part also!
      • 0
    4. KikiUSA added a post in a topic Is Wine gluten-free?   

      Thank you both for responding!!! This makes me feel so much better!!!!  Now if I can figure out why my levels are so high I can fix it. Terrible feeling thinking that for the past 3 years you been eating right and all new dishes and they still tell you your doing it wrong
      I am so thankful for this website you all on here are so helpful and caring..thanks again so much!
      • 0
    5. KikiUSA added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Is Wine gluten-free?
      I thought wine was Gluten Free but now I'm starting to wonder....I drink White Zinfandel...has anyone ever had trouble with wine or does anyone know if that could effect your blood work levels????
      • 37 replies
    6. KikiUSA added a post in a topic Still Doing Something Wrong, Levels Came Back To High   

      Doctor didn't say what they were 3 years ago but I thought I was being so careful as I throw up for hours if I get glutened so I am just in shock right now.
      • 0
    7. KikiUSA added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      Still Doing Something Wrong, Levels Came Back To High
      Well I thought I had this all under control and then I went to the doctor this morning only to hear that my levels came back 77.55 and should be a 20 or under!!!!  I have changed all my dishes, and my food but I guess I still need to change my makeup and soaps and shampoo's ect...
      Doc said he will recheck me in 3 months and if my levels do not come down then he will send me to a dietician for help - ___-
      I feel alittle stupid and down right now.
      • 9 replies
    8. KikiUSA added a post in a topic Confused On Why More Blood Work   

      Thank you, I had no idea.
      • 0
    9. KikiUSA added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Confused On Why More Blood Work
      I was diagnosed with celiac in 2009 by a stomach biopsy. I recently had another biopsy done along with a colonoscopy and now my specialist is sending me to have more blood work done.
      The work order for this blood work states : lab tests - Ttg ab, IgA
      Ummmmmm they already know I have celiac so why the heck would he have me do more blood work on this???? Doctor wont tell me anything until I see him on the 10th!!!!!
      Any ideas anyone?????
      • 3 replies
    10. KikiUSA added a post in a topic Laws For Restuarants?   

      Thanks everyone for your response, I think I will just eat before I go that way I am safe!
      • 0
    11. KikiUSA added a topic in Celiac Disease - Coping With   

      Laws For Restuarants?
      Does anyone know if there is any law that says if a restuarant does not provide gluten-free food that you can bring your own in???? I found the law for the schools but not for restuarants...just wondering as I have a christmas party to got to at Popo's here in Arizona but when I called them they said they do not provide for any alleregies and no one is allowed to bring in their own food......I would never go there willingly and I think this is sad.
      • 9 replies
    12. KikiUSA added a post in a topic Very Angry W/ Husband   

      I so agree with you AVR1962! This has unfortunatly happened to me a few times and I try so hard not to get upset so I mostly will just sulk, lol, I get tired of cooking every single meal so when there is left overs I look forward to just heating it up and relaxing after

      Husbands do forget though as mine has, have to have my sulk time and then make up

      Hope things are better for you both.
      • 0
    13. KikiUSA added a post in a topic Left Side Pain   

      Thank you all for your input, it has helped me alot. I don't drink anymore because it just isnt worth the pain. I am going to make a doctors appt and get checked out and also talk about the natural way for hormone replacement.
      Thanks again everyone!
      • 0
    14. KikiUSA added a topic in Celiac Disease - Coping With   

      Left Side Pain
      I have continual left side pain that runs from under my ribs to my hip. I do notice it gets worse if I have been glutened but I really don't understand why I have it all the time. Does anyone have this at all?
      Also does anyone know if drinking alcohol makes this worse or does any extra damage? I have had to quiet drinking altogether because I noticed I was feeling drunk after only 2 drinks and the pain got worse on my left side and I was sick for weeks after.

      Has anyone also tried Amberen for perimenopause or menopause? I have been thinking about giving it a try but wanted some input if anyone has any.

      Thanks Everyone!
      • 10 replies
    15. KikiUSA added a post in a topic New   

      What your going through is very normal. I think all of us has felt this way but it does get better with time. It took me along time to learn how to make enjoyable food and I think for months I was on eggs and rice lol. Try looking up gluten free recipes, I have found some really yummy ones.

      It is very important to have someone who supports you so I am glad your here, there are lots of people here who will help you get through this difficult time.

      As for my periods, yup they did change alot. Sometimes I have 2 a month. Hang in there ok and I hope you feel better soon.
      • 0

    Ads by Google: