Get email alerts Get E-mail Alerts  

  • Articles  ||  Forum Home  ||  Gluten-Free Mall  ||  Store  ||  Journal of Gluten Sensitivity

  • Ads by Google:

    • Announcements

      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


    Advanced Members
    • Content count

    • Joined

    • Last visited

    Community Reputation

    0 Neutral

    About sue1234

    • Rank
      New Community Member

    sue1234's Activity

    1. sue1234 added a post in a topic Difference Between Ttg, Ema And Dgp?   

      That's interesting that DGP is definitive for celiac. Can you reference that? The reason I ask is I had all the testing, and all the labs were normal except DGP, which was 4x the upper limit. I've had two separate biopsies and both were negative. I have mega-stomach issues with bloating and constipation. So, I've always wondered if I really am celiac due to that one test. Of course, the doctors tell me no because of the negative biopsies. I just began gluten-free yesterday.
      • 0
    2. sue1234 added a post in a topic If + Blood Test Why Biopsy? Son Was +   

      Pain in gut, I am also positive on my deaminated anti-gliadin at 45(0-10). My last biopsy two years ago was negative, so was told I'm not celiac. I am having a repeat biopsy soon with another doctor, and then am going gluten-free. May I ask what your level was on your test? Have you had symptoms your whole life? I am 50, but my stomach symptoms of horrendous bloating began 11 years ago.
      • 0
    3. sue1234 added a post in a topic Newbie With Lab Results And Questions   

      In my case, I had the biopsies and they were negative. So, I am left to wonder what the high anti-gliadin means.
      • 0
    4. sue1234 added a post in a topic Newbie With Lab Results And Questions   

      I'm in the same exact boat as you. I have normal or negative everything, EXCEPT my deam. anti-gliadin at 45.4(0-10). Mine is really high also, but was told I didn't have celiac. I'm not too sure. What other reason would make that so high?
      • 0
    5. sue1234 added a post in a topic Mayo Clinic Easy To Read Celiac Testing Algorithm   

      I do know one thing--celiac or gluten intolerance is NOT an easy, logorithmic thing that can diagnosed by a flow chart!

      I am still sitting as undiagnosed. Let me show where my numbers fit into this:

      My tTG is 0. So, if you stop there, I am completely negative.

      BUT, my doctor also tested my deaminated antigliadin IgA, and it was 45.4(0-10).

      According to their chart, a negative tTG just means no celiac, stop testing. BUT, if it is positive, THEN test the antigliadin. Why? I thought the tTG was "the" blood test to rule in/out celiac. So why do further testing???

      Then, if the antigliadin is over 10, biopsy. Mine was 4x the upper limit, yet the biopsy was negative. So, where do I fit into all this? I think they are missing something here, possibly that my 4x antigliadin maybe represents gluten intolerance?

      This is soooo confusing.
      • 0
    6. sue1234 added a post in a topic Doctors In Houston?   

      By the way, thanks for the explanation!

      I actually have not made an appt. yet with Dr.Verm because my stomach is too bloated to travel! It would be a three hour one-way trip for me, and when I am bad like this, I am most comfortable reclining or lying on my side. Until it lets up, I won't be able to navigate the trip AND the big medical center. But, I hope soon....
      • 0
    7. sue1234 added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Anti-Gliadin Iga Of 42
      Last November, I went through the labwork for celiac. Everything was normal except the anti-gliadin IgA of 42.

      Had an endoscopy and all was "normal". So, told celiac was not my problem.

      So, what exactly does a 400% above normal mean with the anti-gliadin IgA?? I think they at least owe me an explanation of why I have a high test result, instead of telling me I'm normal. What else could it mean?

      By the way, I am predominantly constipated and AWFUL BLOATING. I have a whole host of other issues, but not sure they are related.
      • 4 replies
    8. sue1234 added a post in a topic I Had A Miracle   

      That is great! It must be something to find the real "you" after all this time. I know when i had to go into the hospital for a 3-day fast to check on why I get hypoglycemia all the time, my body was weak and whacky after those 3 days, but my mind was so CLEAR and I felt so HAPPY on the drive home! I don't have depression, but I just feel like I have a "neutral" mood all the time. So, whatever I wasn't putting into my body for 3 days sure let some of the old "me" come out, for a little while anyway.

      I haven't yet gone gluten free, but will soon.
      • 0
    9. sue1234 added a post in a topic New Here!   

      Hi! I am new here myself, so don't feel I am able to give much advice or info. I wonder if they could do an endoscopy and get some biopsies. Your stomach would not be healed yet by any means.

      Are you thin or have you lost weight? I also thought of a cortisol deficiency when you mentioned nausea and tiredness.
      • 0
    10. sue1234 added a post in a topic Forum So Slow--Is It My Computer?   

      Okay, I just came to my desktop computer, and my pages load normal, like in 5 seconds. Must be something about the netbook. But, in the netbook's defense, it isn't unusually slow when I browse other places. I guess their is too much info for my little netbook to reload on every page--maybe this will help someone else down the road that is using a netbook.

      I have health issues that keep me for sitting up too long, so I tend to read through my forums in my recliner on my netbook.
      • 0
    11. sue1234 added a post in a topic Forum So Slow--Is It My Computer?   

      I am using a netbook I got last Christmas, so assume it has up to date stuff. I have the highest speed internet through our Centurylink phone company, as I use the internet for our business, so I know it works fast enough. I use Google(don't know what chrome is) as my search engine. Anything else I can try?

      I'm sorry if this post started out sounding "negative". That was not my intention. It honestly just keeps loading slow, and I am not a "tech" person, so didn't know if there was anything I should be doing on my end, as far a settings or something.

      It takes about 30 seconds for my page to go to the next page.
      • 0
    12. sue1234 added a topic in Board/Forum Technical Help   

      Forum So Slow--Is It My Computer?
      Hi. I love this forum, but it is super slow going from post to post. I have deleted my cookies, but that didn't help. Other forums I am on are not slow, so wondering if this is going to get better?? I hope so, because I want to read alot of the old posts to get alot of info, but not when it is so slow to go from post to post.
      • 12 replies
    13. sue1234 added a post in a topic Doctors In Houston?   

      Thanks for the contact info for Dr. Verm! You sound like me--I've been fighting hypoglycemia for almost 20 years. Is it related to celiac?
      • 0
    14. sue1234 added a topic in Celiac Disease - Doctors   

      Doctors In Houston?
      I have had bloating for 10 years. It has reached a critical level that makes me short of breath. I had the celiac testing locally:

      anti-gliadin IgA 42 (0-10)

      every other blood test was negative. Had the biopsies, and told they were negative also.

      I guess whoever I would go to in Houston that kind of specializes in celiac would also be a gastroenterologist also, so could address my intense bloating, whether it is due to gluten or not.

      Could someone give me a name or two? Thanks!
      • 8 replies
    15. sue1234 added a post in a topic Elevated Gliadin Ab Iga   

      Hi! I can't help much as I am waiting to hear back from my endoscopy. My gliadin antibody(IgG) was 45 (0-10), and in the same boat.

      I was curious, what did your pancreatitis feel like? I get bouts of SEVERE upper abdominal bloating that makes it hard to breathe, and it comes and goes. I don't really have any pain with it, just "uncomfortable" more describes it.
      • 0

    Ads by Google: