This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Thanks for the support. I am craving all kinds of gluten containing foods. It isn't just the flavor I'm craving, but the texture and everything. Texture is something I'm having a difficult time with. I need to not be so dang picky!
You're very welcome! I love sharing the magic. If you have any questions or want more details let me know. Disney is my favorite thing to chat about! It is so much fun helping others realize they can eat well there too.
When is your trip. I'll be there April 23-30.
I've been wanting to try some of the BabyCakes recipes but figured I would wait until I try the real thing so I'd know if I got it right.
How do you handle it when severe cravings attack? I've had this terrible crud that's been going around and had to do 20 days of antibiotics and the 12-day steroid pack. On top of the steroids it is PMS time. The cravings are killing me. How do I handle this? I'm trying to be good but I haven't been. I know that is a major no-no. But I don't know how to cope!
You are going to be in the best place possible for a Celiac to dine! As someone above stated, you can get a document when you arrive at the parks that lists the restaurants allergy-free, gluten-friendly options. This list is wonderful! It shows all kinds of allergens in case you have more than one to deal with.
When you order at counter service locations make sure you tell them right away that you have food allergies/issues. The Cast Member will then get a manager who will come over to you with the allergy book. Even if you know exactly what you want they will have you look at the book and the ingredients before finishing your order. So be prepared for ordering to take a few minutes longer. Since some people don't have a clue what Celiac is I always say "I have an allergy". That may not be the case, but it is what they need to hear to trigger the correct process for them. It makes life easier for you both.
Don't go to Casey's Corner and order a hot dog with no bun without mention of Celiac or an allergy. I did this on my first gluten-free trip there and they took the hot dog off of a bun and gave it to me. I realized this when I sat down and saw crumbs on my hot dog. When I took it back to the window the manager explained to me the process of how they handle "allergies" and that when you say no "whatever" they don't take those precautions.
At table service restaurants always have it noted on your reservation, then when you are seated remind the staff of your allergy/issue. They always send a chef out to speak to you about your meal. The chefs do a wonderful job there of making sure you have a safe and enjoyable meal!
Did you know that BabyCakes from NYC now has a DownTown Disney location??? I'm so thrilled to try them next month. If you go to Downtown Disney make sure you stop by BabyCakes for some gluten-free treats.
Are there any specific restaurants you have questions about? I LOVE Disney and love helping others have a great trip too. If you want, I can send you my email if you have questions you'd rather ask off the boards.
Oh yes, I know that feeling. Mine turned out to be low B12. Have you had yours checked? You can buy it in the vitamin section if you want to try taking some to see if it helps. I use the sub-lingual drops. But that's not enough for me so I have to get injections every 3 weeks. When mine is low I experience a few other weird symptoms.
Good luck figuring out what is causing yours. Have fun at the concert!
Isn't it frustrating being so limited? After going gluten-free last year I was still having stomach/digestive issues, but not as bad as when I would accidentally have gluten. A few months ago I had allergy tests once again & it showed that I was allergic to tons of foods. Now I pay more attention to how I feel after eating certain things & most everything on the "allergic" side of the fence makes me have issues. Basically right now my safe foods are corn, potatoes, peas, mushrooms, beef & turkey. That doesn't leave a lot of room for variety.
I hope you find some foods that you like and that like you soon.
I also have Hashimoto & Celiac. For years the doctors have said they thought something must be wrong with my thyroid but the only did the general test, never the in depth one. In June I brought this up during allergy testing. The nurse suggested I mention it to the doctor. She sent me for the full thyroid panel. About this same time I was assigned a Nurse Case Manager through my insurance company. She took my results back, as well as my symptoms and had their doctor look over everything. He said he is certain I have Hashimoto's. It will be 2 more weeks before I can be seen by the Endocrinologist. This has been such a long, frustrating wait. My family doctor doesn't think it should be treated which has added to the frustration. If my numbers indicate this as well as my symptoms why not treat it? She says the thyroid isn't damaged yet and is still working but my body is attacking it. I don't want to wait until it is too late and the thyroid is damaged. Have you run into any of this? Did you have a difficult time getting treated?
What treatment are you on? How does it make you feel? Do you feel good now? I've felt so bad for so long. I'm tired of it.
Like others have said you don't need the junk food when your sugar drops. I'm also Hypoglycemic & I always keep peanut butter with me. I even have a little packet in my purse just in case. Since going gluten-free I've not had near as much trouble with my sugar dropping. Now it only drops when I've been contaminated or when I've gone hours & hours without eating.
Things will get better soon. It is difficult to adjust & you mourn the foods you can no longer have.
Check into Disney cruises. Disney does a great job of keeping those of us with food issues safe & well fed. Go to the website & look for contact info then email them. The parks go above & beyond to keep us safe from contamination & you wouldn't believe some of the amazing, wonderful foods they serve. I not only have Celiac but also several food allergies and they did an amazing job keeping me fed & free of contamination.
Besides what 6 year old wouldn't love to cruise with Mickey? ;-)
The reason you need to avoid the envelopes is because gluten is in the glue used to seal them. Some people have no reaction to small amounts of gluten, others do. Sadly I'm one of those who have terrible reactions with just a tiny bit of gluten. I want to avoid shampoo & all because I don't want to get it in a cut or scrape. I don't know if that will make me sick but I don't want to take chances. Some people have skin reactions if it touches them.
You & your sister should get tested. Just remember that you still need to have gluten in your diet when you are tested. If gluten isn't in your system the test won't be accurate.
I'm still new to this but the changes are worth it! My body feels better. Good luck!