Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About cranberi58

  • Rank
    New Community Member
  1. Hello friend! It seems like we're in the same boat. I just posted the other day about how I have a possible MS diagnosis and I was also wondering about the link between MS and celiac. I have numbness and an MRI finally led to finding a lesion on my spine and 3 on my brain. Like you I'm waiting for a firm MS diagnosis because I don't really have evidence of other MS attacks. What other tests has your doctor run? I have a huge amount of bloodwork done including vitamin deficency. If you haven't had this done I highly suggest you get all this tested. My understanding is that numbness is a symptom of many many disorders. My thinking about this whole Celiac/MS thing is that autoimmune diseases have a tendency to run together. I have found a few articles suggesting that anyone with an autoimmune disease should be tested for other autoimmune problems, particularly a food intolerance. It'd be silly to tax the immune system by eating harmful foods when its already dealing with MS! So, for this reason I'm trying to figure out if I have any issues like gluten sensitivity that will further exacerbate MS! My personal opinion is that you should be talking to your neurologist about your suspicions or worries that the lesions have another cause. MS is also a very real disease and very scary because it doesn't have clear triggers and is full of unknowns. In some ways I'd love to find out my lesions are celiac linked because, to me, I can better cope with avoiding gluten the rest of my life than confronting a disease that I can control even less! My plan is to go to a local doctor I've heard has experience with celiac patients. I've told my neurologist I'm going to do this and he said to schedule an appointment with the toher doctor and get my blood work sent over so the celiac-experienced doctor can see all the vitamins, diseases, etc that we've already looked at! I'm also working on journaling how I feel while I'm still eating gluten. I'm documenting what I eat every day and how it makes me feel. That way if I do go gluten free as a trial, I'll have a good comparison of how I feel without being as biased (hopefully). Good luck with all this. I know how frustrating and scary it can be. I'm glad also to know I'm not the only one concerned about connections of autoimmune problems. Seems like there's a lot we need to learn.
  2. I'm looking for some advice on the best way to go about getting tested for gluten sensitivity/celiac. After reading a lot I've come to realize that it can be hard to get doctors to listen and that there are some problems with bloodwork screening. Here's the deal, I'm in the process of figuring out if I have Multiple Sclerosis. I suddenly had my feet go numb several months ago and went to a neurologist. After ruling out many things (lupus, lyme disease, etc etc etc) and getting an MRI, I learned I have a lesion on my spine and 3 on my brain. While everything so far is highly consistent with MS, I only have this one attack so I am not able to be clinically diagnosed yet. Anyway, with everything going on I've been reading about MS and stumbled across some links between autoimmune diseases such as MS and celiac and anecdotal evidence that people with MS get great relief from gluten free diets. Many things I've (including info from Enterolabs) read suggest that people with MS get tested for celiac/gluten sensitivity. I completely agree, if consuming gluten is harming me then I'm more then ready to give it up if it'll lead me to a healthier life! As I've been really thinking about my medical history and the way I feel, I realize I may have had symptoms that I didn't realize. For the last 2 years, my boyfriend and I have a running joke that saying my stomach hurts is my excuse to get out of everything. Now I'm realizing it's not really a joke, I literally say my stomach hurts all the time! So, I think investigating gluten problems is a very good idea for me at this point but I don't know how to go about doing this. I'm afraid that if I go to a doctor I'll be written off as a hypochondriac. I also don't know if I should just do the enterolabs test. I'm also not sure if it's better to head to a GP, a gastro doctor or an allergist/immunologist. It seems like the main key is to find a doctor that is familiar with celiac and gluten. I'm just looking for advice from people who have been through this on who to go to and what to ask for!? I have enough appointments already scheduled for all this MS stuff, so I don't want to waste time trying to get a doctor to believe me that I should worry about gluten! Thanks!
  3. Anyone In Mobile, Al?

    Hello from Dauphin Island! I was happy to stumble across this posting because I'm looking for a doctor to go to about celiac in the Mobile area. Here's the deal, I recently had my feet go numb and went to a neurologist. We ruled out a lot of things but eventually I went for an MRI and found a lesion on my spine and 3 on my brain. I've also had a spinal tap and basically my lesions are consistent with Multiple Sclerosis but I've only had one attack so I can't yet be firmly diagnosed with MS. While I've been dealing with this I've been reading a lot about MS and I keep stumbling upon some ties between celiac and MS. Some MS sites have even suggested being tested for gluten intolerance because it can exacerbate MS and any such food intolerance should be dealt with. Meanwhile, I also have a good family friend in holistic medicine and she also immediately suggested gluten problems. So, now I'm looking for a good doctor to go to for testing. Until recently, I didn't think I had huge health issue but now I'm starting to realize that telling my boyfriend that my stomach hurts every day isn't normal! After all the reading I've done, I'm starting to realize it may be hard to convince a doctor to order testing for celiac and that blood testing isn't the end all of gluten problems because it takes a pretty severe case to show up in the blood. So, any suggestions for a doctor that might have some celiac experience would be very helpful! Thanks a bunch in advance.