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Specky

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About Specky

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  1. My doctor says yes to celiac...but here are my results...i'm confused. -------------------- Summary interpertation: Resulsts do not exclude a diagnosis of celiac disease. Serological markers for celiac disease not detected. Celiac disease unlikely if patient is on a gluten-containing diet and is IgA sufficient; does not preclude development of the disease in the future AGA IgG....3.3 U/ml AGA IgA....0.6 U/ml TTG IgA....1.0 U/ml EMA IgA....Negative Total IgA....207 mg/dl Alleles Detected: DQ2 heterodimer (HLA DQA1*0201/DQB1*02) Catagory # DQ Genotype Increased Risk Over General Population: Relative risk: 2 DQ2/other low risk gene <1X Low Any thoughts? It seems like this test says no to celiac... But I have had complete hair loss osteoporosis joint disease (I've lost all the bone in my knees and some in my spine, shoulders and wrists stomach pains random skin rashes odd iron levels High inflammation labs high wbc (for years) I've seen multiple doctors and noone sees any of these things other than oddities. But this one Dr. says celiac, but it looks like the labs say no celiac. Sorry this is so long, but I'd just like to 'know'! THanks!! rebecca
  2. Hi! I'll try to keep this brief. I lost all of my hair in 2001 (ALL of it). In 2003 I had white thing sparing hair grow back. Since then I have black(curley)/white(frizzy straight) hair that is real thing with lots of baldspots, but most I can hide. (I used to have very thick wavy auburn hair). THis past March, I found a dr. that seemed genuinly interested in my 'weird' sxs and did some blood testing that said more than likely I have celiac. I decided to try gluten-free, and within 2 weeks felt amazing! I didn't realize how bad I was feeling. Since then I've been mostly gluten-free, but did did have some rebellion time, to which I'm paying for now. But here is my question: If any of you has had hairloss, did it come back once on the gluten-free diet, how long did it take? I have severe bone loss in most of my joints (I"m not an athlete, but deal with really bad joints)..did this get better if you had it? THe dr. has said my vitamin D was low, but I'm not on any suppliments other than calcium chews twice daily and a multivitamin. I have so many more questions, but I'll leave at this for now. This has been such a process for me, part of me is in denial because so many physicians over the last 10 years have told me all my 'wierd' sxs were 'stress' related...which was odd to me, as I'm not stressed out. I walk into this dr's office and one look at me he says it's gluten...I was quacking all the way back home...but I thought I'd give it a try and it seems to be accurate, but I still question...how did he know? I'm overweight, not underweight, and why couldn't the 8 dr's i've seen already diagnosis this?? Ok, I'll stop here (really this time). I'm really excited to be apart of this board, and can't wait to learn from all of you! Rebecca