This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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First of all, you need to change your eating habits for your children. They need to learn to eat right and they will learn by your example. Having to feed children three meals a day should force you to broaden your eating horizons. Your children won't be healthy eating junk all day. I know it is tough to change eating habits, though. I've had a hard time with that, too, although my diet has always been pretty varied. You can get good gluten-free bagels (Kinickinick sp? brand comes to mind). I eat Van's gluten-free frozen waffles for breakfast almost every morning, but you can make things like grits, bacon, eggs, etc.
In my experience, lunch is the most difficult meal because I grew up eating sandwiches for lunch. Now if I want a sandwich, I have to bake bread first because I can't stand the storebought rice bread that is available to us. I use the Chebe bread mix and buy it by the case on-line. It's quite a bit different that regular bread, but you get used to it. Otherwise, think ahead and have the makings for simple meals on hand.
You probably know this, but you need to have your children tested, too. celiac disease is genetic. Both of my children inherited it from me and three of my mother's four children have it (including me). Even though celiac disease sometimes affects our reproductive systems, it sounds like you don't have those problems, so I wouldn't be too worried about having more children. Just know that you have to maintain your gluten-free diet so that your baby gets adequate nutrients from your body. I had no problems with my pregnancies either and I had healthy babies. But then, my celiac disease symptoms didn't start showing up until after I turned 40.
My advice to you would be to just read as much as you can about celiac disease and the gluten-free diet. Celiac.com is a great site for information and it even helps just to read the blogs or discussion forums.
We've been working on our farm and trying to get the house ready to move into. The remodel took longer than expected, mostly because we found termite damage when we took down the thirty year old paneling and had to rebuild some walls.
We hope to move out there permanently within the month and are really looking forward to it. Driving back and forth between our houses is very tiresome...not to mention, expensive!
I write about farm life on my other blog. If you're interested, you can click on the link below. Any gardening or animal husbandry tips would be appreciated since this is all new to my husband and me.
I'm trying to stock up on gluten-free foods because there isn't much to choose from in the small east TX towns around our farm. There is one grocery store, Brookshires, in the closest town (I'm used to having a grocery store within five minutes of my house in any direction). I was pleasantly surprised to find that they stock several gluten-free items like Van's gluten-free frozen waffles, various gluten-free cookies (Pamela's and Mi-Del, for example), and some Bob's Red Mill products. Although, they didn't stock the BRM flour that I like to buy, I can probably request it since they already carry the brand.
We plan to raise most of our own food - veggies, meat, dairy - but I'll still have to rely on specialty products for grains. I bought several cases of Chebe and split them up between myself, my daughter, and my son, who has moved out into his own apartment for the first time at age 19. I stocked him up with a load of gluten-free foods in hopes that he'll try his best to remain on the diet without me cooking for him.
Going on and off gluten so quickly will not make any difference in your tests. You have to have been off gluten for at least six weeks for it to have any effect on your tests. If you are off gluten for an extended period of time and need to do a gluten challenge, you have to eat gluten for several days (maybe weeks, I don't remember). Also, you can have a DNA test which does not require a gluten challenge so that you don't have to go through the discomfort of eating gluten just to see your doctor or be tested.
Insist that your doctor test you even though he may object and tell you that "celiac disease is rare".
What's up with this new blog format? I don't like it at all.
We have a restaurant near us called the [i]Fish City Grill[/i]. I had eaten there a few times when they first opened up a couple of years ago, but they had very little gluten-free items on the menu. My daughter went there yesterday and found that they now have a gluten-free menu. She spoke with one of the "higher ups" in management that was visiting from Chicago who has celiac disease herself and she said they are trying to add more and more gluten-free items. Apparently, it's a chain of restaurants so watch for it in your travels.
[quote name='healthygirl' date='May 26 2008, 07:42 AM']A guard donkey? I love it!! It is big, like a mule size, or just a cute little donkey?[/quote]
They're cute little donkeys. Not the miniature because they wouldn't be big enough to chase off coyotes, but still kind of smallish.
I've been super busy and haven't had time to make any new entries lately, but hey, I feel compelled to go for 10,000 hits since I'm so close.
My husband and I have been renovating the house that we bought (on the 36 acres). We've bought our first goat. He's a character - like a pet dog. We also bought a couple of guard donkeys that don't seem to know they are supposed to be guarding. They are both pregnant and due to foal any time. I'm looking forward to the fuzzy little babies.
In the meantime, my son has gotten engaged and I've been planning an engagement party for him for the past couple of weeks. The party is tonight and I have everything ready except for having the meat cooked. He and his fiance wanted a cookout, so that's what we're doing - hamburgers and hotdogs for 35 people. Whew.
There are a couple of other places on this site you can go to for help.
The discussion forum where other celiacs talk about doctors:
And a list of doctors by state that specialize in celiac disease:
It sounds like you've really educated yourself in preparation for your step-daughter's arrival. I think that's great. It will be tricky having one celiac among a family of non-celiacs. Both of my children and I have it, so I was able to make my kitchen completely gluten-free. My husband eats whatever I buy and cook and he's fine with it. Every once in a while, he'll buy some crackers or a loaf of bread for sandwiches, but that is rare and he is careful not to cross-contaminate.
I would be curious, though, as to which side of the family your step-daughter got celiac disease from. Since it's genetic, it's very likely that either her father or her mother have it. If nobody knows, then they should get tested because any of their other children can have it, too. If it's her father (or his side of the family) and you've had children with him, you may have more celiacs in your household that you realize.
Well, this is something I had wanted to do while my kids were growing up so that we could learn together. I homeschooled my kids for several years and it would have been ideal to include gardening, etc. in their educations. But my husband, also a city boy, didn't want to do it at all. Plus, he had to be in the city for his job.
Now he's more flexible with where he can work and we are expecting an economic crash, so it was his idea to get some acreage and become as self-sufficient as possible. We're both nearing 50 years old and at this point, I rather saw myself as having a flat in Spain with no yard to take care of and relatively carefree. But...here I am, starting a whole new life and fixin' to be an empty nester with my youngest going to university this fall and planning to get married next year.
Despite my wish for a flat in Spain, I am enjoying this experience very much. Surprisingly, my husband is loving it, too. He loves getting out there on the tractor, plowing and mowing. He has even tackled the house remodel, tearing out the kitchen with gusto.
He cracks me up, though. He is such a city boy that he has never even seen a tick. So he is obsessed with ticks. He's always afraid that one is in his hair. He saw a little hopping bug not too long ago and exclaimed, "It's a tick!" No, honey, ticks don't hop. And he was sure that he had a tick when he felt a little bump on his scalp a few days ago. I had to root around in his hair until I found the culprit...a tiny bit of drywall.
Cathy, all the best to you in your new venture. You're lucky to have a husband with farming experience. My husband and I have none, so we're just learning as we go and getting lots of advice from friends. We
I planted a garden for the first time in my life and it is exciting to watch the little sprouts come up. We're making good progress on the house and hope to be able to move in some time this summer.
[quote name='KristaleeJane' date='Apr 6 2008, 09:59 AM'][quote name='Mosaics' date='Apr 2 2008, 11:49 AM']We all start out with a lot to learn.
I saw on your profile that you are suffering with fatigue. Your doctor will, or perhaps already has checked your blood for B12 levels. If you are low on B12, that could be causing fatigue. You might want to mention it to him, just in case. If you are low, you can get B12 shots to boost you up back to normal. But if you want to take an oral supplement, it is recommended that people with celiac disease take a [i]sublingual[/i] tablet rather than the regular pills that you swallow. The reason being that if you are B12 deficient, that means you aren't absorbing nutrients in the normal manner and if your intestines are not able to absorb nutrients from food, they will not be able to absorb them from a pill that you swallow. A sublingual is a pill that dissolves instantly in your mouth and will absorb into your body rather than passing through it with no effect.[/quote]
Wow, I had know idea, here I am pounding the vitamins into me and not seeing any results, where can you get the sublingual tablets, at a pharmacy? Also who gives you the shots, Your doctor?
I'm not a doctor and am just going by what I've observed, read, and learned from my own doctor, so make sure you do talk to your doctor about these things. It seems that some nutrients are absorbed and some are not...otherwise, I suppose we'd all be deficient in all nutruients. I don't know why or how these things happen. Personally, I haven't been deficient iny any nutrients that I know of. My blood tests always come out normal. On the flip side, my daughter, who also has celiac disease, was severely B12 deficient. That's how I found out about the link between fatigue and B12, she's in her early 20's and was exhausted all the time, just wanting to sleep, sleep, sleep. That's not normal, so we had her checked out. Her doctor gave her a series of B12 shots to boost her levels back up to normal and recommended that she take the sublinguals. It made sense to me.
Your doctor can give you the shots and the sublinguals can be bought at pharmacies or health food stores...really, anywhere that vitamins are sold. We get my daughter's sublinguals at Whole Foods grocery store. I don't know if [i]all[/i] vitamins come in a sublingual form, though.
We all start out with a lot to learn.
I saw on your profile that you are suffering with fatigue. Your doctor will, or perhaps already has checked your blood for B12 levels. If you are low on B12, that could be causing fatigue. You might want to mention it to him, just in case. If you are low, you can get B12 shots to boost you up back to normal. But if you want to take an oral supplement, it is recommended that people with celiac disease take a [i]sublingual[/i] tablet rather than the regular pills that you swallow. The reason being that if you are B12 deficient, that means you aren't absorbing nutrients in the normal manner and if your intestines are not able to absorb nutrients from food, they will not be able to absorb them from a pill that you swallow. A sublingual is a pill that dissolves instantly in your mouth and will absorb into your body rather than passing through it with no effect.
Haven't much to say these days. I've been feeling exceptionally well, so I must be doing something right.
We bought 36 acres and are remodeling the house that is on it. We plan to move out there when the major renovation is done and the barn is built. We've decided on a tractor and will be buying it soon. We're going to try to be self-sufficient. The property has a deep water well that supplies the house and all the property with water. We plan to plant a garden as soon as we get the tractor. When we move out there, we'll be getting meat goats and milk goats and some chickens so we'll have fresh eggs. Also plan to get a windmill to generate electricity.