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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity

    Katie B

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    About Katie B

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    • Birthday July 13

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    • Gender Female
    • Location Toronto, Canada

    Katie B's Activity

    1. Katie B added a post in a topic Very Ill. Pls Read My Story (Long)   

      Sorry to hear that you're going through so much but the fact that you're doing so much research is great and you will always be your own best advocate. Your symptoms could be from many things and celiac could definitely be one of them. Your endoscope will provide you more information (I missed whether they did a blood test for you for celiac?) and perhaps they'll do a colonoscopy as well?

      If all turns out normal you may want to try a gluten free diet anyway and there are other diets that may help you as well like the low FODMAP diet. Some people are sensitive to many different foods other than gluten like dairy, corn, soy, excess fructose etc. so a lot of symptoms can be alleviated by diet as long as your other tests don't show anything else like IBD.

      Hang in there and wait for your test results and definitely consider diet, vitamin supplementation and perhaps a gentle laxative to keep things moving - Miralax has limited side-effects but you should speak to a Dr. as I'm not sure how it would interact with anything else. My dietician recommended Spa Tone as an iron supplement which doesn't cause crazy constipation like most other iron supplements. You can also try eating things like cooked spinach, clams and then taking vitamin C to increase the absorption of iron.

      Let us know how everything goes - there are a lot of people on here who can offer amazing advice.
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    2. Katie B added a post in a topic Anyone Take Years To Heal Brain Fog And Fatigue?   

      Hi Twizzel,

      Many of us have residual effects after going gluten-free. While it is sometimes an instant cure lots of people have to investigate further medical conditions, dietary sensitivities and vitamin deficiencies. From what I've heard and experienced, fructose malabsorption can cause the same type of brain fog and while I can't supply you with the link there's definitely a medical study done on this. Other things to look into are vitamin deficiencies like B12 and Iron and as others have mentioned thyroid issues. You can also look into the low FODMAP diet which lets you know what fruits are excessively high in fructose. The good news is that you've made some progress and that you've seen improvement. Just hang in there and take it one day at a time!
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    3. Katie B added a post in a topic Celiac Attack, Has This Happened To You?   

      Sounds a lot like appendix issues - I thought I had some before and when I was reading through your description it sounded like it. Where are you located in Canada? Usually they triage people according to their needs. If you say you're in 100% pain, can't sleep and think it's your appendix then they might prioritize you. Alternatively, you can wait until 4:00am or 5:00am or so and go when no patients are around. I personally wouldn't wait - I wouldn't necessarily associate specific pain with celiac - your pain is where the small intestine meets the large intestine and where the appendix is located. I wouldn't mention celiac if I went back to the ER as they might not be open-minded about other causes. Just my opinion! Hope you're feeling better soon.
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    4. Katie B added a post in a topic I'm Worried That I May Have Pituitary/adrenal Involvement.   

      Hi CNV2855,

      I have secondary adrenal insufficiency and diabetes insipidus. Good on you for even knowing what adrenal insufficiency is! I was sent to the Endocrinologist for blood sugar problems (due to low cortisol) and he figured things out from there.

      I'd meet with the Endo again to get properly tested. I'm on replacement cortisol and has it ever made a difference - I would have been in serious trouble without it a few times when I got sick so I'm happy to have figured this out. I have to say I haven't been glutened because I'm on a very limited diet at the moment and don't eat out but you should get tested for hormone levels and then get tested for vitamins and overall health (B12 and Iron especially). If you're in an accident or a similar stressful situation and your body can't produce cortisol then it can be very serious so it's best to know.

      Too bad the hospital messed up...can you see an Endo and have him supervise it? I went to a specific clinic and he stopped in a few times to make sure it went well.
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    5. Katie B added a post in a topic A Diet Without Grains?   

      Hi Lockheed - check out the Specific Carbohydrate Diet. I'm on the low FODMAP diet at the moment and am limiting my carbs per serving and spacing them out...
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    6. Katie B added a post in a topic Your One Best Money Saving Idea   

      Definitely agree with clavyn's advice. It's also worth shopping around - many health food stores offer different prices - unlike the big stores they don't compare prices as often.
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    7. Katie B added a post in a topic My Diet Sucks - Major Vent   

      Thanks Julie - where is the program? What is it called?
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    8. Katie B added a post in a topic My Diet Sucks - Major Vent   

      Hi Julie,

      I can definitely relate. What is the Intestinal Rehab Program that you mention?

      Have you heard of the low FODMAP diet? I'm not sure if it is of any interest to you but I've tried it with much success (tried the SCDiet previously and it didn't work this time around). I use this diet + gluten-free + low-carb and it seems to be working well. You can get the low FODMAP diet booklet from Monash Unviersity (there is a lot of conflicting info. on the web) and Sue Shepherd (Shepherd Works) and Jaci Barrett (Diet Solutions) are the main dieticians working on the project.

      Hope this helps!

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    9. Katie B added a topic in Gluten-Free Travel   

      The Chateau Fairmont Lake Louise - Amazing!
      Hi all, I recently stayed at the Fairmont Chateau Lake Louise and had the most amazing experience! Beyond Celiac Disease I have many other dietary issues and I was worried about traveling for the first time after being diagnosed.

      Our vacation was fantastic! From every point of contact - from the food/beverage manager to the restaurant manager, waiters and chefs I was reassured that they understood the impact that a proper diet would have on my vacation. Prior to arriving, I emailed the food/beverage manager and when I arrived he gave me a customized menu that the chef had prepared! We had a great meal and the great thing was that I could enjoy skiing the next day!

      Highly recommend the Fairmont (in any location) and their new Lifestyle Cuisine Plus menus covers more than just gluten-free dishes - it's great that some companies are finally waking up and realizing how important diet is to their customers!
      • 1 reply
    10. Katie B added a post in a topic Believe I Am Now Celiac :(   

      As mentioned by mushroom the antibiotics can cause c. diff - this is what I had during the summer and believe me I thought I was going crazy. Kept going to the Dr. and kept getting a diagnosis of small intestinal bacterial overgrowth and kept getting various antibiotics. Had the infection for 2 months until it got really serious. It can cause colitis and can cause iron anemia, fever etc. etc. Please get tested for this - especially since your troubles started after taking antibiotics.

      In the past I've been B12 deficient and that causes everything to go wonky - I now get shots for this because I can't absorb it (very easy to get the shots).

      It might just be a cause and effect thing - you may be celiac and that is causing damage which in turn is causing your symptoms or you may have something else which is causing damage which is causing your symptoms. Either way you'll have difficulty digesting things that you once used to eat - I've mentioned this a lot before but look into the low FODMAP diet if all of your testing comes back negative.

      Good luck - just hang in there and you'll get to the bottom of it. If you think you have c. diff. you might want to get tested sooner - even if the Dr. is skeptical it's definitely a possibility.
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    11. Katie B added a post in a topic Rectal Administration Of Vitamines?   

      Hi Ross,

      You're probably best to stick with the gluten-free diet and take an oral vitamin (I'm taking Centrum Forte). Once your intestines start healing they'll be able to absorb the nutrients. I don't think taking vitamins rectally would work - your large intestine is meant to move things through and not to extract nutrients so you'd have to somehow get the vitamins into the small intestine which would be pretty much impossible (although I'm not a doctor).

      Regarding expensive gluten-free foods - I don't really eat a lot of them. You can easily eat rice, protein, fruits and veggies and don't necessarily have to buy all of the substitutes. Once you start feeling better you won't want to go back!

      Since your intestines will be healing you might want to watch out for small intestinal bacterial overgrowth as well and you might want to eat more protein and fat than carbohydrates.
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    12. Katie B added a post in a topic 10 Months Post Diagnosis, Struggling With New Symptoms   

      In terms of food intolerances (and it's probably hard to tell if that's what's the cause at this point) you might want to contact the dieticians in Australia (Shepherd Works or Diet Solutions) to do an elimination diet. It's very difficult to do this on your own (although possible). They advocate the low-FODMAP diet. I wouldn't automatically attribute all of these symptoms to a food intolerance/allergy but it's a variable you can control so it's worth doing.
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    13. Katie B added a post in a topic I Need Help Cooking gluten-free Pasta   

      Not sure about pasta but you might want to try Vietnamese rice wraps - just soak in water and they're ready to use!
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    14. Katie B added a post in a topic A Big Surprise Of My Life!   

      This would be in my "time to get new friends" category - but you would know more about the context. Oftentimes you can't force people to understand things even if there are a million sources on the internet (and your friend is a nurse?!).

      Fine to still talk to them but it might be nice to make some more connections with people who you don't have to convince.
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    15. Katie B added a post in a topic Fructose Malabsorption?!?   

      Hi - I have FM and it is very common and the amount you can tolerate varies widely.

      You should research the low FODMAP diet (Sue Shepperd and Monash University) There's a lot of misinformation out there so the booklet from Monash is the most accurate. It's based on a lot of research and it's been working for me so far.

      Good luck!
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