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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About sandsurfgirl

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  1.   Ha ha we have had many go rounds on this topic! For me, I wasn't getting better and my last holdout was my beauty products. If you have short hair, maybe you can get away with it, but long hair just gets it in your mouth. The hair brushes on your face, you push your hair back with your hand and somehow that gluten gets you. Well it does me. My hairdresser has celiac and is usually so careful about products. She used a new spray thingy on me the last appointment. I went home and had awful D and was so sick. Had not been glutened in ages. Sure enough, wheat in her new spray. She didnt read it carefully. I do not have a wheat allergy. When something sprays into the air, it is going to get on your lips and all you need is trace gluten to feel sick.   When you shower if there is wheat in your hair products you will be surprised at how easily it gets in your mouth as it washes down your face. And it will stay on your hands. Gluten is sticky binding stuff.    So... if you are still having symptoms after going gluten free, give the products thing a try. I saw many people on here who were adamant that they did not, needed not, would not change their beauty products, but they were constantly whining about lingering symptoms. I remember one guy in particular, he who will not be named, who was miserable, and complaining every single day about how nothing he did would make him feel better. But he would not, no never, get rid of his favorite wheat containing shampoo. Last I saw him, he was still sick and still loving his soft silky wheat filled hair.    Most products won't claim gluten free but the wheat is clearly labeled. It's very easy to spot the word wheat on the label and run for the hills.    Redken, Biolage, Enjoy all have many gluten free products. Again it will NOT say this on the label. You need to read.  I've never seen gluten in any Bath and Body Works so far. Bare Minerals, Benefit and Tarte have many make up options. I use H2O Plus on my face and I've never seen gluten in anything in 15 years of using their stuff. I always double check though since they revamp their lines often. Be careful with "organic" and "natural" brands. Frequently they are wheat monsters.  Suave is good for cheaper stuff.    My husband also uses gluten free products. He washes his face and puts on his manly dude lotion. Then I kiss his cheek and whammo... big D, if there is wheat in there. Or he washes his hair with gluten shampoo and conditioner, then lays next to me on the pillow. His hair brushes past my face and there you go... big D again.    Unless you are totally free of symptoms, feel amazing and are 100% certain you are doing great in your gut, you are playing with fire using products that contain gluten (just about always in the form of wheat this or that from what I've found.)    I don't care what some guide says or a book says. They aren't you. They don't have to spend hours on the toilet with you or deal with the gut pain. Tread carefully with the products because it just might be the difference between better and great for you. Celiacs have been given bad advice from doctors and experts since the dawn of time, so do what you need to do in order to be well. It is worth an hour of your time in an Ulta reading labels or a couple of hours in the aisles at Walmart for your well being.    As you can tell this is a passionate issue for me. I want my celiac friends to THRIVE!!! 
  2.   Kinnikckinnick and Katz make great donuts! But don't go there just yet. Let your gut heal. You can have your gluten free donuts in a few weeks or so. 
  3.   Irish Heart! Good to see you! Here's your cupcake and ice cream... you choose the flavor. LOL
  4.   I remember those days Not me! I'm so glad to see some familiar faces around here. I'm sorry for being MIA. 
  5. Super simple! Dump 2 cans of canned peaches with juice in the bottom of a greased dutch oven. Then dump your favorite gluten free vanilla or yellow cake mix over it to cover the peaches. I use Gluten Free Pantry. Then cut up one stick of butter into thin slices and arrange them over the cake mix. Bake at 350 covered for about 20 minutes and then start checking it. It can take a long time so keep going in 10 minute intervals.  The butter will all soak in and the top will start to crisp. 
  6. If I could get on my knees and beg you not to move in with him I would. You say it is an otherwise great relationship, but you may be a bit lovestruck and missing some things. At any rate, the things he is doing to you are abuse in my opinion.    I don't mean to be harsh but here is how it reads to me. From what I read of what you posted he sounds very controlling, abusive, and narcissistic. Here is an example to give you a comparison. When I found out I had celiac my husband INSISTED the entire house go gluten free. He busted his butt learning about CC, how to handle it and what to do in the house. When he found out our son also had it, he became vigilant.    He never ever questioned me about my food. As a matter of fact he will err on the side of caution and if there is something I am willing to eat that HE feels is unsafe, he will ask me not to eat it. HE will ask ME not to make my own self sick because he is so worried about me and it gives him pain to see me suffer.    One time he was starving after working a 10 hour day and commuting for 2 hours in traffic. I had not made dinner. Kids and I ate out. So he grabbed a quick teriyaki bowl at a local place and brought it home. My son was crying because teriyaki bowls were his favorite. My husband could not apologize enough and he has never once  brought gluten into our home again.   Our home is a zero tolerance gluten free zone because of my husband. I was willing to try a shared kitchen and he was adamantly against it.    If all he was doing was arguing over the blender I wouldn't think it was that bad. But the man is arguing with you to the point that you feel so incredibly harassed and beaten down that you are eating gluten and making yourself sick in order to avoid a fight with him. Do you see how that sounds? Pretend that you are your own mother and you're hearing that some dude is treating your daughter that way. What would you tell her?   My last piece of advice is don't shack up with anybody. The odds go way up that you will not get married and if you marry your chances of divorce are significantly higher than if you had not shacked up. When you shack up with someone, it's generally because deep down in your core you have doubts about marrying them, so you rationalize that you are saving money, getting to know each other, etc. I have been divorced when I was younger from my first husband (who reminds me A LOT of your boyfriend) and I have broken up with a boyfriend I was living with. Both of them were equally hard and equally traumatic. I wanted to break up with that guy for two long years but because we were livng together I could not extricate myself from him financially. It cost me more money to break up with the live in boyfriend than it did to get my divorce because of how we handled our finances.   This guy has so many huge red flags, I would run screaming like my hair is on fire and never look back. It will only get worse when you live with him or God forbid marry him.
  7. I used to post here all the time. I don't have time anymore, so I come on once in a great while. I just wanted to share where I am at 5 years into being gluten free as encouragement for the newbies.   I was diagnosed at the age of 40. Extremely ill at diagnosis. It took me a full 6 months gluten free to have one symptom free day. I had horrible withdrawals from gluten. I highly suggest that newbies use the search function on here and read all the old threads about withdrawals and the healing period so you know it is normal.   I was so overwhelmed when I found out I had celiac that on my first shopping trip after diagnosis, I had a massive panic attack. I left an entire cart full of groceries in the line at Sprouts, ran to my car hyperventiliating, barely made it home because I felt like I was going to pass out and cried hysterically on my couch for over an hour.    But I got used to it. My little boy was diagnosed after me so our whole house went gluten free. I got a gluten-free bread maker and learned to make my own bread. I found plenty of safe restaurants in our area we can eat at. I learned to bake cookies and cakes that will knock your socks off. As a matter of fact we went to a campout with some other families. One guy made peach cobbler in his dutch oven, so I made us a gluten-free version in my dutch oven so we wouldn't be left out. A couple of friends tried mine and secretly told me my gluten free on was way better, no comparison.   My son used to have a hard time feeling left out with snacks and things. I always bring him matching alternatives to what is being served at gatherings and parties. But eventually he came to realize he is healthier because of it and he is happy being gluten free.   I was intolerant to soy, dairy and night shades at first. Now I eat dairy all the time with zero issues and love my night shades. Soy still gives me a stomach ache so I avoid that one, but it's livable.    Parties and pot lucks are a bit more difficult for me but they are no longer stressful. My friends have actually started making gluten free stuff for me at get togethers without me even asking.   I came here to write up a review of a great restaurant that is nearly all gluten free, and then I thought I would like to share with others. I know when I was new to celiac I was a total wreck. I was so sick, so miserable and I felt like I would never get better, that my suffering would never end. I'm Italian and I cried my eyes out over pasta and raviolis. Then I learned how to make gluten free pasta taste amazing. Whatever you are going through now WILL get better. Some of us still have other intolerances like me with soy, but you deal with it and you learn to make things less about food. I am okay going to a party and letting it be about the friends and not about the food.    So hang in there newbies! If you feel sick and horrible, pamper yourself. Spend lots of time in bed. REST. SLEEP. Eat clean until your body feels better. Eating clean and going off almost all grains is a gift you can give yourself now.    I just ate the most scrumptious homemade gluten free cherry cupcakes with creamy homemade gluten free ice cream. And my tummy is stuffed but it is not sick.   Blessings to all of you!  Sandsurfgirl
  8. I went to the Story Tavern in Burbank, California today. Best gluten free food I have ever had eating out  hands down. It is owned by a family and one of the family members has celiac disease. They do have some gluten on their menu but very little and they know how to handle CC issues.    There was so much good food my kids and I ordered 3 things and shared. Totchos which is Tater Tot nachos. BEST thing ever! Shepherd's pie. gluten-free macaroni and cheese. Chopped veggie salad.    It was heavenly. Every single bite. We all left stuffed because we couldn't stop eating such tasty food.    They have 3 or 4 gluten free desserts. My kids had root beer floats but we were too full to order the warm apple cobbler or flourless chocolate cake.    We live 45 minutes away but it is worth the drive and we will be back. They also have quite a selection of gluten-free beers and ciders, but I don't like beer or cider so I didn't try any. Somebody try those and add to the thread. 
  9.   Yes the blood type diet has lists of foods that are beneficial and foods to avoid for your blood type. My doctor recommended it and I figured it was worth a try. I've been totally gluten free for 4 years and eat a clean diet, live in a gluten-free household, yet still have lingering health problems. My vitamin absorption still isn't great. I can't get my D and iron into good levels at all. The doc who created the blood type diet has an even more extensive program called the Genotype diet and now I'm doing that. I have noticed a huge difference in a short time from doing it.   It may not be for everyone. I'm not here to defend it or recommend it. I mentioned it because I had made some dietary changes which could have been a factor. If you read reviews of the diet, the results people have had are phenomenal. There are some other celiacs I've met on forums for it who weren't getting completely well and did amazing after doing the blood type or genotype diets. The negative reviews are usually from people who disagree theoretically with the scientific premise, not from people who actually tried it, interestingly enough. A friend of mine I met on this board recommended it to me about a year ago but I wasn't ready to make anymore dietary changes at that time.    I think buckwheat and I will part ways for now. Maybe we will try to be friends again the future. LOL
  10. I'm just going to avoid buckwheat. It doesn't taste all that great anyways and it's not worth it. I had brain fog really bad. It's one of the worst reactions I've had in years. I don't get glutened often. I even had the achy flu symptoms and everything. It was bad. 
  11. Is It Normal To Constantly Be Starving?

    When I first went gluten free I was starving all the time for a few months. I was very sick at diagnosis so it took me 6 months to feel normal and have a symptom free day. Hang in there! It gets better!
  12. Did you move my post? I couldn't find it in coping with so I reposted because I had a glitch when I originally posted the topic. Then I found it here. 
  13. Yesterday and today I've  had horrible brain fog, like back in the old days when I was going through gluten withdrawal when I was first diagnosed. I have that achy flu like feeling when glutened and I am starving!!    I started the eating for your blood type plan at the recommendation from my doctor, but it's really just changing  a few of my normal foods. It's not a drastic difference in what I'm eating.   I have always avoided buckwheat but I thought I would give a new buckwheat cereal a try that I saw at Sprouts. I ate it two days in a row. I'm wondering if buckwheat could be the culprit.   I've been freaking out a bit trying to find out what happened because I haven't eaten anything where I would be glutened and I have no G.I. symptoms like I would normally get. It's like a very weird glutening.
  14. Exhausted And Venting

    Why does your nutritionist have you on a high protein diet? When you are healing the last thing you need is unnecessary restrictions. You need carbs and grains for energy!!! My nutritionist is a college professor in nutrition and she is against high protein diets for a whole lot of reasons, and for someone who has been sick those reasons are all doubled. No wonder you're so tired. Get off the high protein diet and eat carbs! It's too late for a biopsy. You are already gluten free and unless you have zero gluten issues you will get very sick going back on gluten long enough for a biopsy. A biopsy is looking for intestinal damage, which means you have to intentionally cause destruction to your intestines with gluten to get a positive. You have to eat a lot of it for many weeks to do enough damage to show up on those shoddy tests. Eat healthy, whole foods, but please eat plenty of carbs to give you energy. Healing takes time. It took me 6 months to have one symptom free day. Give it more time. People with autoimmune disease (I'm going to assume you have celiac and the test was a false negative), tend to get dehydrated. I needed to replace my electrolytes for several months, I drank good old Gatorade and it helped a ton. I tried other electrolyte supplements and all of them made me sick. Hang in there. It will get better.
  15. Dh On The Palm Of Your Hand?

    I had very painful DH on the palms of my hands until I was diagnosed and went gluten free. I haven't had it since.