taf replied to taf's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsCould you tell me what the full panel of tests are? My doctor had written on the script 'celiac disease panel'. Maybe he doesn't even know what all he should have ordered. Should i go back & request the full panel? Somewhere along the line in my reading i came across some type of blood test called tTG ELISA. What is that? Should i request that? I thought i remembered it was more accurate and/or less subject to human interpretation (error). Am i correct in understanding that a false negative means that even tho the result was negative that may not be the case--the person may have celiac anyway? Is there a single test that can be done that conclusively determines if one has celiac? As i explained, i want to have a diagnosis b/c then i know whether or not to pursue testing for my daughters who are both out of state in college. And they will know if they need to be alert for celiac in their future children. What is the test that i've seen people refer to performed by Enteron Labs? Is that a definitive test? What is the difference between gluten intolerance, gluten sensitivity & celiac? Does one lead to another? I am just learning about celiac & gluten, & with my brain being foggy lately it's not all sticking at the moment. Thanks for your help.
taf posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHi! I'm new here & have lots of questions. I am trying to find out if i have celiacs. My sister was diagnosed with the disease ~ 2 years ago & i seem to have a lot of the symptoms, but i just got my blood results back today for the celiac profile & i was told everything was normal. What is a false negative? Could that have happened with my tests? How does one get a false negative reading? These are my test results: Tissue Transglutamine Antibody, IGA <3 Immunoglobulin A 266 Gliadin Antibody (IGA) <3 I have no idea what those mean, all i was told by the receptionist who asked the doctor, is that they are in the normal range. Below are my symptoms in no particular order. I do not have all of these symptoms at the same time but as i searched the internet for symptoms, these are the ones that i have had over the years. I've never made a big deal out of them, just kinda lived with 'em & didn't think too much of em. When i saw them on lists i started to realize i might be on to something. My medical records list me as having IBS. My grandfather had some sort of digestive problem & i think he eventually had part of his colon removed. I need to look into that more to get details. Irritable bowel syndrome (IBS);Bloating; Gas; Abdominal pain; Borborygmi (stomach rumbling); Nausea; Constipation; Loose stools; Pale, frothy, foul-smelling, voluminous stools that float in the water; Candida overgrowth?; Low weight; Hair loss; Leg cramps; Vertigo-dizziness; Headaches; Sinus infections, sinusitis; Low blood sugar?; Loss of energy; Tired feeling; Inability to concentrate; Mental fog; Feeling spacey, not there, not real; Memory problems; Shaky, unsteady, uncontrolled handwriting; Sleep disturbances; Depression; Seasonal Affective Disorder; Loss of interest in life; Fuzzy vision; B vitamin deficiency?; Irritability; Head tremors/jerky head movements; Cold hands & feet; Numbness on back of thighs; Decreased foot padding; Burning feet; Cracks in corners of mouth; Mouth ulcers/sores/pointy projections; Bruise easily I was on a candida diet, which basically was a gluten free diet, for maybe 2 months or so early last summer, but i eventually slipped off it as we vacationed this summer. I got past the detox stage on that diet & was feeling probably the best i've ever felt in my entire life (full of energy, had interest in life & people, had motivation to do things, had a positive outlook on life & felt confident). Apparently slipping back into old eating patterns seemed to catch up with me & in Dec. i had a sinus infection that left me feeling very dizzy, with headaches & lethargy. CT revealed nothing abnormal. I started thinking my gut had something to do with the sinuses & the dizziness, & that's when my sister urged me to get the blood tests for celiac. Where do i go from here? I was certain the blood work would come back positive. I thought i had consistently been eating gluten for at least 3 months since the candida diet, but maybe not enough to trigger a positive blood test? I'm a pretty healthy eater anyway, so maybe i didn't ingest enough gluten. Who knows? What should i do? I've been making a conscious effort the last few weeks to continue to eat gluten in case i needed more tests. Today i ate a turkey sandwich on 'normal' bread (contained sprouted wheat berries, wheat gluten, millet, cracked wheat, oats, rye & other ingredients) & within 1 hour i was feeling exhausted. Do people with celiac normally have a reaction within an hour? It's not that i want to have celiac. I tend to downplay things & push 'em aside. But if i am dealing with celiac i'd like to know, for my sake as well as that of my daughters, who also have different symptoms that seem to fit the profile--& i want to know for my future generations. So what do i do at this point? Thank you in advance for your replies. You all seem like a very helpful community!