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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Sunshine24

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  • Gender Female
  • Interests Trying to understand and spread the word about the correlation between infertility and Celiac Disease. I plan to tell all my doctors, contact everyone I can, preach it on my blog, tell whoever will listen- TEST for celiac disease if you are not getting pregnant.
  1. I'm not really a baker so I love anything that I can make that comes from a box! Last year I used the pumpkin bread mix from Trader Joe's which was a HUGE hit, but that was before I was diagnosed and actually could eat it. I'd like to make another pumpkin bread this year, but I've yet to see a gluten free bread mix. Does anyone have any suggestions for one, or where I can one (either in a real store or online?) Thanks!
  2. Endometriosis/female Issues And Celiac?

    Yep, celiac 100% affects fertility. They aren't sure why, but it does, and whenever you read a list of possible things Celiac can do to your body, infertility is always on the list. I had unexplained infertility for fours years, 10 IVFs and 4 miscarriages until diagnosed last year. And 5 months later- we are newly pregnant. It's a good idea to check for everthing. I've had a lap and it's not that bad, just some cramping and soreness for a few days afterwards. But if you are trying to get pregnant, how celiac affects your body probably won't been physically, as it somehow affects the systems/hormones (they aren't sure.) I hope you get your answers!
  3. I'm happy to call them Monday morning and get the low down and write back here!
  4. Thanks Reba! Every time I do another IVF, they take thyroid blood levels and it always is normal (I've done a ton of IVFs). Hmmm, so I don't think it's the thyroid causing the nail straitions, breakage and weakenss....Interesting, I am going to assume it HAS to be the C.D. But if anyone out there has nails similair to mind, I am all ears, so thank you!!!! Sunshine
  5. About 7 years ago pre-dx, I noticed that my once strong, very nice nails started to get softer and two especially started to flatten out and get these odd vertical striations on them. Also, the white "moons" on almost all the nails are large and misshapen. I am going to assume this is an affect of the malnurishment we get from having celiac disease, but I was wondering if anyone else has this? I hope it gets better in time, once we're gluten free for a bit. I tried to upload a picture for you for comparison, but it didn't work, so here is a link to a picture....thank you!!!
  6. So What Beauty/Heath Products Are Safe?

    Thank you SO much, everyone! I have an appointment tomorrow with the nutrionist at the Columbia's Celiac Center, and I plan on asking her this question. I can report back here with what she says, if you like!! Sunshine
  7. High Forehead Poll

    I just voted yes- I always did, always hated it! But I have nice hair at least, so that makes up for it. I gasped when I read your post bc I always made fun of my forehead!!
  8. I keep reading on here that we need to watch our lipstick, our chapstick, our lotions, our shampoos, etc. I've read the lables of all the things I use and it just sounds like a chemcial factory! I buy whatever shampoo at a drugstore, lotions on my (chronically dry and cold) hands from the drugstore although the Kiehls brand is the one that works the best, regular old ChapStick brand, and MAC makeup. I am at a loss! No clue where to start. Do those "organic" health and beauty products you can get from Whole Foods make a difference for us? Can anyone point me in some direction of where I can find a safe product list? I don't want to be accidentlly doing something wrong just by washing my hair, and I'm so new to this I just have no idea. THANK YOU!
  9. Enterolab - I'M Skeptical

    Not sure if this helps, but I was first diagnoised via a bloodtest at my GP's office and right away went to Columbia's center. I had already done the Entero test and came clutching those results to show my doctor. She didn't even look, as she said it doesn't help her, since it is a private lab and basically the main doctor there determines his own standards and since he doesn't share his findings, how can she know what my results are compared to a test subject, a subject with celiac disease, etc etc. She then took her own blood sample and did a follow-up endoscopy. (For what it's worth, the endoscopy and biopsies all came back postive, and my levels from Entero were all in the 300's and their "normal range" for each test was "less than ten." No clue what that means.) For me it was a waste of $400 since I ended up at Columbia, anyway.... Hope this helps....
  10. On another forum I visit, I use the PM service a lot, and I would like to have other members be able to PM me. Not sure if they can do that by simply clicking on my username, but I see that othes have a little "envelope" icon below their name that you can click that takes you directly to a PM pop-up screen. I looked all over the control panels for an option for that but didn't see it- am I missing something? Can other users still PM me? I just PMed a user with an important question, and I hope she'll be able to write me back! (The "Help" section just directs you to how to use the feature, but I don't think how to get the icon.) Thanks!
  11. wishes I knew I had celiac disease before the 10 IVFs and 4 miscarriages....

  12. Gluten's Impact On Conception?

    Hi Angela! As someone (only 33) who has "unexplained" infertility and endured 10 IVFs (7 with my own eggs, the rest some combo of donor eggs and a surroagte) and 4 m/c, inlcuding a devastating one at 20 weeks, I am very interested in learning more of this Mayo clinic study. I was recenlty dx with celiac disease via blood panel, edoscopy, biopsy, gene panel, you name it, and we are now not in the "unexplained" camp any longer. I am VERY active in the infertility world, have gone to DC twice to lobby on behalf of infertility insurance and adoption tax credits, have a well read blog, am quoted often in articles, blah blah blah. My "new" crusdae is getting the word out on celiac disease and making *SURE* that fertility doctors check for this!! If they check for other autoimmune diseases such as Lupus, thyroid issues and Factor V Leiden, why not this? It would have saved me 4 years of heartache and the death of 4 babies....So....if your DH has ANY information about this new program or study, please- I would love to know about it (I can even be a part of it if they need someone!) If you feel more comfortable, you can email me at waitinginsunshine at gmail dot com. I hope you come back to this post and read this!! Sunshine
  13. Positive For 2 Copies Mthfr C677t Mutation.

    Not sure if this helps, but I too have one copy of the MTHFR gene (although homocystine levels ok.) I was tested after my 1st miscarriage (via IVF #1, have done 8 IVFs all together due to unexplained infertility, now I know it's Celiac.) He told me to go on Folgard and a baby asprin before we started the next IVF round since the gene affects how my body aborbs those vitamins...I haven't been succesful, but now I know to go gluten free and try again!
  14. Testing! I hope someone on here can explain why a doctor recommends waiting 6 months and/or if healing starts as soon as you stop eating gluten or is there a specific, known time period that healing begins to start in the body? Thanks everyone in advance!
  15. Hello! I am so excited to have found this board! I have the classic celiac disease symptoms and saw my first GI at the age of 13; I am now 33. DH and I started trying to have a baby when I turned 30 and nothing happened. We've been to 6 fertility clinics, and have done a total of 11 IVF's, including 3 with donor eggs and 2 with a gestational carrier because we just assumed there was something wrong with me... I got pregnant on IVF #8 using a donor egg. Then, at 20 weeks with no warning, his heartbeat just stopped and we lost him. No warning. After all the TONS of research I have done, I see this is a typical second term loss for a Celiac... My endoscopy and biopsies all came back positive for C.D., and I have basically zero Vitamin D so the doctor gave me a strong once weekly med. She said I should wait 6 months before trying another IVF- we are excited as we are going to try and use my eggs again! However, I am still traumatized from the 20 week loss so we will continue with the carrier. My question is- how long does it truly take for a person