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DucksnPucks added a topic in Celiac Disease - Coping WithFatigue - Ugh!Hey Gang-
Well, did it again. Ate something (though I'm still investigating exactly what IT is) that has gluten in it, and I'm paying for it. What I don't understand is that I've been incredibly careful. But I do know, after living with this for almost 12 years now, that being extremely careful is no guarantee.
I've noticed from reading the boards here that many people have fatigue listed as one of the main symptoms, and most have it within hours of eating something with gluten. However, my fatigue doesn't hit until late, at least a couple days and sometimes a full week after being glutened. Is this normal? I don't usually get strong gastro symptoms, aside from bloating and C. Just wondering if anyone else gets fatigue about 48 hours after the initial glutening.
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DucksnPucks added a topic in Celiac Disease - Coping WithFatigue And Muscle WeaknessMorning y'all!
Battling fatigue and muscle weakness this morning. It's been coming and going over the past couple weeks. I've been gluten-free for over a month, and I know its still early, but it feels like I wax and wane a bit. Some days I can make it through to the end of the day before I get wore out, other days like today I'm exhausted right out of bed. The good news is that the headaches, brain fog and light headedness have all disappeared. I'm doing very well watching what I eat, just trying to learn how to cope with the fatigue which seams to be the worst symptom.
Anyone else feel like no matter how many hours of sleep you get enough, you never feel rested when you wake up? Or just feel off?
Also (tell me if I'm sharing too much) my bowel movements seem to be much more normal. No more pebbles, "C" or floaters. Is this a good sign?
Have a great day everyone!
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DucksnPucks added a topic in Celiac Disease - Coping WithSick And Tired Of Being Sick And Tired...Hi All,
I haven't posted in a while, which is a reflection in part on how I've treated this horrible disease. I was diagnosed a few years back, and since then have been able to tolerate all my favorite wheat products (at least for a while) without really getting sick. I would fool myself into thinking I was eating gluten free, and would ignore little things like Chicken Nuggets, fries at McDonald's, an occasional hamburger and sandwich. But about two months ago I started getting very light headed, tired and lethargic No real stomach symptoms, but there really didn't need to be I knew what was happening. Usually this meant laying off the wheat products until the symptoms went away, but they didn't go away, just kept getting worse.
At times I felt like the top of my head had been sawed off and my brain wasn't attached anymore. I woke up in the morning and felt like I hadn't slept at all. By the middle of the day I am weak and barely able to walk. My muscles were sore (not bad but enough to notice), a little bit of joint pain here and there. Can't think straight, in a constant daze. Then about a month ago the stomach symptoms kicked in. I became more bloated then I have ever been in my life. Had D, then C, along with everything else I had been experiencing.
This time, the symptoms weren't going away, they were getting worse. This has never happened to me, usually I could get by but not anymore. I knew what was happening, my body had simply had enough and I had done serious damage, all by being naive about this terrible disease.
Over the past three weeks I've done a 180. I don't put anything in my mouth without knowing if there is a chance of it being contaminated with gluten. I did even more research to try and determine what I had done wrong, and it turns out, there is a lot I had missed. I don't eat fast food any more. In three weeks I've dropped 10 pounds (I was overweight to begin with) and feel leaner. I eat a lot of salad, baked potatoes, grilled chicken and have lost all cravings for sweets and other "naughty" foods. The brain fog and light headedness disappeared about a week and a half ago, but I'm still dealing with the extreme fatigue, though that has been gradually getting better (some days are better then others, two steps forward one step back kinda thing).
I pray that the fatigue gets better, I want so much to be able to walk for an extended time and get back to the gym. I'm still not 100% (I would say I'm stuck between 60% & 70%). But I can finally begin to see the light at the end of the tunnel.
I have no idea why I am posting any of this. Maybe its just so my story can be heard. Its so hard for my family to see me like this and I know its difficult for them to understand what I am going through. Sometimes I feel like they don't believe me when i tell them how I feel. I know my wife is sick of hearing about it. And my kids aren't old enough to understand. But this has devastated me and made it difficult to have any normal semblance of a life. I'm just tired of being tired all the time.
Thanks for listening y'all.
PS - Anyone else ever feel like they constantly needs a massage from the muscle/joint pain? lol =)
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DucksnPucks added a post in a topic Is Five Days Gluten Free Too Early To Feel Better?
DucksnPucks added a topic in Celiac Disease - Coping WithIs Five Days Gluten Free Too Early To Feel Better?Hi all!
Per my last topic, had a bit of a lapse in judgment for the past couple weeks and ate a little bit here and there when I shouldn't have. Well, it hit me pretty about a week ago and now I am fatigued with a little bit of GI issues, nothing serious though in that department. Just the overwhelming fatigue, almost like being sick without the sick (of that makes sense). Loss of appetite and major weight loss as well.? I can function, can make it to work and do my job, but any physical activity right now just wipes me out. Probably doesn't help that I've had 5 and 6 hours sleep a night for the last week or so.
I've been gluten free for about five days but no real improvement yet, is it too early
to see improvement? Any advice for a newbie would be great. Thanks and god bless you all!
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DucksnPucks added a topic in Celiac Disease - Coping WithGot A Little Lazy And Now I'm Paying For ItHello all,
I'm new to the Celiac family and having a rough week. I got a little lazy and allowed myself to eat small amounts of gluten last week, and the week before. I thought that since I really haven't had it bad, that my body would be ok with a corn dog here, or a small cheeseburger here. Well, the fatigue gradually began to build to the point now that I am struggling to make it through the day. Minor tummy problems, mostly C and some grumbling, though this morning I felt a bit nauseous. Big time loss of appetite and I've been losing weight now for about three weeks (about 8 pounds in three weeks).
I have been gluten free for about three days now. Fatigue seems to be the same, no real improvement. Tummy is doing OK. Appetite is still gone. How long before I start feeling better? Can it take a few weeks to get back on track? I haven't really had a major attack since 2001 when i dropped 40 pounds. That one lasted about 4 months, lots of D and stomach problems. I wasn't diagnosed then, told I had Chronic Fatigue and IBS. Since then it's been little tummy upsets here and there, lots of bloating, and little bouts of fatigue until this past July when things started going south.
Any ideas on how long it will take to get my energy back?
Thanks and much love to you all!Thanks to all for your support!
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DucksnPucks added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsDo Symptoms Wax And Wain?Hi!
I haven't been diagnosed, but we have very high suspicions that I am probably Celiac, as is my 3 year old son. Let's start with me:
39 year-old male that had a serious illness back in 2001. Doctors called it IBS, but it lasted a good four months. I had lots of D, stomach cramps, loss of appetite, lost about 45 pounds, and EXTREME fatigue. I should probably back up and say that I have selective IgA deficiency, which I know is more prone to autoimmune disorders. So after about four months I began to feel better, but I hadn't really changed my diet. I had just about every test in the book done, including a test for Celiac, all of which turned up negative.
Since the first major episode, I have had smaller episodes on and off for the past several years. The main symptoms are usually the fatigue mixed in with both D and C. The can last anywhere from a couple days to a couple weeks. Weight has remained relatively the same (I have gained most of the weight back after the initial illness). Sometimes the fatigue and D is down right debilitating.
My big question is this, do the symptoms wax and wain like this? I knwo its different for everyone, I just wonder if this is possible/usual for Celiac?
our three year old has been suffering through D for about the past two years, and he also suffers from eczema and nasal allergies as well (so does his older brother). His weight and height is good, though his appetite is not great at times. But for all intent and purposes he seems like a health young man.
Thank you all in advance for any information you can share1 Bless you all!
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