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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Reba32

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    1. Reba32 added a post in a topic Bulk Barn - Ontario   

      ok, she said she got the flour at the BB in Quinte, and that the gluten-free section is entirely removed from the regular gluteny section.

      I feel a little bit better, but I still think I will give it to my Celiac friend who isn't afraid of carbs
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    2. Reba32 added a post in a topic 2 Questions: Oats And Rice?   

      absolutely, not all carbs are created equal. However, grains, whether oats or rice, are still going to raise your blood glucose levels considerably, and whether or not you're diabetic, this is NOT a good thing. One serving of oats 103.38 grams of carbohydrates with only 16.5 grams of fiber for a net carb impact of 86.88 (or if you prefer the Glycemic Index rating, it's 54, compare it with Betty Crocker vanilla cake at only 42! (source - Harvard medical school))

      I prefer to get my carbs and fiber from vegetables that are not also going to give me blood glucose spikes and crashes. And no, I am not diabetic, and I plan to keep it that way! I firmly believe that everybody could benefit from less grains, more veggies.
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    3. Reba32 added a post in a topic Overweight With Celiac   

      depends how much damage was done while she was eating gluten, and what she's eating in place of gluten. Most "gluten free" foods are nutritionless carbohydrates, that are not going to help anyone lose weight ever. They're made from white rice, potato starch, tapioca starch, and copious quantities of sugars. There's no fiber, there's no vitamins, there's no nothing but fattening starches and sugar.

      Get her on a whole foods, natural foods plan. Nothing that comes from a prepared mix, pressed paper box, or shiny crinkly plastic package. Just real food.
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    4. Reba32 added a post in a topic No Idea What's Going On Now   

      [rant] well, the dizziness continues, and I have been for so many tests and appointments at the TGH ENT/Balance clinic at my last appointment the doctor suggested I may need to see a psychiatrist because they just can't find anything wrong with me. I'm about to give up with all medical doctors entirely and maybe just go find a shaman in the jungles of deepest darkest Peru

      This dizziness has been going on for a year now, and it started a year AFTER I went gluten free, and I didn't have anythign like this in my laundry list of symptoms when eating gluten. But it could be an additional auto-immune disease, I've got 3 of them diagnosed already. EVERY time I mentioned it to anyone at the ENT clinic or with my GP, they all either brushed it off, or quite literally scoffed at me. If I mention that I've read of several celiac patients with secondary neurological disorders, they say "nope, never heard of it". I can't even get a referral to a neurologist! This is so frustrating! I seriously hate doctors. The closest the ENT would get me to a neurology referral is an appointment with their "balance clinic group" where they have a neurologist, a psychiatrist, and a physical therapist (I think?) in a group therapy sort of thing to help you "live your life with balance issues". What crap.

      My life is completely not my own anymore. I'm unemployed, can't drive, and my Mother is one of the worst drivers ever! She makes me nauseous just driving me to the grocery store to do shopping. I hate going anywhere with her, as I'm quite sure she's either going to have us killed, or I will throw up in her lap one day! [/rant]

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    5. Reba32 added a post in a topic 2 Questions: Oats And Rice?   

      I didn't try gluten free oats until more than a year after going gluten free. Two reasons, I couldn't find any certified gluten-free oats anywhere, and they're way too high in net carbs for my liking! Now I eat them only on occasion, and usually only when I'm baking something for Grove feasts, when I can't use nut flours due to other members who have severe allergies.

      I avoid rice also, due to net carb content. It's just filler, with no real nutritive value IMO.
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    6. Reba32 added a post in a topic Bulk Barn - Ontario   

      I don't know which store she bought it in, I will have to ask her. The only Bulk Barn I've been in since diagnosis had the gluten free flours directly UNDER the gluteny flours, with a shared! scoop! so I've just avoided them all for fear of cross contamination.
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    7. Reba32 added a post in a topic Are The Any Good Gluten Free Resturants In The Fraser River Valley In B.c.   

      there are a few local chapters of Celiac Association in BC, have you asked any of them for info?
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    8. Reba32 added a topic in Gluten-Free International Room (Outside USA)   

      Bulk Barn - Ontario
      For a recent family lunch, a cousin of mine went to bulk barn, saw some gluten free all purpose flour and decided "oh, I'll make Becky some gluten free bread for our lunch!". Which she was going to go home and make in her bread maker, where she makes her regular bread every day! (I have since educated her on cross contamination from bread machines)

      But then she emailed me and said that her bread maker's user guide suggested that she would need some xanthan gum, so she went back to the Bulk Barn and saw the price of it and said "nope, Becky can make her own bread!" So, she gave me the bag of bulk gluten free all purpose flour. Which I am deathly afraid of! I have avoided the Bulk Barn entirely since my diagnosis!

      Has anyone used the gluten-free bulk products from the Bulk Barn and been ok? Or should I just give it to someone who isn't afraid of it? (plus, I'm also a low-carber, so not only does the cross contamination issue scare me, but the carb count of these flours is frightening!)
      • 5 replies
    9. Reba32 added a post in a topic Looking For Lactose Free Powdered (Dry) Milk And Powder Buttermilk   

      I've seen powdered coconut milk somewhere.
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    10. Reba32 added a post in a topic Raynaud's Issues Or Neuropathy Issues?   

      I have cold cold cold feet and hands too, feet mostly, and I just can't warm them up, doesn't matter what the temperature is in my house. I went to a rheumaologist with my laundry list of symptoms, and she said it can't be Reynaud's because my feet and hands are not blue I read somewhere that not even half of patients have blue extremities I do get the blotchy look though when I go outside and get *really* cold.

      I just wear thermal socks, and big fluffy slippers, I stick my hands in my armpits when they get really cold, and try to get my dog to sit on my feet when I can, his normal body temperature is about 101F
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    11. Reba32 added a post in a topic Muscle Spasms And Magnesium?   

      are you sure it's muscle spasm and not acid reflux or hiatal hernia? Just by the area where you say it is primarily makes me wonder.

      200mg might be too much, it might not be enough. Everyone is different. In large doses though, magnesium can cause diarrhea, so be careful.

      If it is muscle spasm, you may also need to manage all your electrolytes, not just magnesium. You should also make sure you're getting adequate potassium and sodium.
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    12. Reba32 added a post in a topic Help   

      if you do in fact have Hashimoto's, as well as Celiac disease, then yes, going gluten free can improve your Hashimoto's, but it's not going to make it go away. I don't know if Hashi's can go into remission, anyone know? I doubt it would so quickly though!

      However, treatment with thyroid replacement meds *can* send your thyroid into hyper, which is what it sounds like you were experiencing. Rather than stopping altogether, a lower dose should have been tried first. It takes a while to get the dosage right, you may need to play with it for a couple/few months. And have regular tests done, every 6 weeks or so, to look not just at the thyroid hormone levels, but at the auto-immune antibodies as well. I was on anti-thyroid meds for 18 months for Grave's disease. And only after 1 year of NO ANTIBODIES did my endocrinologist declare that I was in remission. Regardless of my thyroid levels, (which are regulated by the meds) it's the antibodies that determine whether the disease is still active or not.
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    13. Reba32 added a post in a topic So Confused And Jumbled   

      My friends who have anaphylactic reactions ask me if Celiac disease is the same thing. I say no, it's not an allergy, it's an auto-immune disease, and will cause a slow painful death if I continue to eat gluten. Which is true. Untreated Celiac disease leads to all sorts of other diseases, up to and including cancer. It's not a visible disease like anaphylaxis, and not as quick, but IMO, it's just as deadly.
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    14. Reba32 added a post in a topic New To Celiac   

      depending which province you're in RaeRae, you may be in for a *very* long wait!
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    15. Reba32 added a post in a topic Malabsorption Issues   

      with continuous glutening over the past 2 months, you're going to continue to have problems unfortunately. The only thing you can do is be more vigilant, and wait for healing.
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