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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Jeffiner

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  1. I live in Wareham MA and have had an increasing number of neurological symptoms over the past year. I would love to find a doctor that has a clue if anyone could suggest someone. Thanks' alt=':)'>
  2. I avoid artificial sweetener like the plague. Unfortunately, I grew up drinking Diet Coke in place of pretty much every other beverage possible. I stopped drinking it about ten years ago but up until then, I consumed a lot of it. I avoid MSG as much as possible. I recently got a list from my sister in law listing all of the other names it can be listed under. I had no idea. As far as sweets go, it is usually stuff that contains cane sugar. High fructose corn syrup I occasionally have, not good I know. Thank you everyone for all of your suggestions. I will look into them.
  3. Thank you everyone. Ironically, my primary care doctor is a rhuematologist. My SED rate was only 27 so he disregarded any thoughts of RA. My sister had rotar cuff surgery in September of 2010 and has been in agony since. Her arm is very painful and is swollen to 150% the size of the other arm. They did two more surgeries to try and fix it. They thought that maybe she was rejecting the hardware. Last week she finally saw a doctor that diagnosed her with something called CIDP. It seems that surgery triggered it. Apparently it is very rare though and unlikely to affect more than one person in a family. I read the symptoms though.......and I wonder.
  4. Yes, I am very careful about the gluten. I have eliminated it. If I happen to get gluten accidentally, I know it rather quickly. It has been almost two years since I went gluten free. I avoid processed foods, cook from scratch, and do my very best to buy all natural organic when I do buy produce and packaged food. My downfall is a sweet tooth. I try to control myself. I wish that I could find a doctor. I have searched and asked others. I am not even sure what kind of doctor I should be trying to go to. I suppose someone that specializes in autoimmune disorders. I can't imagine what else this could be. I am in Southeastern Massachusetts if anyone knows of someone that is good.
  5. Is he having all of the same issues? The "it is all in your head" crap is so frustrating. My husband noticed a short time ago that my toes were starting to bend the wrong way. I am sure I can't make that happen in my head.
  6. I am going to try and keep it short although my story goes back ten years. Ten years ago, at 30 years old, I had a badly ruptured disc in my neck. I had a anterior cervical discectomy with fusion. A few weeks later, I got pregnant with my first child. The vomitng was severe during my pregnancy. I was put on medication to be able to keep down food. Headaches, dizziness, fatique, eczema, and slew of other issues ensued after giving birth. The vomiting continued on nearly a daily basis for the next seven years. I saw a gastro doctor several times with no findings. Finally, I asked to be tested for Celiac Disease. The result was only slightly positive. A biopsy of my intestines was negative. However, my esophagus was a mess and it was mentioned that perhaps I had Eosinophilic Esophagitis. Regardless of test results, a gluten free diet gave me relief for nearly a year and a half. Several months ago, I suddenly started having dizzy spells. My vision would blur, the right half of my face would go numb, the right side of my body would get heavy and weak, people sounded like they were talking through a tunnel. It would pass several minutes later but the facial numbness would remain for an hour or more. Stroke and heart issues were ruled out. a brain MRI showed "dural calcifications at the vertex" and I was told that was normal. My spine showed three ruptured discs and osteoarthritis. Two months ago, I had another anterior cervical discectomy with fusion on two of the three discs. I had a hard time swallowing for a couple of weeks after and my daily vomiting has returned. The surgery fixed the weakness and pain in my arm but I still have issues with dizziness, numbness in my face, and weakness in my right leg. I also have terrible pain in the joints of my toes every morning or if I sit for any period of time. It is obvious to me that gluten was making me very sick. I am still gluten free. I don't know why this is happening again though or if any of it is related. Any advice or experience would be appreciated. I am hesitant to go back to doctors. I am so tired of them trying to give me Prilosec or telling me that it is all due to anxiety. Really, I think I would know if I was anxious........for ten years. jeesh Thank you
  7. Seizures?

    Thank you ladies for the replies.
  8. I am 40 years old. I was sick for many years before it was discovered that gluten was the culprit. I had a huge list of symptoms, some of them seemed neurological. Since I have gone gluten free, I am much better. I do get gluten once in a while though by accident and I feel it. A couple of months ago, I started having spells of lightheadedness and feeling faint. The right side of my face will go numb and my right arm and leg feel heavy. Sometimes I get a headache too. This past week I have had an ultrasound of my heart, neck, and wore a holter monitor for a day. I am assuming that all was well for the results. I never heard anything. I have an appointment with the doctor monday. The fear was that I was having mini strokes. I found some information about gluten and people that are intolerant having seizures in connection to the intolerance. Some of it sounds the way that I feel during these episodes. Please share any knowledge or experience that you have about this possibility. Thank you.
  9. For the cake 7 ounces semisweet chocolate, chopped 6 large eggs, separated 2/3 cup sugar 1 teaspoon vanilla 1/4 teaspoon salt 1/4 teaspoon cream of tartar For the filling 1 teaspoon unflavored gelatin 1 cup well-chilled heavy cream 2 tablespoons instant espresso powder 1/8 teaspoon cinnamon 1/4 cup confectioners' sugar 1 1/2 tablespoons unsweetened cocoa powder 1 1/2 tablespoons confectioners' sugar For the garnish 1/3 cup well-chilled heavy cream 2 teaspoons instant espresso powder a pinch of cinnamon 1 tablespoon confectioners' sugar 5 chocolate coffee beans (available at specialty foods shops) if desired print a shopping list for this recipe PreparationMake the cake: Line a lightly greased 15- by 10 1/2-inch jelly-roll pan with foil and grease the foil. Line the foil with wax paper and grease the paper. In the top of a double boiler set over barely simmering water melt the chocolate with 1/4 cup water, stirring until the mixture is smooth, and let the mixture cool for 10 minutes. In a large bowl with an electric mixer beat the egg yolks with 1/3 cup of the sugar for 5 minutes, or until the mixture is thick and pale and ribbons when the beaters are lifted, and beat in the chocolate mixture and the vanilla. In another large bowl beat the egg whites with the salt until they are frothy, add the cream of tartar, and beat the whites until they hold soft peaks. Add the remaining 1/3 cup sugar, a little at a time, and beat the whites until they just hold stiff peaks. Stir one fourth of the whites into the chocolate mixture and fold in the remaining whites gently but thoroughly. Pour the batter into the prepared pan and spread it evenly with a metal spatula. Bake the cake in the middle of a preheated 350
  10. All the doctor said was that I had esophagitis from vomiting so much. I have the picture but there was no biopsy taken from it.
  11. Thank you that have replied for the information and support. I had a Transglutimnase IgA Autoantibodies of 4.5. A weak positive is 4-10. All the other numbers were normal.
  12. This is going on seven years. I vomit on nearly a daily basis. My IgA level was slightly positive but my biopsy was negative. I have been eating gluten free and have not been vomiting. Today, I had two regular cookies and literally tossed them. I have an appt with an allergist next month to see if it is an allergy. Occasionally without gluten in my diet, I will vomit. It is not reflux. I get terribly nauseous and light headed ten minutes after eating, then throw up up to an hour later. I have even experienced shortness of breath, which makes me think allergy.......maybe? IDK I can't eat it, bottom line. I would like to know if it is an allergy or if it still could be celiac disease because the effects are different. My intestines were okay but I had a nasty looking esophagus. Thanks for any input.
  13. Too bad we can't send Celiac Disease of on it's own after 18 years.........not that I am trying to get rid of my kids. lol
  14. I was diagnosed with a weak positive blood test. I went gluten free for two weeks then went back on the gluten for a month to have the biopsy. It was done last Thursday and I am to call for the results tomorrow. The doctor said that it didn't look like it to him but we would have to wait for the results to be sure. Only one item on my blood test was raised, could any other condition cause it to be elevated? I have had vomiting and loose bowels for several years now. I would think that if it was celiac disease, the scope would have shown damage that could be seen? I know they need to look under a microscope for damage to the villi but he said that it would usually look scalloped and mine didn't. Here are the blood results. I hope they are clear enough to read. So, was anyone told that they looked normal at the time of the scope but got a positive after it was sent to the lab?