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valeriev added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseNeed Advice For Screening 18-Month OldHi, I'm new here, so thanks in advance for your help. My husband has celiac (manifests as dermatitis herpetiformis) and our son, who DOES eat gluten, is almost 18 months old. Unfortunately, he has been at the same weight for the last six months. As an infant he was in the 80th percentile in height at 75th in weight, but those numbers have been steadily decreasing, and based on the home weigh-in we conducted I'm sure that at his next checkup he's probably going to be below the 10th percentile in weight. However, other than his failure to gain weight, he is asymptomatic--he has no diarrhea or constipation, and he is a very active, social and happy child with a good appetite.
We are determined to have our son tested for celiac as soon as possible. I have been informing myself about the antibody and genetic tests, but the amount of information is a little overwhelming, and at the same time unhelpful! My questions boil down to these: (1) Can/Should we get these tests done through our pediatrician, who seems well-intentioned by not particularly informed about celiac, or do we need to take him to a pediatric gastroenterologist for these tests? (2) How accurate are the antibody tests on an 18-month old? (3) I have read that not all laboratories are created equal in terms of celiac testing. How do we make sure that our son's sample is sent to a lab that is most thorough?
Thanks in advance for your insights, folks!
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