This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
There is a website that is kept by a pediatrician in Ohio?? that lists gluten-free meds, but I don't have it with me,,, you can do a google to find it.
The best bet is to stick with a small time pharmacy and do your homework...i.e. 800 numbers and etc. I keep a list in my car trunk.
Know the brands that are either clearly label or are gluten-free all together.
For example, Tylenol is totally gluten-free and Burts Bee's is clearly labeled as wheat germ oil. Almost all Publix brand items are clearly labeled. And I really like their small time feel. The pharmacists usually are friendly and know their stuff.
I wouldn't go so far as to lie to my insurance...but if you are relatively healthy and don't get sick very often, you may want to consider a MSA or Medical Savings Account. Before you do, read up on it on
and see if it is right for you. If you are a member of a Credit Union, they may offer MSA's as one of the perks. (or something similar)
Clark Howard is a great financial advisor who is a little nerdie but not as boring as most financial smarties. Hope this helps!
Also, some physicians give discounts for having one because you pay cash upfront. Discuss it with your doctors offices if you seriously consider this option.
The doctor does have it backwards, they are to test while ON gluten. They test for three types of IGA antibodies but you want to make sure she orders the right tests and that the lab has the knowledge to run the right tests at the lab. It took three tries before my pediatrician had it right, even though he had heard of the disease. You can also have the disease without any symptoms.
Print this info to keep on hand for any doctor or specialist...
But some words of advice...
A relationship with a doctor should be a partnership where you feel comfortable with your conversations and feel free enough to ask questions. If this is not the kind of relationship you have with your doctor, you can try to change that or go with your gut if you think that this doctor is not for you.
You aren't alone, I was diagnosed in Feb of this year and found it helpful to pack a snack bag before I leave the house. gluten-free Pudding like Hunt's pudding packs, fruit cups, apples, and cheese are some easy grabs. Also, once I was free of gluten...I found that I didn't crave these foods anymore. It used to be an addiction. Almost all of my food allergies disappeared also. I keep easy grabs incase of temptations and I decided that as long as I had my Hershey's chocolate, I could handle the rest!
It is a learning process for finding out what is allowed and what isn't, but keep your chin up...it is soooo very worth it!
I also suffer from fatigue. It can be caused by a variety of factors...magnesium deficiency, iron deficiency, lack of fatty acids. I cook with cast iron skillets for iron and a good gluten free multi-vitamin may help. I found that adding a tablespoon of flaxseed meal to my cereal, breads, and icecream has helped some. (Anything you like nuts in because it has that nut flavor.) Make sure your dr. tests for any deficiencies or food allergies, and try to add a variety of color veggies to diet. I found that eating nuts caused fatigue because it is hard to digest...as well as bean flours and stuff...eat these sparingly if they cause you problems.
Also REMEMBER, that every celiac is different...listen to your body after you eat a meal and some foods tolerated by one may not be by another.