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jenlex added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseDq2/dq8Please help me get this straight...
My antibody test results are as follows:
Gliadin (deamidated) Ab, IgA, S 2.4
Gliadin (deamidated) Ab, IgG, s <1.0
Tissue Transglutaminase Ab, IgA, S <1.2
Tissue Transglutaminase Ab, IgG <1.2
Based on these results, my Dr. said I was negative for celiac. I followed up with genetic testing. The results are as follows:
DQ2 (DQA1 0501/0505, DQB1 02 Positive
DQ8 (DQA1 03XX, DQB1 0302) Positive
DQB1* 0201, 0302
Based on these results, my doctor said I DO have celiac... I am not a doctor and I don't claim to know more than she does, but I thought you needed a biopsy to diagnose celiac. I do know that you can have a false neg. antibody test if you are IgA deficient...but I don't know what to look for. Is there something in these results that indicate a diagnosis of Celiac without having a biopsy?
FYI... about 3 months ago my son tested pos for antibodies... she said they were low, so... he isn't celiac. Further testing (biopsy) confirmed a celiac diagnosis. This was after I insisted on seeing a GI specialist.
Should I also see a GI specialist for a biopsy...or just go by the genetic testing...
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jenlex added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseHelp Me UnderstandOk.. do I have this right? I have tested positive for DQ2 and DQ8, but have had a negative antibody test. So, this means that I am not currently reacting to gluten, but COULD develop celiac at any time in my life? Also, do I understand that I got DQ2 from one parent and DQ8 from my other parent ? If this is so, then am I correct in saying that both of my parents are "at risk" as well?
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jenlex added a blog entry in jenlex's BlogHelp Me UnderstandHelp me understand this... My son was recently diagnosed with celiac. Prior to his diagnosis, I had never even heard of it before. I have been trying to track down the genetic origin in my family and have thus had genetic testing done. I have been tested positive for DQ2 and DQ8, but have had a negative antibody test result. If I understand this correctly, this means that I am not currently reacting to gluten, but could develop celiac at any point in my life. Also, does this mean that BOTH of my parents are at risk? One parent gave me the DQ2 while the other gave me the DQ8 therefore putting them both at a higher chance of developing celiac???? Do I understand this correctly?
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jenlex added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseBread Please!My 6 year old son was recently diagnosed with celiac. We are having a difficult time finding bread that tastes good and does not fall apart like old playdough or styrofoam! HELP!
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