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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Lz_erk

    • Rank
      New Community Member
    • Birthday 06/14/1983

    Profile Information

    • Gender Male
    • Interests Education, communication, independence., cooperation. Politics: libertarianism. Medicine: all, particularly circadian rhythm disorders and gluten intolerance. Entertainment: all horror/dystopia.
    • Location AZ USA

    Lz_erk's Activity

    1. Lz_erk added a post in a topic Nightmares About Teeth   

      Dreams about horrific protrusions from my skin have ceased with the omission of gluten, so have most of the odd dreams about my teeth falling out or being twisted, extended or bent unnaturally.

      In my experience, dreams about strange mutilations or damages [especially ones which are inexplicable within the dream's context or its "feel"] often have direct meaning.

      My tooth decay has slowed dramatically [or basically, stopped] since I quit gluten, and I've also been able to open my mouth, which is a plus. Thanks for the info on glucosamine, but I doubt I'll need it now.
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    2. Lz_erk added a post in a topic Anyone Recover From Chronic Insomnia After Going gluten-free?   

      [No known thyroid issues on me.] I've had Non-24 symptoms since possibly birth, definitely since 13+. I went gluten free a year or two ago and have tried orthomolecular solutions, which helped with other things, but no effect on sleep.

      I'm glad to hear your melatonin's been tested. Were you also tested for circadian rhythm disorders?
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    3. Lz_erk added a post in a topic Melatronin   

      It's been reliably causing abdominal pain. The dose was .5mg of a marked gluten-free brand of melatonin; it's a little old, but nothing in the ingredients raises any sort of suspicions from me. There might be some constipation and odd-smelling blackish stool associated also [i don't know what else could have done it]. It reminds me of the symptoms that mostly cleared up after I went gluten-free. I'm discontinuing it.

      This has also been an issue for me since I look like an obvious candidate for Non-24, yet can't comfortably participate in its typical treatment: I'm glad to leave this informational footprint here even if nothing comes of it.
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    4. Lz_erk added a topic in Celiac Disease - Sleep   

      I quit smoking about... 24 hours and forty-five minutes ago, so this ain't gonna be my smartest post. I couldn't find it on searches of the site though. Sorry if this's in the wrong section.

      I have symptoms of Non-24-hour sleep/wake disorder. That's usually treated with melatonin, like DSPD. [Melatonin is also great at knocking out the irritation that comes with being awake during smokfing cessation.]

      I get abdominal pains after taking melatonin, every time, and I don't feel well at all for a while after.

      The hypothesis is that melatonin can give problems to people with celiac disease, but information to back it up has been difficult to obtain. At least for me at this time. Anyone else have this problem?
      • 13 replies
    5. Lz_erk added a post in a topic Newbie Needs Help !   


      I was convinced after only about two weeks on my gluten free diet, but my symptoms at that point were uncommon, mostly derm and neuro. I've heard it can be a slow process, and questions on the time and capability for recovery from various levels of damage have arisen.

      On the slightly brighter side, there are things you can do to speed the process along. The most helpful link I found was this:

      Any ingredient listed on a product that contains or may contain gluten is too much. The problematic items for me included caramel coloring [in my experience, that ALWAYS means gluten] and everything involving the word "starch" without specifying what sort of starch specifically; this is particularly disappointing with prescription medications due to the jumbled systems that dispense them, and also concerning in OTC medications and vitamins -- anything labeled a "dietary supplement" may have different rules from food.

      I recommend coping with that to find specifically marked gluten free supplements for vitamin C, at the least. It worked miracles on my mental and physical fatigue and overall feeling of my state of health. What I consider an effective dose of vitamin C is probably a bad idea for someone with digestive problems, as large doses can cause diarrhea, but you should be safe for at least one gram a day, and I'd personally push the amount if it seems either helpful or harmless. I'm mentioning this because I STOPPED getting better after a few months, and saw no progress until I picked up v.C megadosing. To my knowledge, vitamin C supplementation could reasonably be more important for those with GI manifestations.

      For comparison, healthy controls often reach bowel tolerance at four or more grams per day. I could take up to fifteen grams when I began vitamin C megadosing, which is not very abnormal for a moderately unhealthy person, and now [maybe 18 months from gluten-free diet] I'm down to about 3 or 5. One of my gluten intolerant relatives who has digestive problems can take only one total gram of vitamin C a day without incurring bad diarrhea and other problems; she and I both recommend "Ester C."

      [Notice: orthomolecular medicine is officially worth as much as magic beans and voodoo, but I had nothing to lose from it, so I tried it once.]

      Anyway, the complete elimination of gluten from your diet is the highest priority. Although I identify myself as the gluten bloodhound of the family, and hopefully others are not as sensitive to it, it should help to be thorough. Setbacks were very visible to me, and each cost me easily up to a week of progress or time, in terms of healing, health, physical/mental competence...

      The worst setbacks were nothing more than the combination of hunger and "brain fog." I had to establish a routine of ALWAYS checking a product's ingredients, double-checking so as to never use unwashed cookware that was used to cook gluten foods, and never dining out.

      It's unfortunate when fatigue, malabsorption, brain fog, pain, and all the "normal" elements of life combine to take away time and energy to prepare all of one's own meals, but I would not eat at any restaurant that doesn't have a gluten free menu section. Even then, note that caramel coloring is common in soy sauce and soft drinks, starch in mustard packets, and so on.

      I hope your doctor has given thought to antiemetics and antidiarrheals... I don't have experience with those symptoms and can't think of anything to help with them beyond OTC products -- and with GI symptoms, I'd be cautious with many of those, although relatives recommend Pepto Bismol and Benadryl.

      Good luck and get better soon.
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    6. Lz_erk added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      "Gluten Paralysis" Questions
      I'm undiagnosed, and I'm looking for answers concerning my apparently rare "gluten paralysis" problem, which has been occurring on every gluten exposure following the first couple weeks on a gluten free diet [which I've maintained for two years now, and was vitally necessary and brought profound health improvements, more backstory trivia on profile].

      If anyone knows what this might be, or suffers similar symptoms, please post any relevant information. I intend to see serious light shed on this, especially if it's a problem for others. At the least, the next person to search "gluten paralysis" will FIND something, so that might save someone many months.

      Even small quantities of gluten [such as touching foods containing gluten while preparing them for others, caramel coloring from a soy sauce packet, the starch in a regular strength ibuprofen tablet] will, several hours later [2 to 6-ish?], result in an inability to move.

      It's a temporary near-paralysis preceded by about thirty minutes of diminishing mental and physical alertness. It lasts two to four hours. All skeletal muscles below my eyes become sluggish at best, and often refuse to move when I "tell" them to move. This extends to dyspnea and apnea. In bad cases [more gluten], there's also a high level of focused abdominal pain during the worst parts [the sensation insists that it's somewhere near the pancreas or stomach, but I know that abd pains often don't care if they're holding the map sideways and upside down...].

      I'm always in a rational, somewhat normal state of mind/emotion through the episode, although there's often fogginess and difficulty in thought. At least twice I've lost consciousness and woken to spend several hours with hemiparesis or aphasia [interestingly, predictably and comically, I could only form sentences from seemingly random words and vulgarities, although I could understand others]. Throughout the episodes, sweating and the urge to urinate will disappear completely, my mouth and throat become uncomfortably dry, and when I have the good fortune to have someone put a drink to my mouth [i aim for fruit juice, or water], the outcome seems improved.

      When coming out of these episodes, my movements are very shaky and the fluid situations reverse; not alarmingly, but unusually. Those effects may or may not be due to "holy expletive, why the expletive does this keep happening" syndrome, which has been difficult [or perhaps impossible, by mechanism] to avoid. For almost a week afterward, I experience fogginess, non-muscular fatigue, low physical/mental energy levels, however one wants to put it, then I'm gradually back to normal again. [so far. As far as I can tell.]

      Most importantly I want to know how this is happening, so I can better prepare to prevent or minimize damage in the future. Since it's also been the source of a lot of... really lousy interpersonal misunderstandings around me [family, marriage, legal, financial, etc], it would be good to know of any way I might get a diagnosis without subjecting myself to possible brain damage more than once. Even if once is the only way I can do it, I'd like to have something helpful ready to be used.

      Any ideas are welcome.
      • 2 replies

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