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About StephanieL

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  1. Sorry it's not working . If you google the article in the first post you should be able to bring it up. It's from 3 of the leading Celiac Meds Docs so really worth a look.
  2. This is a great information piece on Celiac in Kids esp, followup care. Sorry, the link won't work. You can google this to bring it up: Celiac Disease in Children: Experts Clarify Diagnosis and Management Recommendations
  3. I was at a conference and we were talking about these kinds of tests. Unless there is VERY obvious gluten in something, these tests aren't going to detect hot spots.
  4. The flu shot can very from year to year and perhaps it's different over The Pond.
  5. You would know if it was an allergy vs. an intolerance. There are no contraindications for the flu shot with egg allergies. That nurse was misinformed. I was at a conference last week and this specifically came up- there is NO reason someone with allergies can't get anything (besides the Yellow Fever vaccine).
  6. If she's unwilling to wash then the second option would be a wet wipe (we use Wet-Ones unscented). The detergents and physical action of wiping on the wet one will remove proteins. Again, washing is best but wet-ones are n second option. *this is based on the same principal that it removes peanut butter and oils from hands of those who rubbed it all over their hands and then tested for the presents of it.
  7. Some people with Celiac feel better off of dairy when first diagnosed. UNLESS you have seen a server reaction, there isn't a reason to test for allergies. There are NOT any reliable tests for intolerances. So unless you are having specific issues, you may be better off gluten-free for 6 months to a year to see how you feel and if you think you need to drop anything, try dairy first.
  8. lol Yes, yes it is. I don't rely on that-just as a side note but if they were serious about keeping that designation, I would think they would crack the whip to MAKE them own up to it.
  9. Then perhaps they should pull the Celiac designation
  10. I though they had and while there was an issue at the beginning, that had fixed it? Wasn't there a threat of legal action over it? Blurg. Now what to do It's become a favorite here.
  11. Are the Canadian ones made here in the US? I thought they sorted out all this when they first introduced them here.
  12. If ti says gluten free, I would assume it is. If you had a reaction to it, there are a few things that could be an issue. May have been something else you are. Perhaps you CC'ed with when getting it out. Maybe there was CC at the factory. If you suspect they are not gluten-free, you can get test strips for them. Your reaction, being you have Celiac, was not an allergic reaction. It's an autoimmune one, they are not the same thing and don't work the same way. I know many people who are gluten-free and who have actual allergies and many use these vitamins with no issue. Again, if you suspect they are the causes I would suggest testing them yourself or at a lab or bring it to the attention of the FDA.
  13. How were the allergies diagnosed? I only ask because it's highly usually to be allergic to it.
  14. This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't. That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx. We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons. Again, even family is different and you have to find what is best for you!
  15. Diagnosis for kids is different than adults. Also, there is often a need for a firmly documented diagnosis for many reasons (like for school accommodations and dietary accommodations in school/hospital). To the OP- is it ideal? No but is it the way they need it done. I would call to get on the cancellation list at the GI or have your ped cal as mentioned above but if you need to wait, I would keep the kiddo on till all the testing is complete.