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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About StephanieL

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  1. Can My Child Help Cook My Food?

    What is your concern in having the child help?  As long as they are washed up and not spitting in the food (if you really at that worried have them wear an apron) there isn't any reason they shouldn't be able to help out!
  2. Dealing with college

    I would start with your colleges Disability Department. They may be able to guide you. Is there a reason you are having such bad symptoms?  Are you on gluten while awaiting tests?  If you are so bad that you can't leave the home there must be more your Dr. could be doing.
  3. It would be unlikely that you would have developed a wheat allergy after just a month off of wheat. It is not impossible but not likely especially if you haven't had those symptoms prior.   You could get the allergy test but know it is HIGHLY inaccurate (50/50 on a positive test).     Is your Dr. dx you based on the return of symptoms and your genetic test?  Any possibility you could get blood testing now and even better the endoscopy?
  4. While there is no corn in the EL chips there is a possibility of cross contact with corn from some of the other ingredients.     "Our other products do not contain corn as a direct ingredient, but some ingredients (including applesauce, brown rice flakes, brown rice syrup, chia flour, citric acid, cranberries, date paste, expeller-pressed vegetable oil, buckwheat flour, millet flour, freeze-dried raspberries and strawberries, lemon granules, malic acid, natural flavors, palm oil, maltodextrin, quinoa flakes, puffed amaranth, rice bran, rice crisps, roasted hulled pumpkin seeds, rosemary extract, sorghum flour, sunflower seed butter, vanilla, vegetable glycerin and xanthan gum) have corn present in the facility from which we purchase the ingredients."
  5. There are no scientific tests for ANY form or level of intolerances.  A detailed food long with symptoms check when reintroduced is the only way to determine an intolerance.  
  6. They may not test so they are following the new labeling guidelines which is why you don't see gluten-free on the packaging.  We use them with no problem. 
  7. Food allergies

    For those saying they have allergies, I do hope you have Epi pens as they are they FIRST and ONLY way to stop an actual anaphylactic reaction. 
  8. If there are things in her diet that bother her, removing them for a time then trying to reintroduce them when she's feeling 100% would be the best way to look for a sensitivity. There are not reliable medical test for intolerances.  Many people with Celiac do have issues with dairy and sometimes soy that may rectify after all testing is complete and they remove all gluten from their diet but that would be if she has celiac disease which again isn't very clear.    
  9. I am sorry about all this. The first thing you need to do is get to a GI Dr. for testing and a scope.  Even with the high numbers, you really should have a "baseline" biopsy and most Dr's are going to insist on it.  The bad news is that your daughter needs to be on gluten for that to happen.  I am sorry your Dr. wasn't more clear on the appropriate way to test for Celiac.  Doing the biopsy is the gold standard and even top Celiac Dr's who with adults so with a "4 out of 5" criteria- they want a positive scope to dx.  How long as she been off gluten?  We were in much of the same boat as you were when my kiddo was 3.  Super hight tTG's, fairly asymptomatic (he couldn't verbalize the pain really but was a terrible sleeper and had bad GI stuff we didn't know was abnormal as he was our first).  He was positive for the genetics but his biopsy was negative.  Fast forward 5 years and still elevated tTG's with no explanation and a trip to a world class Celiac expert- they want a challenge and scope.  I only tell you this because a reintroduction and scope would be easier now than say 5 year down the gluten free road.   (Again, this may not be your road and I would support you in whatever you would decide is best for your family but just putting it out there that this is how these things can go).   Anxiety is often associated with Celiac disease.  Hopefully that will decrease in time though with kids there are often developmental issues psychologically speaking-  often with kids who have "food related" issues the ages of 9-11 seem to awaken some turmoil in them.  There aren't a ton of good child psychs who get the food issues but perhaps you have some in your area.  
  10. If it's just one test, I wouldn't get overly crazy, yet.  Were the labs done at the same lab by the same company? They didn't change who does the testing or which brand of testing medium they use?  I would think it was lab error if you are reasonably certain that he isn't sneaking/getting into anything.  I would try and redo the test in maybe 3-6 months and see how things look.  I would want to see a trend (3+ elevations) before I would freak out.   Is it easy as a Mom NOT to freak?  Nope. Not at all I'm sorry you are dealing with this.  FWIW, I chased and chased and chased down answers.  Flew to the best of the best and still haven't gotten any answers on elevated labs after 5+ year of gluten-free living. 
  11.     This is the only thing that is not correct.  There are NO laws (allergy or otherwise) that require the listing of may contains/processed in a facility warnings.  
  12. Help - Newer Diet

    Coconut oil/Cod liver oil and the seeds would put many in the bathroom all weekend depending on amounts. I would not jump to an intolerance.  I would think too much too fast. Also, I would be concerned with the nutritionist who suggested all those things with no warning of the GI issues that may happen with there introduction of all that!
  13. Did you see a GI doctor or a chiro?  A lot of the things you are talking about are more in line with a holistic practitioner than a GI Dr. 
  14.   Can you site this research? I'm sure there are some children who fit this but we are speaking of Celiac disease here and kids under 6 months wouldn't have been getting a ton of gluten if any.  One of the reasons it is difficult to dx kids is because they don't typically have substantial damage at a young age.  
  15. Epi Pen STAT!  Seriously, with the things you described you need a set (always carry - ALWAYS!)  I hope you get things figured out!