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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

StephanieL

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  1. A year isn't a ton of time of time for healing. I would see how the next set of labs looks.   It was 5 years after dx before the Dr's were really even a little worried about my kiddos growth and adding a nutritional supplement. 
  2. Do the biopsy ASAP and keep her ON gluten till it's done. You will always have lingering thoughts if you don't. Also if you are in Boston, one of the leading Celiac experts is there. He'll recommend the biopsy I'm 99% sure!  
  3. A scope is always considered the gold standard for Celiac testing. 
  4. Goya Products

    They make a lot of products. Your best bet would to be email/call them and ask about specific products. 
  5. Growth charts aren't really all that accurate and of those that are- the ones from the WHO are much more accurate and up to date.  I would check those if anything.   Also, it's not the chart that you should look at (as it's a VERY loose guide).  What YOUR KID'S curve is is what's important.  Are they trending upward along the same lines?  You have said you and DH are small people.  I wouldn't expect your kiddo to be 6'10 and 350!   If you are concerned and your kiddo is getting an adequate gluten to test then maybe that will alleviate your fears if you still have worries.
  6. I would call and talk to them. Sometimes you get better response from them if you do.  You could also always add peanut butter cups/mint flavoring and chocolate chips to the vanilla slow churn if you are that concerned.
  7. I love Edison Grainery!  They have amazing products and are great to work with.  They have an amazing chart of what is processed in which areas of their complex. Very through!   http://edisongrainery.com/store/grains/25-organic-corn-polenta-corn-meal.html
  8. hershey kisses?

    This may be of interest as well.     http://thehill.com/blogs/congress-blog/technology/253882-using-technology-to-get-smarter-about-accessing-foodhttp://thehill.com/blogs/congress-blog/technology/253882-using-technology-to-get-smarter-about-accessing-food
  9. I was asking because they are two completely different things and work by different mechanisms so I was unsure of which you are classified by.  I think we all feel for any parent dealign with issues of a kiddo not feeling well.  I think this is a "look for horses not zebras" kind of thing.  It's hard not to go down a rabbit hole as a parent (or anyone looking for answers).  
  10. Yes. I am aware of that.  From a labeling perspective oats are not under the gluten umbrella.
  11. 1) Oat's are not a gluten containing grain but often comes in cross contact with gluten.  They may use gluten free oat grass. I don't know. 2) Gluten is NOT considered one of the Top 8 allergens in the US.  Wheat would been to be listed, rye and barley (and oats that come into cross contact with gluten grains) do not need to be listed.   Gluten free is wheat free. Wheat free/allergy free/friendly is not necessarily gluten free. 
  12. So do you have Celiac or do you have a gluten allergy?   Kids often present differently and the criteria for dx is often not the same as for adults.  I'm not sure I would think refractory over other issues like thyroid or potential cross contact. 
  13. My kid was dx at 3.  Just turned 9 and still doesn't have a "normal" tTG.     We have done EVERYTHING to try and figure it out. Tested every food I didn't know was 100%. Spoke to tons of manufacturers.  All this in a house that was 100% gluten free.  Went onto thyroid testing which was off.  Started thyroid meds.  I thought that was the trick.  Nope.  Spent thousands to take kid to the top Celiac Dr. in the country and guess what- Still no help.   That was a year and a half ago.  His testing is still high. His Dr's say stay the course because honestly, with all we've done there isn't anything else we could do.   Frustrating as hell for sure but I know we've done all we can to try and figure it out.  Hang in there!