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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About StephanieL

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    1. StephanieL added a post in a topic Son Celiac For 3 Years Iga Increasing   

      If it's just one test, I wouldn't get overly crazy, yet.  Were the labs done at the same lab by the same company? They didn't change who does the testing or which brand of testing medium they use?  I would think it was lab error if you are reasonably certain that he isn't sneaking/getting into anything.  I would try and redo the test in maybe 3-6 months and see how things look.  I would want to see a trend (3+ elevations) before I would freak out.  

      Is it easy as a Mom NOT to freak?  Nope. Not at all I'm sorry you are dealing with this.  FWIW, I chased and chased and chased down answers.  Flew to the best of the best and still haven't gotten any answers on elevated labs after 5+ year of gluten-free living. 
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    2. StephanieL added a post in a topic Hla-Dq2 & Hla-Dq8 Blood Tests Positive For Celiac Is This Definative?   

      This is the only thing that is not correct.  There are NO laws (allergy or otherwise) that require the listing of may contains/processed in a facility warnings.  
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    3. StephanieL added a post in a topic Help - Newer Diet   

      Coconut oil/Cod liver oil and the seeds would put many in the bathroom all weekend depending on amounts. I would not jump to an intolerance.  I would think too much too fast. Also, I would be concerned with the nutritionist who suggested all those things with no warning of the GI issues that may happen with there introduction of all that!
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    4. StephanieL added a post in a topic Hla-Dq2 & Hla-Dq8 Blood Tests Positive For Celiac Is This Definative?   

      Did you see a GI doctor or a chiro?  A lot of the things you are talking about are more in line with a holistic practitioner than a GI Dr. 
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    5. StephanieL added a post in a topic When Will Growth Go Back To Normal? Do All Kids Have Catch Up Growth?   

      Can you site this research?

      I'm sure there are some children who fit this but we are speaking of Celiac disease here and kids under 6 months wouldn't have been getting a ton of gluten if any.  One of the reasons it is difficult to dx kids is because they don't typically have substantial damage at a young age.  
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    6. StephanieL added a post in a topic Celiac And Allergic To Wheat?   

      Epi Pen STAT!  Seriously, with the things you described you need a set (always carry - ALWAYS!)  I hope you get things figured out!
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    7. StephanieL added a post in a topic Starting New Preschool   

      It's becoming more common for children to have 504's for Food Allergies and Celiac disease.  I won't say it is common yet but more and more it is happening.  A lot parents don't know to ask for one and get IHP's.
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    8. StephanieL added a post in a topic 10 Year Old Son's Labs   

      Not a lot of information there. I was hoping for something a little more substantial. What's long term? How much? Oral? Inhaled? Does it matter the route they are given?
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    9. StephanieL added a post in a topic 10 Year Old Son's Labs   

      Do you have a recent article for this? I know this use to be a thing but there hasn't been any new research on this being the case that I have seen (last stuff I saw was some mention of stuff from 20+ years ago).  Thanks!
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    10. StephanieL added a post in a topic Is This Cross Contamination?   

      "Of course not, but what if I touch the handle to pour my water, and THEN I touch my gluten-free waffles? I will then CC myself. Why is this so hard for everyone to grasp?"
      Use a fork.  Or wash right before toughing the things you will be eating. 
      My CHILD (read touches everything in sight) has Celiac as well as life threatening allergies to several things.  Meaning an exceedingly small amount can/has landed him in the hospital.  He has not ever had an issue here at home or while out and about with 300+ bread, cheese, yogurt, peanut butter, pizza, hot dog and hamburger eating kids at school who I can almost with 100% accuracy assure you do not wash up after they eat every time. This is NOT AT ALL to mean we are careless in any way with CC. I call manufactures and find out how things are made, on what lines and packaging details.  We have dedicated cookware and utensils.  We actually are 99% gluten-free and allergen free aside from several items DH and I keep out of sight from the kids for evening snacks. So we are very careful. In the circumstance you described I would remind DH he really should wash after eating (esp. in the home) and clean off the jug with soap, water and a paper towel. No reason to get into a disagreement about it.
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    11. StephanieL added a post in a topic Is This Cross Contamination?   

      If you are going to lick the handle or your hands after he touched it, sure.  If not, wash and carry on. 
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    12. StephanieL added a post in a topic 10 Year Old Son's Labs   

      He does not consider anything but a positive biopsy as proving Celiac for kids.  I don't know his reasoning (and I have TRIED to understand it and talk to him about it but no one can give me a real reason).
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    13. StephanieL added a post in a topic Is It Bad For My Daughter To Go Gluten Free W/no Diagnosis?   

      You should have her tested. Yes.  There is a chance she may test negative now but you should have her tested before removing gluten, absolutely. Why? Because if she's positive you need to know it's a life long, gluten free life. You will need a diagnosis if you need accommodations when she is in school.  For any future medications or hospitalizations, you need to know. If you don't test her now and want to test later, there is the hassle of a gluten trial which can be really hard if there are issues to force a kid to eat something that makes them feel like crap for a minimum of 6-12 weeks.  
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    14. StephanieL added a post in a topic 10 Year Old Son's Labs   

      I know I have mentioned this about a million times but want to restate, Dr. Fassano DOES NOT feel the 4 of 5 is enough to dx a child.  
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    15. StephanieL added a post in a topic Cheerios   

      They have an endorsement from the celiac disease association or something and they test post production to less that 20 PPM which should be fine for most people with Celiac. 
      I found them at our grocery store yesterday and my kids are in love! Haven't had them in the house for 5+ years and they are happy as clams and no complaints. 
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