This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
That's my worst nightmare and why we almost NEVER eat out. I'd have been tempted to stay there and let them SEE what happens when they don't take your gluten free needs seriously... but, for me, it's so severe and explosive (from both ends... sorry for the TMI) that they'd have to scrape me off the floor!
Did you contact the restaurant after the fact and let them know what happened?
When hubs and I married in 2006, I made multiple recipes of the most delicious gluten-free carrot cake and baked them in 3 pans of graduating sizes... 3 tiers. I think the bottom tier (the biggest) took like 3 times the recipe, the middle 2 times and the top one recipe. Cream cheese frosting and flowers decorated it and it was delicious! One thing I'll say is that we had to put straws thru the layers to keep them stable... it was a dense and amazing cake. Wish I had a photo!!
I'm not doing actual low carb, but I'm always trying hard to avoid things like bread, pasta, and obvious simple carbs. I'm such an addict!! I try hard to go for lean proteins, tons of veggies and lots of fruit, and occasional small portions of rice, etc.
My youngest daughter... the one who ended up with the most severe celiac of all of us (me first and then, over time, all 3 of my daughters) used to complain of tummy aches all the time. I used to tell her that if it wasn't flying out of her mouth or I could see it in the toilet... she was off to school. Poor thing probably suffered for all those years.
I love the Namaste crust mix. The entire bag is supposed to make 2 big crusts but I make it into about 5 or 6 smaller ones, par-bake, and freeze them. If I don't have parchment, I put them on the aluminum foil with a non-stick side. They both work beautifully.
I was diagnosed at age 49 after only a month or two of huge digestive issues (unrelenting diarrhea). No one else in my immediate or extended family has it. One by one... my three daughters were diagnosed. Middle daughter was about 27. Her doc told her she was lucky to be diagnosed at such an early age because she would avoid lots of later health problems. She said, "Isn't that like saying it's good luck if it rains on your wedding day? Like what else can you say? It sucks to be you??" Youngest daughter was diagnosed next... and hindsight showed me that the stomach aches she had growing up were real and not just a way to get out of going to school. Hers was so severe and with so many debilitating symptoms, she lost 60 lbs. and through her OWN research and trials and errors (one of her docs said to her, "Oh great... you've been on the internet. Why don't YOU tell ME what you have?") she was able to remove foods (nightshades, oxylates, dairy, and many others) and allow her gut to heal. Oldest daughter was diagnosed at about age 30... while dealing with metastatic breast cancer.
Thank goodness they grew up in a cooking home. Despite all of the difficulties and obstacles, they can cook and feed themselves well!
I simply tell people that if I don't cook it, I can't eat it. That gets well-meaning friends off the hook. Call me paranoid... I don't care! I have two friends/neighbors who are amazing cooks and absolutely "get" the whole process... I'll happily eat at their homes, but otherwise I bring my own.
My youngest daughter has had a medical marijuana 'scrip for years for symptoms like nausea and vomiting and to help stimulate her appetite when she was confined to only 5 foods she could tolerate.. She lives in Oregon, lucky girl. She once walked into a dispensary w/ her trash can in her hands and begged them to help her w/ the severe nausea. They sat her down and gave her a lozenge. Within minutes, she was better. I don't know if you're in one of those enlightened states, but the dispensaries are filled with really knowledgeable people.
I've read several articles over the last year linking GMOs and Monsanto crap and the incredible rise of celiac disease in people. It's made me more aware and willing to eat cleaner and healthier... no matter what the cost in my rural area of the U.S.
Ahhh!! That explains the incredibly delicious burger I had at Red Robin! Our server said it was a Udi's bun but it was so NOT the Udi's bun I can buy at the health food store! I made him SWEAR that it was gluten free cause it was just too pretty!!
We're small town too... in Arkansas. While the two healthfood stores carry a lot of stuff... it's very expensive and I've ordered a lot of stuff from that online store named for that big So. America river over the years. Ordering things like Tinkyada pasta in bulk (12 packages) and the flour I like to use for baking (Better Batter) and bread mix (Pamela's) is less expensive that the stores and they bring it to my door! We don't eat out either. I've just had too many bad experiences... having the long conversation w/ waitstaff and managers only to get my order and finding it filled w/ flour tortilla strips or other no-nos. It's just not worth it. We eat simply and (mostly) freshly and rarely buy anything of a processed nature. It's difficult but doable!