This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I do live in IL and would be happy to give you some encouragement. You said you were new to the gluten free lifestyle so you need to understand there is a bit of a learning curve to arrive at a place where you feel that you CAN eat what you used to eat, it's just been tweeked a bit! I can relate to the feeling but have realized that I really don't have to "live without" all that much. I live gluten and dairy free and can tell you I love to cook and bake and I don't bake or cook from a box. You are welcome to contact me by email and I will be happy to give you some support and help with getting back to feeling better about life and food!
Hippo, I certainly can hear your pain. You're in a difficult situation to deal with since you're fairly captive to the food that is provided you. It stands to reason that even though you feel you have been on a gluten-free diet for 6 months you are most likely continuing to consume hidden gluten in your food. I used to have intermittent breakouts of DH on one butt cheek in the same place and it usually correlated with having eaten something I didn't realize had wheat gluten in it. I pretty much could count on it when dining out if I wasn't diligent about asking questions and sticking to what I knew was gluten-free. Good rule:When in doubt, do without. I haven't had a out break for months now and it is because I cook 90% of my own food at home and when dining out, I'm super careful. I have never taken Dapsone due to various side effect risks I'm not willing to experience. People who have never experienced DH have no idea what hell it can be.
In all the reading I've done over the past year and a half, one thing sticks in my mind when it comes to gluten intolerance. "Your never just a little pregnant. You either are or you are not". That translates into if you're gluten intolerant, you are gluten intolerant all day, every day. You can't eat a little bit here and there and hope to see relief. It's just not going to happen. I would suggest that you research deeper into what foods you are eating and check for wheat gluten. There are great sites out there that list hidden gluten (www.livingwithout.com is one) that you should be on the lookout for. The more you can eliminate the better your chances of improvement are. Don't give up, there is hope. Ask for ingredient info (if you haven't already) on all the foods that you are provided so you can begin to find the culprits. You must be proactive or you will remain in the spot you're in.
My quality of life changed one month after going gluten-free/CF. My only regret is that it took 45 years to figure it out!
Went gluten-free Nov.'08
Went Dairy Free Dec.'08
Officially diagnosed Gluten/Casein Nov.'09