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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About cap6

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  • Birthday 01/09/1951

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  • Gender Female
  • Interests kayaking, walking, rving, crafts & loving life with my partner of 18 yrs & our furkids!
  • Location Oregon
  1. Food products like hot dogs, cookies and bread all have multiple ingredients which can play hell on a gut that is still struggling to heal.  Stick with fresh, whole, clean foods for at least 6 months and then slowly introduce one of your favorite goodies, like a hot dog, and see how you do.   If a food product has ingredients, then it is not a whole clean food.  Bake a piece of chicken with some spices, roast or steam some veggies, bake a sweet potato & pour a little coconut oil on it.  Yummy, good for you and ingredient free!  Help for your healing gut!
  2. I was going to say the same as bartfull... Clean, whole and fresh foods.  Nothing processed.
  3. This happened to me last week.  Last time I was glutened was 2 years ago and I was so sick I wanted to curl up & die.  Last week we ate out at out usual restaurant, I had my usual pasta dish and down at the bottom of the bowl was a wheat noodle.  I looked at that & felt the cold chills of fear!   Of course the manager was beside himself over how it could have happened, but long story short....I did not get sick.  I was a little extra tired and blah feeling the next day, but nothing I could point my finger at and say glutened!!    My only thought here is that maybe (I hope, I hope) my guts are finally healing.  Not that I would ever knowingly cheat, just, hooray that I am healing. 
  4. There is no one answer to this question for sure.  Time.  All I can say is time.  And, as I've said before, the older you are when diagnosed and the longer you have been sick, the longer the recovery time.  I am five years since diagnosed.  In the beginning I was no longer able to open a wine bottle.   My point being, there was no longer any strength in my hands. It took me about three years to recover my strength, heal my gut, learn how to eat clean (only) foods.  But, that said, everyone is so very different.  You may make larger, faster strides than someone else.  I was 58 when diagnosed and very sick.  Age (a huge factor), length of illness all took a toll and hampered the recovery time.   Age alone can slow one down.  Add an illness and recovery drags on.  You are young and if you carefully follow the diet (life style) you should see improvement.  Remember, your gut is like a raw sore.  It needs time to heal.  Youth is on your side.  You will start to absorb nutrients as you heal and will buff up again!  
  5. covered food in a micro should be safe. It is more likely that it was some of the ingredients in the fries that bothered you.
  6. Thank you for your responses. I knew 1 week was not near enough for Celiac but it is good to know about the Eosinophilic Esophagitis. Thank you. The test is tomorrow so we will see what happens as she won't do the gluten test. The main complaint was the almost year long diarrhea so we will see what happens. I am not happy with the high dose of acid reflux med they have her on....sigh. Thanks for the feedback. It really helps!
  7. Is anyone familiar with or know if Barrett's Esophagus is related to Celiac/gluten intolerance. The reason I ask is because my partner had bad diarrhea for a year, starting in May 2014. We maintain a gluten free home for me but she would eat gluten when out and about. Finally after two scopes, in January 2015 she finally was diagnosed with Barrett's Esophagus and as gluten intolerant. She was told to be rescoped in June to check on the progress of the Barrett's. (ok, so we are a little late with the rescope!). She has been gluten free since January and in May the diarrhea stopped. !! (we're older so our bodies prob take longer to heal???!) To make a long story short ~ we moved and the new doctor wants to rescope to check the Barretts & the gluten intolerance, no problem there, but the doctor wants her to eat gluten for the week before the scope. That I don't get. One week of eating gluten is going to show what? Irritate the esophagus? It certainly won't damage the gut enough to show anything. Any thoughts? The scope is on Tuesday. A couple of days ago she has a Baskin brownie bites ice cream and surprise! Back came the diarrhea. She is refusing to eat any more gluten, she doesn't care what the doctor wants as says she is no way going back to all of that agony. I pretty much support that but still don't understand the doctor wanting a week of gluten eating. Any thoughts or imput? Thanks.
  8. Running dishes through the dishwasher is perfectly safe . And they do not just splash dirty water around.
  9. I couldn't agree more bartfull! Fast food places scare the !!! out of me. Hands touching buns, touching, touching. Major C.C. risk there.
  10. Ouch

    Central Oregon is an awesome place for celiac friendly dining!
  11. A little over a year ago I attended a one day workshop led by Shelley Case, author of "The Gluten~Free Diet, A Comprehensive Resource Guide". She has worked extensively with both the U.S. FDA and Canadian version (CDR - I believe I have that correct) in regards to gluten free labeling. She is extremely well educated and knowledgeable when it comes to the Celiac disease. According to her, when a product is labeled gluten free, less than 20ppm, then the company has indeed tested for that. She further stated that the majority of company's do, in fact, test for less and most labeled products have far less than the 20ppm even tho not so stated on the label. A food product company does not want gluten free/celiacs to consume their product and then get sick. It makes sense. Eat a mislabeled product consumer get sick, they stop buying said product. The food companies want you to buy their product. A consumer also needs to keep in mind that when consuming a gluten free food product you are also consuming a list of other ingredients (maltodextrin, maltose, soy, xantham gum etc) any number of which can cause "glutend" type symptoms. Also, if you safely consume a food product that has 5ppm but eat four or five more food products all containing the same 5ppm then you can exceed what is considered "safe" over the course of a day. For what it's worth. For myself, everything Shelly Case had to say made perfect sense.
  12. The celiac Disease Foundation just did an article on the reasons why some celiacs have problems with even glutyen free oats. It has to do with a protein in them that is very similar to wheat. I will try to find it and post it. It was on my fb so will have to look back a few days worth.
  13. If the package says gluten free and you have not had any ill effects then they are probably fine but if you have questions do call the company.
  14. Been Eating Wrong

    Every time you cheat you do more damage to your body and each time it may take a little longer to heal. It's your choice.
  15. Burning?!

    As your body heals symptoms can change. "Can" change. Everyone is different. My symptoms at 6 months were different from at 5 years.