This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
[quote name='FoOdFaNaTic' date='31 January 2010 - 04:07 PM']
I have a solution!!! I am sixteen and found out a year ago around Christmas time that i had celiac disease. Since going on my diet i have been feeling a lot better. I used to have the same symptyms your son had. Not the real noticeable ones- things like being tired all the time, dark circles under my eyes (they still haven't gone away!), being really skinny (I had a delay in my growth), and eating a ton and not gaining an ounce. I have experimented with a lot of breads (and a lot of gluten free baked goods for that matter) and have wanted to throw it all up they tasted so bad. But, fortunately, my aunt (who has celiac's) showed me this brand called kinnikinnick. Their bread and bun mix makes excelent breads for sandwiches and things like that. I absolutely love it!
I believe in testing for a couple of reasons. First, if it is Celiac then maybe his dad would test also. As my pediatric GI put it "Don't put a life long diet on your son without a diagnosis." Second, if you have a diagnosis and can take the medical deduction on your taxes...you can claim all your gluten free food. For me it is about $1500 to $2000 extra per year to deduct.
Oh and about school...at the beginning of every year I type a letter from my "son" saying he has Celiac. The letter explains what Celiac is and how having any gluten can hurt him very bad. In it he asks all the parents to please call his mom and let her know if they are going to bring in any goodies so his mom can bring something for him so he doesn't feel left out. This has worked great for us. I keep gluten-free cupcakes in the freezer so he can grab one for school if they are having a party or anything. I also have meetings with the school administration and I have found if you tell them 1 in 7 Celiacs that don't follow the diet may develop intestinal cancer...they really get the message. (Those are the last stats I've read, however, that was awhile ago).
My son was diagnosed at 21 months and was VERY ILL. I remember it was about 2 months of being gluten-free until his symptoms totally went away. He was lactose intolerant so had him on milk without lactose for 1 year, however, cheese didn't bother him. He is now 9 and is in the 100% for height and weight. We have been very lucky, however, because he has no other food allergies. A ton of environmental allergies though.
We eat out quite a lot but we have certain restaurants we go to all the time. Remember always to ask if they have a dedicated fryer for chips and/or fries (if you check the label). Remember that Mexican restaurants use chicken soup base in the rice. Some bases are gluten free and others are not. Make them show you the product.
When traveling I bring along a combination toaster/convection oven as well as a fryer that also boils water. That way we can always do gluten-free pizza and mac and cheese.
I hope your child feels better soon. I know it is hard but it does get easier.