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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About xyz789

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    1. xyz789 added a post in a topic Not Sure I Should Proceed With Upper Endoscopy   

      Thank you for the responses you've sent so far. I called my family doctor to get the gluten test scores. Here is what I found out from them.

      My Igg=27 (anything over 17 considered positive)
      My IgA=<3 (anything less than 11 considered negative)

      Doing some internet research it looks like if your IgA is positive (mine is negative), then 80% of these patients have Celiacs. If it's negative like mine, 71% are truly negative for Celiacs.

      For the Igg it says that there are more false positives with this one than the IgA. It says a false is a false, but that it's very possible that a positive Igg is a negative for Celiacs.

      Does anyone have more information for this?
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    2. xyz789 added a post in a topic Not Sure I Should Proceed With Upper Endoscopy   

      Peter - thank you for merging them. I didn't see the first one post (didn't realize it was not immediate) and thought I didn't do it correctly, so I typed it out a 2nd time.
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    3. xyz789 added a post in a topic Not Sure I Should Proceed With Upper Endoscopy   

      When I went to my family doctor for my normal checkup and blood work (to test thyroid levels -- I have hypotyroid), I asked to have blood tested for gluten intolerence. He asked me if I had any of the normal symptoms and I said no, not really. He asked why I wanted to be tested and I told him that I had a friend who was Gluten Intolerent (can't remember if she has Celiacs as well) and that she never had the regular symptoms. She had hypotyroid (which I have) and just felt yecky. My friend and I went on to talk about gluten-free diets and I told her that whenever I did cleansings and followed a gluten-free diet that I always felt so much better. We also talked about my son who has always had digestive problems and I wondered out loud if gluten had anything to do with it. So, my friend said next time you go to the doctor, just ask for the blood test and if you're positive, then maybe that could explain your son's issues.

      So - I told my family doctor all of this and he wrote down that I suffered from diarrhea (which I don't), so that he could run the test.

      The test results came back mixed and showed some things to be positive, but the administrator said sometimes they're a false positive and they sent me to a GI.

      I went to the GI yesterday and they want to do an upper endoscopy. I was a little surprised! I went from "possibly false positive" tests results to a doctor wanting to do an invasive procedure where I'm put to sleep? I'm having serious doubts about this.

      The only things I have that might have ANY relation are: hyprothyroid, gas (all the time...), vertigo (seasonal allergies?), the skin around my eyes if often very red and very dry/cracking, my mother has both muscular dystrophy and Parkinsons.

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    4. xyz789 added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Not Sure I Should Proceed With Upper Endoscopy
      A few months ago I talked to a friend who has celiacs disease and she talked about how she didn't have any "normal" symptoms and it was all kind of a fluke that the doctor's found out that she had it. I talked to her about me having a hypothyroid and that my son has always had GI issues. She said that next time I go for my normal blood work just ask to have the blood test run. Then, if I was positive, have my son checked.

      So - I go to my family doctor for my normal tyroid blood work and asked about the anti-gluten blood test. I sensed my doctor thought I was crazy when I told him that I don't have any of the "normal" symptoms, but he wrote down that I had one so that he could run the test.

      The test results came back mixed, but there were some things that tested positive for it. I haven't seen the #s and I'm not sure showed positive. His office sent me to a GI.

      Yesterday I went to the GI and told her exactly what I've said above. It was kinda on a whim that I got the blood test done, that I don't have any "normal" symptoms, but am always gassy...that's really the only thing. I also told her that I DO feel better when I'm eating a non-gluten diet (when I'm do a cleanse...) than I do when I'm eating gluten.

      Anyway, she said that she wanted to do an upper endoscopy.

      Does this seem strange to anyone else but me and my husband? I feel like it would be similar to me walking into a doctor and saying a friend convinced me I have a broken toe, don't have any signs of a broken toe, but him wanting to run x-rays. The only difference is that I need to be knocked out for the endoscopy.

      The only things I can think that are going on with my body or in my family that could have SOME relation are:
      I have hypo-tyroid
      I have gas all the time
      I have high blood pressure
      I have occasional vertigo (could be seasonal allergies?)
      I have dry eyes and sometimes severe dryness/redness around them (seasonal?)
      My mother has muscular dystrophy
      My mother has Parkinsons

      • 7 replies

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