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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About labrisbin

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    • Gender Female
    • Location Upstate New York

    labrisbin's Activity

    1. labrisbin added a topic in Gluten-Free Restaurants   

      Eating Gluten Free In Stockbridge, Ma?
      Does anyone know of any place(s) in or near Stockbridge to eat gluten free? We're taking a little trip there on Saturday. Thanks for your help!
      • 0 replies
    2. labrisbin added a post in a topic Defatted Wheat Germ Gluten Free?   

      I called the company this morning and was curtly told that I needed to contact my health care provider. I was informed that Standard Process sends the gluten free status of its products to the health care provider only. I mentioned that their statement on their website regarding the gluten free status of its products was quite ambiguous. The customer service rep said she agreed. I asked what would happen if the information Standard Process sent to my doctor was not entirely accurate. She didn't know. I learned nothing. Except that defatted wheat germ contains gluten. In my case.
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    3. labrisbin added a post in a topic Defatted Wheat Germ Gluten Free?   

      Wow. Thanks so much for taking the time to find this information. I think I was so surprised/stunned by my doctor's reaction to my phone call (I was incorrect - the Cataplex is gluten free) that I didn't go to the Standard Process website myself. I will call them tomorrow to see what they have to say about it to me while I'm on the phone with them. From the statement on their website, it seems pretty clear that they may or may not contain gluten. Great.
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    4. labrisbin added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      Defatted Wheat Germ Gluten Free?
      Just curious to know anyone's thoughts/experiences. My doctor prescribed Standard Process Cataplex F tablets (along with other things). I took them for 3 days only as I noticed I felt nauseous after each time I took them. Well, it's a week later and I have been having a very trying week filled with every celiac symptom I've ever experienced. Here's my question. These tablets contain defatted wheat germ. I called my doctor to tell him I was having a reaction. My doctor said these tablets do not contain gluten. Something about how it's processed, etc. I really don't understand. My body says they do contain gluten. Has anyone else had any experience with defatted wheat germ. I have an appointment with him next week and I would like to be armed with knowledge. Here's the other thing - if they are okay, then I've been glutened at home It's EXTREMELY frustrating to be made to feel wrong.
      • 8 replies
    5. labrisbin added a post in a topic Back To Work And Exhausted   

      What's amazing to me is that before I stopped eating gluten, I thought I was fine. Sure, I had the fatigue, the rash and a host of other symptoms - but it was my normal. Now I'm off gluten and everything becomes more noticeable. Everything has new meaning. Each ache, pain, feeling of nausea, headache, etc. You learn to pay so much more attention to everything and have a new understanding of your body and it's relationship to food.

      I think also that my expectations are that I should be feeling better faster. Wouldn't it be nice to document people's stories/experiences of healing the way we track and document symptoms of the illness?
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    6. labrisbin added a topic in Celiac Disease - Coping With   

      Back To Work And Exhausted
      It's six months gluten free and since we have our own business, I've been able to work from home. However, summer is our busy season and no more of that. But three days in the shop have wiped me out. Totally exhausted. Extremely. Just curious to know if this has happened to others. I've been feeling better, but to feel this tired has me very surprised. I have even noticed increased tingling numbness in legs/feet. I've only eaten my own food and no GI issues, so I don't think it's CC. Has anyone else experienced this?

      Thanks for your input.
      • 5 replies
    7. labrisbin added a post in a topic Celiac Dinner Discussion   

      I agree! Here's an interesting article by a doctor regarding how he thinks this all happened:
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    8. labrisbin added a post in a topic Celiac Dinner Discussion   

      No. It's a long story (of course) but I am very fortunate in that my primary care recognized my latest DH outbreak for what it was (last December) and began putting the whole story together. She is a very smart, brilliant woman who really takes her time and offers fantastic care to her patients. She strongly advised me to go gluten free immediately. As I knew nothing about gluten intolerance at this time, I didn't do as she suggested and things began getting worse VERY quickly. I became slightly alarmed and saw two GI doctors for their opinions. One was certain it was IBS and ordered testing for that and celiac disease. The IBS tests were negative. The other GI, the doctor I see currently, examined me and ordered additional bloodwork. He reviewed the test results, including genetic (I'm DQ2 homozygous) and kindly suggested the biopsy. I declined because I did not want an invasive procedure and my primary care agreed. This GI has a family member with celiac disease and heads the GI department of one of the hospitals he is affiliated with. He takes a special interest in Celiac Disease (his very words at our first meeting) and has spoken at our support group meetings. He used the blood tests, genetic testing, the DH and the amazing reaction of my body to a gluten free diet to make his diagnosis. He would however, like to do an endoscopy in a year to be certain of healing.
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    9. labrisbin added a post in a topic What To Eat After Getting Sick?   

      My doctor has suggested peppermint tea. 2 cups per day (3 Altoids equal 1 cup of tea ). I found for me it really helps.
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    10. labrisbin added a post in a topic Celiac Dinner Discussion   

      Thank you everyone for all your comments! It has really helped me to hear it explained by other people in other ways AND to know that there are so many more of us out there. I think I've been feeling slightly alone. I definitely feel better equipped to discuss my diet and the reasons for it with others. I see it also helps to have a sense of humor
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    11. labrisbin added a topic in Celiac Disease - Coping With   

      Celiac Dinner Discussion
      Good Morning Everyone,

      My husband and I are going to be having dinner with relatively new friends. I have been aware of my celiac status for just under six months and it has taken me this long to really come to terms/accept/be okay with my diagnosis (it's an ongoing process). For instance, I think some people are put off by the word "disease" in "celiac disease". I believe I was as well and so for five of the past six months referred to myself mostly as being gluten intolerant. However, I have celiac disease and I do not want to be uncomfortable or afraid (or viewed that way by others) to use the words. I have two children that I need to set the best example for (each of whom has inherited one of my two DQ2 genes) and I don't want to downplay its importance or make too much of it. Additionally, I have noticed some family members prefer to say "gluten intolerant" or even "wheat allergy" instead of "celiac". If I am more comfortable, everyone else will follow suit (I hope). Since I haven't really discussed my diagnosis with anyone outside of family, close friends or medical personnel, I don't feel well equipped yet to have a casual conversation about it. I am asking for your help.

      Thanks so very much!
      • 14 replies
    12. labrisbin added a post in a topic Setback From Gluten   

      Thank you for taking the time to answer. There is so much to learn and constantly be aware of. I'm assuming that even after our immune systems settle down, ingesting gluten would lead to some kind of an autoimmune chain reaction? Or after a certain amount of healing has occurred, perhaps an accidental glutening wouldn't be so hazardous? I suppose though, since everyone is different, it would all be subjective. I guess I'm just trying to decide if it's worth having the occasional meal out. Perhaps there isn't an answer - ha! Thanks again!
      • 0
    13. labrisbin added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      Setback From Gluten
      Good Morning Everyone,

      I have been gluten free for just over 6 months and recently had an appointment with my doctor who explained that any amount of inadvertent gluten can cause a "setback" for me. He offered a lot of information during this visit and at the time I didn't ask him to clarify what he meant by this particular statement. I had been telling him about having eaten out and not receiving the gluten free meal I had requested which led to subsequent celiac disease symptoms.

      I don't want to become afraid to occasionally eat outside my home, so I'm wondering what your thoughts might be or if anyone has heard the same thing.

      Thanks for your input.
      • 6 replies
    14. labrisbin added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Prometheus Lab Results

      I was wondering if I could ask your help in determining what the results of my genetic blood test mean. The lab that did the work is Prometheus. It reads as follows:

      Alleles Detected: Homozygous DQB1*02 (DQA1*05-DQB1*0201 and DQA1*0201-DQB1*0202)

      This test, as well as two others for IBS, were ordered by my GI doctor. Both IBS test results were negative. Unfortunately, I don't have a follow up appointment with my doctor until the end of the month and am hoping to learn a lot between now and then. This doctor told me he didn't believe I was at risk for celiac, hence the two IBS tests. Though I've begun reading about gluten intolerance, as well as beginning a gluten free diet, I can tell there's a lot to learn. I have two teenage children and am wondering if this could become an issue for them.

      I would truly appreciate any thoughts, advice, comments, ideas, etc. Thanks so much.
      • 0 replies

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