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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Rucko

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  • Gender Female
  • Interests Reading, gardening, doing stuff around home
  • Location Calgary, Alberta
  1. Hello all.  I've been gluten free for 4 years and 4 month after being undiagnosed for at least 25 years. I still have a bunch of lingering symptoms however, even though my blood test confirms that I am indeed gluten free.  I asked my GP if I could get a repeat endoscopy to see if that could explain part of my problems.  I had one recently and I got a copy of the lab report when I saw him today.  He didn't really explain it, just said I still have villous atrophy.  I'll be going to the gastroenterologist in June so will be able to find out for sure, but until then maybe some of the experts would be able to translate:            minimal focal nonspecific crypt hyperplastic villous atrophy   Looking up the words individually isn't helping all that much.  Here's hoping some of the angels on the site can help!!   P.S.  My GP who told me I needed to see a psychiatrist a couple of months ago, was much nicer to me now that he knows there is still something wrong...  
  2. Most products have contact numbers and many have websites, so you could investigate items yourself for the most current information.  I've also been at my pharmacy and enlisted the pharmacist to help me find out about some products, they're usually good about checking the house brand of pain meds if nothing else.  But ask when they're not too busy or they'll probably give you the brush-off...   I bought some Arbonne lip balm a few years ago that was gluten free but you'd have to investigate if they still make it.  That's the trouble - companies change their formulas or processes so we're forced to check each time.
  3. You might want to have a look at the chapters on Foods to Avoid in 'Perfect Health Diet' by Paul Jaminet and Shou-Ching Jaminet.  There is info on food, and on things added to food, that may have toxic elements.  (The chapter on cereal grains is fascinating.) The rest of the book is mainly about eating well and getting proper nutrition.  
  4. You can order yoghurt cultures from dairy and cheese making suppliers over the internet.  They come in little packets about the size on an envelope, so the companies just mail them to you.  Just find one that will ship to your area.
  5.   I think we are splitting hairs here.  Yes Campbell-McBride is recommending trying the GAPS diet to treat those conditions.  I'd have to re-read her book to be sure, but it was my impression that she did not claim that the diet would cure anything, merely that there was a likelihood that things could be improved for many people.  By the way, the GAPS diet is very similar to the Paleo diet and the Specific Carbohydrate diet.   So YPG, I think you will learn a lot from the GAPS book.  There are a number of good recipes in the back which may even help you.  I hope you like to cook!  It wouldn't hurt to have a look at some of the Paleo cookbooks too, if you're interested.
  6. Well I read Campbell-McBride's book "Gut and Psychology Syndrome" and she made no claim in it that celiac disease can be cured. In fact she states that many celiacs never recover fully, even on a gluten free diet.  As far as I recall she did not claim that she can cure autism or any other disease in the book, but she does encourage people to try the GAPS diet if their digestion is poor as there is usually some improvement to their condition.  I found that she lists quite a few things that can improve digestion and I learned a lot from reading the book, particularly about using probiotics.     However, YPG, if you are unable to get organic produce in your area, just buy the best you can.  
  7. Getting back to the Summit, it's not a 'celiac' summit after all.  And we're all big people here so I don't think we need to worry about the fact that some of them are selling something.  At least the lectures are not coming across as crass advertising.   Personally I found it quite fascinating that doctors such as David Perlmutter are finding they can assist people by having them eliminate gluten from their diets.  Maybe it's not a cure for Alzheimer's but at least we know it's not an impossible challenge to eat gluten free.  Another doctor, Natasha Campbell-McBride, works with autistic children and other people with compromised digestion.  Her book on the GAPS diet has really helped me, probably as much as going gluten free, so if found her talk really interesting.      On another note, it's unfortunate that some of the recordings have such poor quality that it was difficult it make out what they were saying. 
  8. Wheat Farmer's Dilemma

    Here's a link to Dr. David Perlmutter's website and a recent discussion he posted about wheat farming. Dr. Perlmutter actually answers questions if you read through the comments at the end! [url=""][/url]
  9. Now you know which clinic not to go back to...  It might be faster just to go to another clinic if your complaints are falling on deaf ears.     I also experienced a lot of incorrect diagnoses over the years.  I didn't have the classic symptoms so they always thought it was something else.  Once I had a diagnosis though, my adult daughter couldn't get a blood test because she supposedly didn't have any symptoms.  It's protocol though if you're a first degree relative!  I told my doctor that she couldn't get a test and he said to send her to him and he'd request one.  And she is celiac as it turns out.  But my point is, you shouldn't have to rely on chance circumstance just to get tested.   However, from your doctor's point-of-view, since he suspects you of IBS, he may think he's doing you a favor sending you to the gastroenterologist right away.  And a two month wait isn't bad.  You would think he'd want to rule out celiac first though, just to save the specialist time.  Especially since testing extended family is recommended and you do have that happening in yours.
  10. Ridiculous Conversations

    The stories about the clued-out doctors reminded me that the doctor who told me I was celiac, first told me the test results, then said "So you can't eat hotdogs any longer."  I'm pretty sure he knew about gluten and wheat and all that, but what a weird example of what not to eat!
  11. Glutening Dreams

    I had pretty much the same dream only it was a whole wheat bun.  I took a bite, chewed and swallowed, then realized it was something I shouldn't be eating.  I had that dream about 3 years after going gluten free.
  12. I find that my relatives, most of them anyway, understand when I bring my own food.  Just try not make a big deal about it if you do bring something.  You'll also have to be discreet if they want you to eat food they've tried to make gluten free and you're not convinced it is.  I've gotten out of a few situations like that by taking it, and exchanging plates with my husband after he's eaten his, he eats mine too.  It works for desserts but might not for a main course...   Sometimes I eat before I go too.
  13. Now that I read the advertising more carefully, it does say that it's the world's first summit like this so I guess it's new to all of us.     I enrolled in it and so far it has cost nothing.  It say the event dates are Nov. 11 to 17, 2013 when several interviews will be on-line each day.  I have no experience with events like this, perhaps they'll be wanting to sell stuff by the end.   They say their goal is to "move the conversation about gluten-related disorders forward".  That seems reasonable enough.  It's not directed just at people with celiac disease I take it.  
  14. Saw something about this Gluten Summit, here's the link:   There sure are some big names listed.  Anyone know about it?  Looks interesting.
  15. So Ontarians, to get the test, does your doctor still have to order it?  Just wondering.  I have a brother in Ontario who hasn't been tested and really should.