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welshbird

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About welshbird

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  1. I thought that Rice Krispies were gluten free. I thought that maybe we were doing something strange to his metabolism not that I was giving him gluten. Is this alone really enough to cause symptoms? As he doesn't have any gastro symptoms it is really difficult to work it all out - behaviour is so subjective.
  2. My 5 year old boy who gas been gluten and dairy free since February with massive improvements in his behaviour has restarted being aggressive/tantrums/unreasonableness over the past week both at home and at school. He was back to being lovely today. The only thing that I can think of that could have changed (apart from end of term madness at school) is that he had cereal (ricekrispies and gluten/dairy free chocolate stars)in the morning on many occasions instead of his usual hot food (eggs/sausages/bacon/salmon/beans). Does this affect any other children?
  3. Hi, My 5 year old boy was also uncontrollable for periods during the day (have a look at my other posts). He is now on a gluten and dairy free diet which has transformed him. We still have our moments but they are no longer dictating our family's life. The facial rash didn't clear until we stopped dairy. I completely sympathise with you about getting cross with your boy - I found it impossible not to lose my temper with all his unreasonableness/objections/violence towards others. Always felt guilty. Now that he is better this is no longer an issue as normal behavioural techniques work. On the positive side, I am finding it a joy being with my 3 year old as he doesn't even require the naughty step. My youngest boy (3) doesn't have any behavioural problems but he did develop a rash over his face which didn't clear up for many months and potty training was impossible as he didn't have a clue. We put him on the same diet in April for a few weeks and the rash cleared, he is now potty trained and he seemed to have more energy. Although he is not gluten and dairy free any more I limit the amounts that he now has. Please let us know if your son does have celiacs as I have not had my son tested. I am still not convinced as he didn't have any proper GI symptoms apart from a stomach ache.
  4. That is the reason why I did the post. I fiddled about with my little boys diet for over a year, saw positive changes but then reintroduced food again as I was feeling guilty that I was depriving him of essential nutrients. I never omitted foods for long enough to be completely sure that it was food that was definitely the cause. I am hoping that this will help others. My little boy has been amazing at accepting all the foods that he is not allowed to eat. In the beginning it was an experiment that we did together and the results were obvious. I always have crisps/sweets/homemade cake on me (for my boy and his mates) if we are playing with friends to stop any issues of him being left out. Lunchtimes became easier when I asked the school to supply school dinners - I supply a lot of the fillers (ricecakes/flour/frozen sausages etc)and they do all the cooking-I found packed lunches really time consuming to make in the morning and they were pretty boring and often repeated in the evening (wheat free pasta and rice dishes). Our biggest hurdle is when everybody is eating icecream and even most of the lollies on sale have milk in them - I do sometimes offer an alternative treat at that time eg. TV when we get home. Now the next step for me and my little boy is to experiment again. Was it just an intolerance to wheat and dairy that he will outgrow? Was it that gluten mucked up his gut so much that dairy was an issue? Was it just dairy that I wasn't vigilant enough at spotting and I therefore blamed the gluten? Is it a longterm problem? What do I test first and for how long? The thought of doing it all again is so daunting. It would be far easier for me to continue with the current diet but I am determined to work my way through this massive puzzle and any past experience would be very helpful. My little boy has been amazing at accepting all the foods that he is not allowed to eat. In the beginning it was an experiment that we did together and the results were obvious. I always have crisps/sweets/homemade cake on me (for my boy and his mates) if we are playing with friends to stop any issues of him being left out. Lunchtimes became easier when I asked the school to supply school dinners - I supply a lot of the fillers (ricecakes/flour/frozen sausages etc)and they do all the cooking-I found packed lunches really time consuming to make in the morning and they were pretty boring and often repeated in the evening (wheat free pasta and rice dishes). Our biggest hurdle is when everybody is eating icecream and even most of the lollies on sale have milk in them - I do sometimes offer an alternative treat at that time eg. TV when we get home.
  5. My 5 year old boy has now been gluten and dairy free since February (4 months) - due to uncontrollable awful behaviour, rashes, poor sleeping, night terrors and unbeknown to us at the time learning difficulties, tummypains and headaches. The effects were seen within a few days but 4 months on, all the above has improved and/or stopped. His friends in school tell me that 'he no longer hurts them and that he is very good'. I can take him to a park and I am able to talk to the other parents without keeping my eyes completely on him and leave early. The most obvious objective change is that he was assessed in school in january and he was below average in most areas covered. I was told yesterday that he was reassessed and he is now in the top 3 in his class and is joining 6/7 year olds for some of their lessons. I found a picture that he did at Christmas which was one big scribble he is now able to draw pictures and write sentences (very messy but who cares!). He has had an allergy test which was negative and has not had any further testing and probably won't until he is older. Thanks to this site and all the comments on here I was able to believe what I was seeing and not doubt my logic too much - despite my GP's reactions. As a result the improvements seen are obvious and hopefully as we reintroduce food we will now know what negative effects we are looking for. Thankyou all.
  6. Hi, my five year old boy improved very quickly after removing gluten from his diet but there were still issues. It wasn't until we cut out dairy as well that his behaviour is now constantly brilliant. He did say that his tummy ache and headache had gone away a few days after stopping dairy, and when we retried Dairy this returned, along with his facial rash and out of control behaviour and his aggression to life. We have now been very strict with this diet since February and once you have adapted things it really isn't that difficult. I had been buying a lot of ready made treats (cakes, pastries etc) that was never that nice and not eaten by my boy which put me off trying to bake as I thought that this was how they tasted - so he had none. I finally tried baking some simple fairy cakes which everybody loves (friends, brother etc) and everybody puts on their own icing. Since then I no longer buy treats but bake them. Gluten free flour and dairy free marg is no different when there is a bit of sugar and fruit to cover it all up.
  7. My son has just had a bit of a relapse at school last week - hitting out in the playground at lunchtime and being very irritable after school until he had been fed an hour later. Found out yesterday that he has had pain in his tooth (seeing dentist this pm as his enamel looks worn away in bottom front tooth). My thoughts are that he has not been eating his lunch due to the pain and this has made him hypoglycemic. He has been good as gold over the weekend and eating food. Is this yet another sign of celiac? Are teeth problems also a sign of celiac, or just that he hasn't had enough calcium over the past 2 months. I went to the doctor a few weeks ago to ask about calcium supplements. She asked if I was doing this diet through choice and that I should wait to see the dietician. Now I have a dilemma - do I reintroduce dairy and risk the return of the behaviour and hope that his gut has improved (he has been strictly gluten free for 2 months but nearly wheat free for over a year). Do I just buy calcium supplements anyway against doctors advice? HELP
  8. Did he have any gastro symptoms? The only one my son had was tummy pain which only became apparent last month after stopping gluten and dairy. Thinking back he used to be sick a lot as a baby and toddler and his poos were might have been a little bit odd. He had a rash around his mouth and was always scratching - GP put this down to dry skin but both have resolved over the past month. Has he been diagnosed with celiacs or are you just trying gluten free with positive results? He was already hurting myself and my husband so I am glad we have found the link before he gets any bigger. I am not sure if it is celiacs as it isn't a normal presentation. I would like him tested but the thought of putting him through eating wheat again and the severe consequences to his behaviour fills me with dread. I guess if there were other kids/adults out there who's initial symptoms were similar to what I have described it would give me more confidence to ask our doctor for further investigations to be done.
  9. Poor you. From my experience of trial and error and a lot of internet research I think that my boys stomach has been destroyed which is why he was affected by most other types of food. I already think that his stomach has been healing over the past year by avoiding wheat which is why he is now able to tolerate all fruits (strawberries and pineapple made him go loopy very qickly) now he eats them without a problem. The dairy seems to be the trigger for his bad behaviour at the moment but wheat just made life impossible. I am finding making gluten and wheat free food very easy as he is now so good I can cook whilst he is playing alongside me or even in another room. A month ago I did all the cooking the night before and mealtimes weren't very pleasant. He must know the positive effect as he doesn't object to not having cheese and puts up with rice milk when he sees everybody else tucking in. His sugar consumption has gone up loads though as there is a lot of substitution with sweets.
  10. New to this but wondering if this sounds familiar. I have a 5 year old boy who has had behavioural issues from the time he started to crawl at 6 months old up until 1 month ago when we completely cut out wheat, dairy and soya from his diet. We have been playing with his diet for nearly 2 years ( cutting out wheat/colourings/fruits etc: hypoglycemic diet)and thought he had improved but never quite got there until the doctor mentioned celiacs amongst many other possibilities. His symptoms initially was that he was always in his friends space (normally on top of them); severe ureasonable temper tantrums that lasted up to an hour and ended up by him sleeping; oppositional; physically and verbally aggressive; couldn't play alone; absconding; night terrors; bed wetting; wake up at 5am in a foul mood - headbutting, uncontrollable; used to hurt his younger brother if not watched every second; behavioural techniques just didn't work; for periods during the day he would be an angel; hurt children in nursery - the list is endless. Many of these resolved after about a week of cutting everything out of his diet and feeding him every hour - the bedwetting, nightterrors and early wakening returned after about 3 days of reintroducing wheat so this was stopped but his behaviour continued to be challenging in various degrees as we played with his diet to try to find the link. Over the past year with wheat nearly excluded from his diet but not all gluten, and dairy reduced but not stopped, his behaviour was improved but he'd still have periods of hurting other children and being a very difficult child. Other times this would be really good. Academically I knew he wasn't progressing - he had no interest in drawing/reading/writing he couldn't even draw a face a month ago despite being very bright when younger (did a 24 piece puzzle before his second birthday and memorized the spines of all his books - he had a lot). A month ago all this started changing. He had an iron test done to show that he had a low iron store. In the same week we reintroduced milk and within 2 days he had punched, bit and kicked various children at school. Relooking at the celiac sites I thought that maybe this was the problem hence the complete stop of gluten and dairy. After about a week Dylan was a lovely boy that would get dressed in the morning etc, didn't just object to everything. It was a bit emotional when he said that his headache and tummy ache had gone (the tummy ache returned each time we tried soya which is why this is not given). A pretty continuous rash around his mouth has completely resolved. A month later he plays alone for long periods; he can play alongside his 2 year old brother without harming him; he is now reading early reading books (this is above average, a month ago he was struggling with letters); he wrote a sentence yesterday (a month ago I used to take a very long time to get him to sit down to write a letter), he can draw pictures not scribbles, at play with friends I can relax as he is normal. His temper is still awful but reasonable and he has a lot to learn. The hell of the last five years seem to be over and I can start enjoying being a mum instead of always battling. Have I gone crazy or does this sound like any of your children?