This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
just for another data point, I tested negative to celiac and I don't the most common genes, but I'd read some of Dr H's research and since I had lots of balance problems in addition to the gastro stuff, I was determined to go gluten free even without a diagnosis. It probably took about 3 months before I noticed any improvment in the neuro stuff (yet only 3 days for the gastro improvements) and maybe 6-8 months before it was heaps better. If I get glutened one off, I don't have any neuro issues but if it's a tiny amount over a few days (as has happened when I was travelling and had less control over my food) my balance goes really wonky again. Since I'm not used to it, it feels even worse than before.
Best wishes to your brother Gatita, it sounds very scary :-(
Hello all! Sorry, I haven't been around much at all. Welcome, new peeps! I am another Australian (Sydney)
I can't imagine what the food offerings would've been like a few decades ago. I'll be gluten free 3 years this June and there's just more and more out there. I adore the new Purebred range, and even Country Life is now heaps nicer with the new recipe they are using. I think the San Remo pasta is the best, in Coles you can find it in the 'health foods' section, in Woolies it's in amongst the regular pasta.
I'll try and pop back more regularly, I have been slack :-)
I haven't been around much lately but I am still so grateful to 'shroomie and many others for all their help when I was preparing to go gluten free. Even though I am not around so much, I am super grateful for them and that they are still here helping others who came after me. Thank you.
I agree. I don't get any grief about what I do or don't eat and I would never take it from anyone. It's not worth it to my health, and I don't want to associate with anyone so nasty. I get that you can't chose your co-workers, and work situations are a lot harder, but I wouldn't bother being gracious to anyone who treated you like this, even if it's in your nature to be nice to people. Sometimes, they deserve a not so nice response to those kind of insane argumentative replies.
I do disagree with the comment that that alcohol is not pushed so much beyond teenage years as food is. That may be the case in communities in the US but Australian culture includes a lot of drinking and so did life in London where going out for after work drinks a number of times a week was super common and accepted. Many of us turned up for work feeling rather worse for wear and in retrospect, I think that was an issue. But it was work encouraged and often endorsed (we had drinks at work, or were out drinking with our managers and coworkers). When my team was seen as a bit cliquey and not attending drinks with everyone else, they moved the location to our office and some Friday evenings we were literally sitting at our desks finishing up our work while coworkers from less busy teams drank and socialised around us. Whereas food, pfffft, no one cared about that. I also think the style of food in the US is much more gluten-y than I am used here to so I do sympathise there. It stresses me out a fair bit when I travel to the US whereas in Australia and the UK it's no big deal and there are usually quite a few items that would be naturally gluten free.
To the OP, I can be pretty wussy and want to stay home if I feel ill. I figure if I don't feel well at home, communting an hour each way on the bus is really not going to help. So don't beat yourself up about it, you have a fellow wuss in me :-)
My suggestion for that situation is to say something like, if you really want to try one of those pot pies then I'll be happy to keep you company but I'll just get a drink. And I'll say that we need to organise it so I can eat either before or afterwards. I don't want to deny someone the opportunity to try something they couldn't usually have (if they lived close by to this place I'd be annoyed!) but I'm not going to risk my health.
For any advance planned eating out my friends and family always let me pick (or I give them a choice of places safe for me and they pick from them). Spur of the moment stuff I see if there's anything I can have and if not, I have a drink and grab something later. On a family trip recently I couldn't eat much at all at my step brother's place but my brother would stop by McDonalds on the way so I could get fries and a drink which felt like a treat (plus I had food in the fridge in the hotel) and so I could be all "oh, it looks delicious but I'm really full" with all the family members I didn't know well and didn't want to get into it with.
I really agree with this. Rather than feeling like you have no choice to be somewhere, or that you'd be better off missing out at home, you meet your physical needs and social needs but in a different way to how you might be used to. Now I eat out with friends to enjoy their company, not to have a great meal. I can eat well at home another time.
I take Zoloft which is also sertraline. I have suffered from depression and anxiety for most of my life and I have found Zoloft has really helped me. I was always really against the idea of taking antidepressants (they seemed so scary) and now I only wish I hadn't wasted so many years with that attitude. It is amazing not feeling anxious all the time. I have non-Celiac gluten intolerance and while my anxiety did dissipitate a bit over 2.5 years gluten free, it was only after a month or so on Zoloft that I felt so much better.
Don't feel ashamed to be taking them. I can relate to how you feel and I do keep it a secret from most people, but I would be honest if anyone asked me outright. I see it as a medical treatment for a real condition, depression and anxiety aren't personal failings or weaknesses.
I second the suggestion to see a counsellor. My GP said that treatment of depression with a combination of therapy and medication shows the most success and I see a clinical psychologist weekly and that has really helped too. I tried therapy in the past without medication and that didn't work for me - I think I was so depressed I couldn't take it in. But having the depression lifted by the medication and then starting therapy was a great combo.
It can be hard adjusting to SSRIs initially. In the first week I had insomnia, I kept clenching my jaw and I could not stop jittering. But those passed and googling my symptoms to read about how other people felt the same really helped me. It's also extremely important to wean off them very slowly, if you decide not to take them anymore. Stopping suddenly can (very likely) have severe side effects.
All the best to you. I hope you feel a lot better soon.
I meant to bring back the brownies but I uh, ate them all on the way. But I brought back english muffins (from the UK) and I regularly bring back Udi's bread / bagels, Chex cereal and snickerdoodles from the US. I've even brought back lara bars from the US once because they were so much cheaper there and I thought they might be an issue but it was fine (thank god as they were scattered all through my bag and I would've had to do some majory searching if they wanted them chucked out). I always declare them and customs ask a few questions (and I think they got quite a bit of amusement from my 'please let me keep my gluten free bagels!!' pleas) but they've always said it's fine.
Also a friend has posted me snickerdoodles and betty crocker brownie mix and while customs sometimes open the parcels, they've never confiscated them. So you should be fine with bread, cake type things etc. It's way more than I could say eat in transit but no where near like I'm planning on opening a shop with it. I'd imagine those kinds of large quantities would be an issue.
Ooh, you lucky thing. Have a great trip! I loved the gluten free brownies that they sold in Sainsburys. I ate so many of them when I was there in 2010. Plus you can bring back stuff at much better prices than we pay here, customs don't mind packaged baked goods (I speak from experience, haha).
crumbed fish and chips would be amazing. Haven't had that in years. I miss potato scallops :-(
I am so totally in love with the pure bred range. I have missed sausage sizzles so much but lately I have been having them on the roles (I split them in half and toast first) and they are SO GOOD. Plus I've been eating toast like there's no tomorrow. You don't want to know how much weight I have gained, OMG....
I always get chocolates that I can't eat but I figure it's the thought that counts and I regift them. I actually really appreciate being saved the trouble of having to do my own shopping for those kinds of little gifts.
I got given shortbread this year - my mother loved it.
I'd much rather be given chocolates I can't eat but that someone else will appreciate than a cheap junky gift that will end up in landfill or that I wouldn't want to pass on for fear people would think it was my taste.
I'd have conversations with my colleague, turn to my computer to start working on whatever we'd discussed (literally seconds late), and then have to ask her what we were talking about. Happily, 2 + years gluten free and I am now *much* better at remembering.
Me too. I used to crash into everything, I couldn't handle walking in crowds because I had so much trouble not walking into people who were walking towards me. It was really scary reading about gluten ataxia and how bad some people had it and it was what made me so dedicated to going strictly gluten free even without a diagnosis. It took about 6 months to resolve. Scary how it can affect the brain.
EbonyJade, like Saz says, read the label, there are tonnes that are fine but no easy list. Is there any product in particuar that you're wondering about? We could let you know what we eat. There are quite a few that are in the regular parts of the supermarket. I'm in Coles practically every day and I'd be happy to check anything you were curious about.
Shroomie, I know, it's very annoying! I emailed Coles to say that we weren't going to find the crumpets and english muffins if they buried them in amongst the regular ones but did they listen? Nope. I still haven't bought them because when I look at the packets right next to the regular ones I remember how much I loved the regular ones and why bother paying so much more for something that won't taste as good? Yet my attitude when I saw them in England amongst a bunch of other gluten free products was YAY!!! because I was so excited to see so many options. They just don't get it but you think they'd take our free advice!
And I saw woolworths stock gluten free flour (the macro brand) on the shelves with the regular flour, those bags of dust!!!! Insane, there's no way I'd touch anything from near there, it'd be all over my hands and I'd for sure touch my mouth without thinking.
Yum, bread, thanks for the heads up Saz! I've been on a bit of a Dovedale bender latety. Tooooasssssst!
Hehe, I remembering posting about this too. I'm now over 2 years gluten free and those dreams have pretty much gone. I had two recurring ones - one, that I was at a party and absentmindedly ate from a bowl of nibbles and the other was that I was being chased by cupcakes on little legs ;-)
It's still new, you're anxious about making mistakes, your brain is just working through it :-)
Yes, I had the genetic testing and it was negative and I'd tested negative twice to the celiac panel so that was the end of the road formal diagnosis wise for me. Doesn't change the fast that I am extremely intolerant to gluten and I can see that so are other family members. It would've been nice to have those genes so I could get them to go gluten free.
If you can comfortably afford it and are curious then go for it but for me it was really frustrating to have yet another definitive 'no you don't have celiac' strike when I know that I can't touch the stuff. I would've been annoyed if i'd paid for it.