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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About allisons

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  1. Waking Up Every Hour To Pee

    You might try getting some electrolytes when you feel hungover - the water can actually make it worse if you're out of balance because your body will say "Hey, this is too much water" expell it, and you end up losing more electrolytes.
  2. This may be something you've already checked, but you sound anemic to me. Being cold, having trouble concentrating, etc. Do you know what your ferratin and b12 levels are?
  3. Fruits And Vegetables!

    Here's a link of nutrient dense foods: Summer is coming, and MAN I CAN NOT WAIT FOR BERRY SEASON! Do you live in a place that has good farm produce and berries? Berries are incredibly nutrient dense and super delicious. Blueberries especially. Last year I bought 2lbs of blueberries, planning to eat them over the course of the week. I ate them that evening. All of them. I live in Washington and I'm slowly watching the progression of the season in the strawberries "grown in this city" label as they travel north from California.
  4. Unexplained Episode? Help!

    Oats are a common source of cross contamination because they are often processed on the same machine as wheat. Some percentage (relatively small, but it's there) of celiacs react to the protein in oats as well. Was your son diagnosed gluten intolerant or celiac? How was the diagnosis done? Also - four days isn't NEARLY long enough for it have helped yet. If your son has celiac, any number of relatively harmless-but-harder-than-average foods can trigger a tummy reaction because the intestinal lining hasn't healed yet. Natural hickory smoke, by the way, has nitrites in it. Eating that would have given me nasty painful diarrhea as well. Has he shown any sensitivity to nitrites (ham, hot dogs, salami)?
  5. Eating Like A Horse!

    I think it's possible there's a number of things happening here - first of all, gluten foods are higher in protein than a lot of their gluten-free substitutes and they're going to make you feel fuller longer. Sugary foods don't make you feel full, no matter how much calories you have because they digest so quickly. Rice NEVER makes me feel full, neither does corn. How often/how much meat do you eat? How much quinoa or other protein rich grains do you get? How about diary and eggs? Second, you're probably not getting as much fiber as you used to, either. Another thing to make you feel full. Most American diets get a big ole chunk of their fiber from whole wheat - cut out the wheat and it's not easy to replace it with the rice flour based substitutes. But also, 6 months is really just the very beginning of recovery of your villi - you may not be absorbing everything as well as a healthy person yet but with most of the inflammation going away, you might have an appetite back that was suppressed by discomfort before you began the gluten-free diet. If you still haven't gained any weight in another six months, I'd get worried. I'll second the bit about getting your thyroid checked - many celiacs are falsely diagnosed with thyroid issues - maybe it could go the other way? I know that one autoimmune disorder increases your risks for a second one, and thyroid is a simple blood test so it shouldn't be hard to do. Don't be ashamed of eating. But do talk to your doctor about anything you feel is "odd"
  6. Morbid Nightmares

    I'm a strange dreamer myself - they range from hilarious to incredibly terrifying (I have a recurring dream that I have an other person's infant under my care and it dies, that one does tend to make it particularly difficult to get back to sleep.) As far as I can tell, the difference between the kinds of people who dream vividly and those who don't have two specific traits - we sleep lightly (thus can be shaken out of sleep more easily) and we have pretty decent memories. Sleep comes in stages (here's a link to a chart about it - the labels are in french, but you'll get the idea: See the little peaks? Those are micro-waking periods. Those are the periods you're most likely to wake up and remember a dream. If you've got something disturbing your sleep (pain, the need to pee, being hungry, anxiety, etc) those microwaking isn't just waking up enough to roll over (most people don't even remember those), but gives you the chance to really wake up. The basic point: you probably always had disturbing dreams, you just don't remember them. I am not a medical doctor, but I would bet that your sleep disturbance has more to do with the diabetes and blood sugar issues than they do celiac/being gluten-free (not to say it couldn't, it's just the diabetes is more likely). How often do you check your insulin/blood sugar levels? Are you managing that well? If that gets on an even keel and you're not sleeping better, I'd talk to a physician. Sleep problems can be caused by nutrient deficiencies (way common with gluten intolerance) and you may need supplements.
  7. Nightmares About Teeth

    All your teeth falling out is a classic anxiety dream and anxiety is a known complication of celiac, so it makes perfect sense that you'd not get this dream as much anymore.
  8. Both weight loss and obesity are possible complications of celiacs - for strangely the same reason - failure to absorb the right nutrients. With absorption issues, you can be malnourished and overweight at the same time (most people who are obese have similar vitamin or mineral deficiencies as those who are underweight). The "fiscal" model of "calories in - calories out" is not really accurate - in terms of pure calorimetry, we consume a lot more calories than we use and our bodies are capable of choosing to increase or decrease the amount of fuel taken from that stream. A celiac's digestive system may be saying, "Hey, I'm not getting enough of x, I must be starving" - treating the celiac may help your body switch from famine mode back to "Ok, let's not freak out and just get what we need." Will you definitely lose weight? No. Could you? Yes. I would not recommend trying to manage a weight-loss diet and a gluten-free diet simultaneously, but you might find you're eating fewer calorie dense foods and less refined sugar mostly because the gluten-free products out there. I personally am just having trouble figuring out what to put in my mouth. With any luck you'll also feel more energetic and you end up more active. An active large person is healthier than a sedentary thin person.
  9. How Do You Explain?

    Part of what I've been doing is using one particular form of CC as an example that kind of shocks people into realizing how crazy difficult it is "Michael and I have to have separate peanut butter jars because if he makes a sandwich and double dips the knife, I can get gluten the next time I make a sandwich" The other thing that seems to strike chords of understanding (at least in this area...I'm not sure it'd work culturally, everywhere), "It's kind of like having to keep a Kosher kitchen." So if the people you're talking about know enough about Jewish culture to understand what kind of undertaking that is, they'll say, "Oh, wow," and usually they'll then stop offering to feed me. On the other hand, my truly close friends, the ones who really love me and want to be there for me, I almost believe they'd be able to pull it off. They've been asking exactly what they need to do, listening to me when I talk about hidden sources of gluten. They've also said, "Well, we know you're not ready yet, but let us know" So maybe it's not just about knowing how to say no, but also how to say yes.
  10. is having a difficult evening

  11. New And Questioning Things

    I think the truth is, even medical science doesn't know the answer to this question. Why celiac's happens at all is a mystery. Different people end up more and less sensitive, and if I understand what my nutritionist said, early in the gluten-free process your sensitivity is a bit volatile. The best thing to do is be 100% gluten-free if you can, let your intestines heal and then see where you're at. My dad's doctor (dad got diagnosed like a month before me - mine was found 'cause they told him to tell his kids to get tested) said that you actually can get *more* sensitive than you were when you were eating gluten. Your body is treating gluten like it's poison and having it all the time weakens it - it getting healthier may mean it does a better job attacking the poison, which means attacking your intestines. It's actually possible that you'll develop intestinal symptoms that you don't have now. Great, right? We who have fewer outward symptoms are in a bit of a bind - we're just as much at risk for the complications as anyone else but without the good feedback loop smacking us when we're bad. On the other hand, the problem with the gluten-induced damage is its chronic nature. Little bits all the time add up to serious damage. Once in awhile, if it doesn't physically hurt, probably isn't a problem. They say it takes about 6 months for your little hairy-hairs to grow back (the villi that vastly increase the surface area of your small intestines, creating many more opportunities for the chemical reactions that lead to absorption of nutrients). My suggestion would be to be vigilant for 6 months. Pull the peanut butter out of the jar and on to the plate with a different utensil than the one you use to spread it. (Or get separate peanut butters - I like creamy, my husband likes crunchy, so really it worked out well). After that, try a single donut. See what happens. You might immediately throw up. The reason I don't think I could do that is when I had my single donut and I inevitably had no symptoms, I would fall completely and 100% off the wagon. So, I don't know what kind of person you are - could you have a donut once a year and call it good?
  12. Frustrated Beyond Words....

    Undiagnosed pain is incredibly difficult - the urgency is way beyond the ability for medicine to handle it. But a good diagnosis is worth waiting for. An ER doctor is for keeping you alive (or managing emergent pain) , a Primary Care Physician is for keeping a healthy person healthy - you need to be under the care of a specialist if you actually have a problem and hopefully your PCP pushes you towards the right specialist. I say hold off until you can get a referral from a doctor who knows to a doctor who can really help you.