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superman added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsNegative Test Results. Do I Have Celiac Disease?Hello everyone,
This is my first post, but I have been reading a lot of posts on this forum over the past few days. I'm going to write down my medical history in brief. I'll be very grateful for any help/advice.
I am a 27 year old male, and I used to weigh 157 kgs (345.4 lbs) a couple of months back. I was in my worst shape and have been facing the following symptoms for the last 7 years, which have only got worse with time:
# Bloating, undigested food, really bad smelling feces, stomach pain, acidity.
# Constipation and Diarrhea
# Low Total Testosterone for my age: 489 ng/dl
# Low Sperm count for my age: 69 million sperms
# Very low libido
# Erectile dysfunction
# Lacking the feeling to succeed
# Chronic Depression and mood swings
# Trouble concentration
# Chronic fatigue
# Difficulty in remembering/recalling words and names
# Sleepiness (I sleep 12+ hours a day)
# Fatigue and sleepiness after moderate physical activity even on a low carb diet
# Confusion in noisy/crowded places
# Discomfort and slight-pain below right rib cage and under the left rib cage for 2-3 hours after eating and also at random times.
# Knee pain
# Mildly aching muscles and cramps in legs at night
# Severe Upper Back Pain with mild spondalitis and mild scoliosis
# Chronic non bacterial prostatitis, constant pain in penis, and severe pain in penis and pelvic region during sex
# Light sensitive eye sight, eye pain, and bubbles floating around frequently
# Hair Loss (Diffused and Adrogenic Alopecia)
# Recurrent skin infections
# Severe Folluculitis
# Recurrent respiratory infections when I expose myself to a dusty environment and mild cold all year round
# Malabsorption (I'm deficient in Vitamin D and B12)
So I finally made and effort and lost 18 kgs (39.5 lbs) a few months back. However, rather than feeling good my symptoms have only got worse.
I stumbled upon an article regarding gluten sensitivy and Celiac disease, and found out that many people who suffer from it also share somewhat the same symptoms like me. I have always been eating wheat and bread. So I went off gluten for 6 days and felt a little bit better. I'd say there was a 50% improvement in my pelvic pain and 20 to 30% improvement in my mental state and fatigue. The smell in my feces reduced by 80%. And my folluclitis disappeared.
So I decided to take an anti-body blood test for Celiac. I consumed a lot of wheat for a week and then took the test. Received the results yesterday. Here they are:
Endomysial Antibody-IgA (1:10) (EMA-IgA): NEGATIVE
Gliadin Antibody-IgA: 2.0 RU/ml
Gliadin Antibody-IgG: 3.3 RU/ml
tTG-Tissue transglutaminase-IgA: NEGATIVE (BELOW 0.2 AU/ml)
Total IgA Level: 319 mg/dl
I'm confused, as the Gliadin Antibody IgA and IgG and tTg-IgA seem to be below the Reference Range & Units. Do I have gluten sensitivy or Celiac Disease?
Also, my total IGA level seems to be on the higher side. My White Blood Cell count is 9800 and Eosinophils is 7%. My CRP is 15 and ESR is 28. Should I be concerned?
Should I get an ANA or any other antibody test done to see if I am developing or have some other autoimmune disease which might be causing all these symptoms?
I don't have diabetes, but my sugar levels used to be 120 fasting and below 200 post meal for a few years, especially when I used to have the most severe episodes of stomach pain and other stomach related problems. This however corrected by itself within a few years. These days my sugar levels are 100 fasting and below 135 post meal. Should I get tested for pancreatic antibodies?
My mom suffers from hypothyroidism. My T4, T3, and TSH levels are normal, however I put on weight easily. Should I get tested for thryoid antibodies as well?
I live in India. And it's really frustrating to have visited over 7 MDs and 12 specialists in the last 7 years, and all of them saying that my weight is the main culprit. Maybe it's true to a certain degree. But the issues I am facing have forced me to quit my job as I have lost my ability to handle stress, focus on work and work for long hours the way I could when I was in my teens. So there is definitely something going on here, other than my weight, which is affecting all aspects of my life.
I feel the docs here are not in touch with the latest findings in international medical community, when it comes to treating chronic conditions. However, to give them some credit, they are really good at surgery. And they have indeed suggested me to undergo a gastric bypass surgery countless times. I proved them wrong by losing all that weight in 3 months, and I'm shedding even more after giving up gluten! I don't feel hungry all the time any more!
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