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alissar added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Traveling For A Job InterviewI am going to traveling across the country for a job interview in two weeks. The company is paying to fly my spouse and I out and they plan to "interview and show us around the city" for 3 days. My question is...should I let them know that I have Celiac and am unable to eat gluten prior to leaving? I know that at least one meal/day will be eaten with my potential employers and I will be spending the majority of those 3 days with them. I am not embarassed about having Celiac and it would have no affect on my ability to perform my job, but this is my first major interview and I am nervous about appearing like a diva or high maintenance. Also, I would rather my work skills are discussed as opposed to my inability to eat gluten. Any advice? Anyone else been in the same situation? How did you handle it? Thanks!!!
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alissar added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Almay Smart Shade FoundationDoes anyone know if Almay Smart Shade Foundation is gluten-free or use it without issues? Thanks!
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alissar added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Pantene Pro-V, Secret Deodorant ConfusionMy favorite shampoo/conditioner is Pantene Pro V Fine to Volume. I also use Secret Unscented Solid deodorant. I have read contradictory things about pro-v and Secret products. Can anyone tell me if they use these products without issue? I would like to continue using them if possible. I have tried other products (Burts Bees, 100% Pure, ect) and don't like them as much.
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alissar added a topic in Celiac Disease - Coping WithSugar?I have been gluten-free about a year now and I am still getting bad GI upset and somewhat swollen eyes in the morning. I notice that after I eat desserts or a lot of sugar I get gassy and have horrible D. I had two brownies (gluten-free) about an hour before bed last night and woke up with a very swollen face, headache, and basically I feel like I am hungover. Could this be a sign that my villi aren't healed? Should I expect a healing time of about 2 years? Does sugar have an effect on anyone else? So, if I am to give up sugar should that include fruits too? I really love fruit. Your help is, as always, GREATLY appreciated! Thanks!
One more question. I go out to dinner with my in-laws once/week. Some restaurants I just feel kind of iffy about. If I am getting tiny amounts of cc 1x/week could that prevent me from healing? My enterolab anti-gliandin went from 68 (>10 is positive for gluten sensitivity) to 15 (still positive but much better) in a year. Should the lab values be normal by now?
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alissar added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)gluten-free Honeymoon Suggestions?I am trying to plan my Honeymoon but want to make sure that I go somewhere that I won't spend my time getting glutened and sick. I am very open to any suggestions regarding locations/resorts anywhere (But I am leaning towards somewhere tropical) Thanks!
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alissar added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Confused About Healing Time, Labs, Thanks For Your Help!I have some questions that I could really use your help with. I suspected I had Celiac Disease about 14 months ago and began eating gluten free.
My symptoms were bad D at least a few days/week, GI upset just about every day, bloating/pain in abdomen after meals, severe headaches daily, weight loss, anemia, severe mood swings after meals, severe lethargy, and waking up with swollen eyelids and hands each morning.
After seeing about 10 doctors who tested me for every disease under the sun (but Celiac Disease), I was told I was fine and really felt like I never want to see another doctor again. So, I completed an Enterolab test in April 2010 for anti-gliandin (only did one test due to finances. I am a college student). My results for anti-gliandin were 68 with <10 being normal. I had already been eating gluten-free for two months before taking this test.
Since it has been a year since my last test, and about 14 months gluten free, I decided to take another test through enterolab. This time I ordered the anti-gliandin and anti-tissue transglutamate. Anti-gliandin was 15 with <10 being normal, and TTG was 4 with <10 being normal.
Every single one of my symptoms has gone away on a gluten free diet except I still have occasional bad GI upset (mostly after eating out), and my morning facial and hand swelling is still present but has decreased by about 80%.
Since I am braving this alone without the help of a doctor, I thought I would turn to you with my questions:
If my tTg was normal does that mean I don't have Celiac? Or, does it return to normal after a little time on a gluten-free diet? My Dad is IgA defiecient, if I am would that effect my tTg levels?
Is it possible I still haven't completely healed after 14 months if I do have Celiac? My symptoms are just about gone but not completely, but I really thought they would be gone by now. I dont feel like I am reacting to any other foods but gluten.
I will definitely keep eating gluten-free. I just wish I knew if I had Celiac or not. My friends/family always ask and I am not sure what to tell them. I feel like such a hypochondriac sometimes (even though I know my symptoms are very real).
Thank you all so much for your help!
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alissar added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)gluten-free Oat Reaction Possible? Also, Random Product ?'s.I was wondering if any of you react to oats, even if they are certified gluten-free? I am still pretty new at this diet, but I feel great and then if I eat gluten-free oats (normally in cookies I get from a gluten-free bakery) I get my typical glutened symptoms, however, less severe than if I have wheat, rye, or barley. Maybe I am crazy or its something else I am eating. This diet has me so confused sometimes.
Also, does anyone know if any of these products contain gluten? I contacted all the companies and am waiting for responses but I thought I would ask here also.
1. Bert's Bees Aloe and Sheabutter lotion
2. Full Circle Free and Clear dish soap
3. Cascade dishwasher detergent
4. Softsoap hand soaps
4. Hershey's Bliss Chocolates
5. Dove Promises (milk chocolate, dark chocolate, caramel, almond)
6. Corned beef
7. Are all sodas gluten-free?
Also, is it possible to react to foods that claim they are gluten-free but then state they are tested to make sure they have below 20PPM of gluten (products like nut thins)?
Thanks everyone. I appreciate your input and help so much.
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alissar added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Purel Moisturizing Instant SanitizerI recently began working in a hospital and I am required to use the purel moisturizing instant hand sanitizer before and after leaving each patient's room. I have recently began getting my typical glutened symptoms and I was wondering if anyone knows if these sanitizers are gluten-free. My diet has otherwise remained the same. Thanks!
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alissar added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Glutened... How Long Do Your Symptoms Last?I was just wondering how long your symptoms last after you get glutened? I am still trying to get to the bottom of some of my symptoms and I feel like it takes a good 2 weeks for them to go away after eating gluten. For example, I am swollen for two weeks after I eat even small amounts of gluten. D doesn't normally happen for a couple of days. Do your symptoms last that long? Thanks in advance!
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alissar added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Patron Xo CafeDoes anyone know if Patron XO Cafe is gluten free? I know that regular Patron is, but I am unsure about Patron Cafe. Thanks!
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