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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About sb2178

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    • Gender Female
    • Interests running, spinning (yarn), gardening, food
    • Location Boston

    sb2178's Activity

    1. sb2178 added a post in a topic Not Celiac - So How Do I Know If I'm Still Gluten Sensitive?   

      I'd stay gluten-free until you have a diagnosis indicating otherwise. If, for example, you come back with a Crohn's diagnosis, you'll know that you need to go on the refined grains, no beans, and cooked fruit/veg regime for a few weeks to see if that helps. It's the "whole" wheat that's getting you more than the "wheat."

      If you don't get any findings from the colonoscopy, go through any potential sources of contamination again. I kept finding them for a while... none of which made huge differences individually but cleared up random questionable issues.

      P.S. It's possible to have celiac + IBD. I think you don't need to go there quite yet...
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    2. sb2178 added a post in a topic What's For Breakfast Today?   

      Butternut squash soup... then half an udi's bagel w/ PB and fig jam later in the morning.
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    3. sb2178 added a post in a topic How To Deal With Food When Not At Home   

      Frittatas are great one-dish meals that are good cold or hot.
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    4. sb2178 added a post in a topic The Funny Pages - Tickle Me Elbow - The Original   

      Deadlines are all in the Dec 15 to Jan 15 range. Still struggling a bit to figure out where I would fit well with faculty interests and the oh-too-rare funding for more social-based, non-molecular nutrition. There's not really a perfect solution, and the most enthusiastic prof I met in out West, but it'll be a serious move to leave the east coast.

      Great sympathy for a mono sufferer... not fun at all.
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    5. sb2178 added a post in a topic Waffle Iron Blues   

      Never tried it, but perhaps you could bake it in the oven instead?
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    6. sb2178 added a post in a topic What Are You Canning/preserving?   

      Not enough! Was supposed to teach a canning class tomorrow; fortunately, it was canceled as I'm beat and need the down time. So, far I've only done rather a lot of jars of lemon apricot sauce. Will hopefully do some spiced plums and pickled cauliflower... but this year is getting away from me.

      I have been playing with lactofermented veg, though. I've done cucumbers, persian cucumber, carrots, and kohlrabi. The carrots are fantastic! Dill, summac, peppercorns, and a few grapeleaves.
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    7. sb2178 added a post in a topic The Funny Pages - Tickle Me Elbow - The Original   

      wow, must pop back in more often. just spent a few weeks pre-GRE studying (kicked that baby over the moon) and haven't been around. like, not cleaning or playing on internet except for cookbook marketing around. have been physically present, relearning geometry (I know! knew it when I was 14.) Didn't even use it much on the exam either. got all the stats questions except for one which I just needed a little more time to get it. bah...

      cute new chick pics. All the college kids doing well?

      BTW, pb sandwiches without jelly? Isn't that bordering on cruel? At least let 'em have apple slices. Or dill pickles. Dill pickles + pb = excellent. English muffin pizzas are also a great solution to the will only eat pizza dilemna, too. For grown-ups, too...

      Anybody get a new car ;-p?
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    8. sb2178 added a post in a topic gluten-free Recipes To Freeze?   

      I freeze lentil soup and curried chickpeas with carrots like they are going out of fashion. Basically, any soup or stew that does not contain pasta or potatoes.
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    9. sb2178 added a post in a topic Saw My New Pcp Today..   

      I'd take in some info from really classic medical sources: Mayo Clinic (search as a provider, rather than as a patient), Dr. Green's book on Celiac (try your local library), University of Chicago Celiac Center, etc. Flag the sections that mention relationships with other autoimmune diseases, make a list of your symptoms and concerns, and point out the common nutrient deficiencies that should be tested for. If she can make a case for it, she can probably insist that it is medically required. You do need to give her the ammunition, though, as she's a beginner doc.
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    10. sb2178 added a post in a topic 5-Yr-Old ... Need Help   

      "his system adjusting"?! Really, fat malabsorption is abnormal.

      A PCP should be able to order the blood tests, so it's probably feasible to feed some extra gluten for a few weeks then get the blood tests. If they're positive, you could consider it a diagnosis. If they're negative, you would have to decide whether to wait for a GI appointment or just do a strict diet trial (and maybe a challenge). Technically, a full challenge should have at least 6 weeks to 3 months of full gluten, but if he's still eating some, you could probably get away with less...?

      I'm somewhat in favor of testing, just because the medical system tends to have greater respect and better follow-ups for those who at least do some structured testing, and because it could be something else. It's always a great idea to rule out other potential problems.
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    11. sb2178 added a post in a topic What's For Breakfast Today?   

      Leftover pasta and veg with tuna. 'twas quite good.
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    12. sb2178 added a post in a topic Ritter Sport Chocolate Bars And Cc?   

      I eat the dark chocolate hazelnut ones in very limited quantities, but have not contacted them. Typically, I don't react to foods made on shared facilities but there have been exceptions for a few things made on shared lines

      Mostly, I think I don't react because I don't eat much processed food.
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    13. sb2178 added a post in a topic 18 Weeks Pregnant B-12 Very Low   

      at 18w, the critical point for folate is past (not that you shouldn't fix any deficiencies, just that it's not incredibly time sensitive at this point).

      I would also recommend trying to talk someone into testing the infant after birth, or at least discussing whether supplementation might be helpful. Infants of mothers with depleted B12 are sometimes born with insufficint stores since they get it from mama. You'll need a pediatrician with serious knowledge about nutrition or possibly an RD, as that's one thing that was briefly mentioned in a clinical class i had but would not be brought in the vast majority of MD training programs given they get very little nutrition.

      31's a bit on the lower side, but the med community is all over the place on where they think it should be, so some would treat, some wouldn't. I'd be sure you are taking an MVI and/or calcium with it, and again, make sure you give the baby vitamin D drops in the recommended amount.
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    14. sb2178 added a post in a topic I'm Miffed - Need Advice   

      I actually do really well eating at one grandmother's house because she makes that classic steak and potatoes food that is pretty plain. Basically, I skip the dressing on the salad, the bread, and have ice cream for dessert instead of cake. It's not exciting, but there are always white or sweet potatoes at meals so I get carbs. Or make some good cornbread, and cook up a nice plate of veg and roast chicken. Or fry up some fish in a cornmeal coating. Broil pork chop with applesauce, salad, and potato pancakes... Lamb or beef stew; gumbo...
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    15. sb2178 added a post in a topic Intersection Of Diet & A Healthy Relationship With Food   

      There's a blog called Eat the Damn Cake that you should really pop over to and add a comment. She recently did a brief mention of orthorexia (a potential new "disorder" that has not been formally established). It's a little worrisome, but there are people who could probably use a diagnosis so they can receive some support.

      Okay, so my actual thoughts are:

      1) It's a little too dangerous to set yourself up for total perfection. You need something you can "cheat" on SAFELY once in a while. Maybe it's a perfectly ripe fig, or incredible carrot fritters, or coconut chews; chocolate chips aren't working so well. It doesn't need to be based on sugar; I love blanched cauliflower with a passion and feel similarly about fennel. Either of those work really well for a treat for me, and I splurge on them if I'm feeling in need of something to lift me out of my normal habits. (I also eat chocolate.)

      2) Paying attention to new cravings is very important. It might be emotional eating, but it's also important to look at whether there is a physiological basis. I volunteer to teach community nutrition classes, and every now and then I have a class where it's appropriate to ask about cravings during pregnancy (I generally focus on pica, like ice, or cornstach) as a way to introduce your body needing nutrients and that it can express needs in odd ways. Good questions to ask include:
      -recent diet changes
      -possible nutrient deficiencies
      -possible gluten exposure (post trace exposure I want to eat everything in sight... until the next morning... and tend to be more munchy for a few days afterwards, probably to make up for undigested calories)
      -demands such as heavy exercise, major shifts in temperature, pregnancy, lactation, etc

      3) Obssession with anything can be problematic. But, our lives require a certain amount of obssession in order to stay healthy, so it's a hard line to walk if you have a history or a situation that may promote unhealthy behavoir. Keeping an eye on it and seeking professional help if you're questioning your thoughts or actions is always a good idea.
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